AILE Onlus - HLH

Mettere in rete le famiglie HLH, mettere a disposizione le esperienze di ognuno a sostegno della ricerca, pruomovendola. Visita il nostro sito:

[AILE Onlus - HLH @AILEonlus]

Che cosa è #HLH?

HLH sta per "Hemophagocytic LymphoHistiocytosis" Linfoistiocitosi Emofagocitica. E' una... http://t.co/8LUoIvl018

[AILE Onlus - HLH @AILEonlus]

https://t.co/w0lDepryuY

[AILE Onlus - HLH @AILEonlus]

Al #MeyerHealthCampus, il nostro presidente ha presentato l'AILE come associazione di riferimento per l'HLH in Italia al Gruppo di Lavoro sulle Istiocitosi della società scientifica #AssociazioneItalianaEmatologiaOncologiaPediatrica- #AIEOP
#HLH #ricerca #malattierare #AILE

[AILE Onlus - HLH @AILEonlus]

A Pasqua trasforma un regalo in una speranza! ☘️

Scegli le uova solidali di AILE e sostieni la ricerca scientifica sulla HLH.
Il tuo gesto ci aiuterà a regalare una cura ai piccoli malati e alle loro famiglie! 💚

Fai ora il tuo ordine! 👇
https://t.co/ADofCvMiY6

[Histio Hellas @AHistio]

Annual ECHO Meeting in Athens! October 25th, 2023! #histiocytosis #Awareness #conference #viral #socialmedia @Echo_Histio @AILEonlus @ECDGA @HistiocyteSoc @Histiocytosis @Lils_HLH @HistioUK @histio @Ferdeor11 @airi_onlus @Erics_Journey

[Histio Hellas @AHistio]

Tuesday, September 12th International Famil Group Meeting for Histiocytosis! #histiocytosis #Awareness #Rare #September #Together #viral #socialmedia @AILEonlus @ECDGA @Histiocytosis @Lils_HLH @HistioUK @Echo_Histio @histio @HistiocyteSoc @Ferdeor11 @airi_onlus @Erics_Journey

[AILE Onlus - HLH @AILEonlus]

Fa che la tua Pasqua sia #SolidAILE contro la #LinfoistiocitosiEmofagocitica #HLH

[AILE Onlus - HLH @AILEonlus]

Natale 🌲con i gadget dell'#AILE
Vai e su https://t.co/QW92Ix2Hto e sostieni i nostri progetti💚

[Histio Hellas @AHistio]

https://t.co/VPVeo5s1NN
#histiocytosis #Awareness #global #socialmedia #viral #raredisease
@Echo_Histio @Lils_HLH @HistiocyteSoc @Histiocytosis @histio @histiochampions @Ferdeor11 @AILEonlus @ECDGA @Erics_Journey @LiamsLighthouse

[AILE Onlus - HLH @AILEonlus]

Sostieni l'#AILE Sostieni la vita 💚

[Histio Hellas @AHistio]

Raise Awareness Month for Histiocytosis

#histiocytosis #Awareness #Greece #RareDisease #viral #socialmedia #Cure #KNOWLEDGE

@Echo_Histio @Lils_HLH @ECDGA @Histiocytosis @HistiocyteSoc @Erics_Journey @LiamsLighthouse @AILEonlus @Ferdeor11

[Histio Hellas @AHistio]

Watch highlights of the 38th Histiocyte Society Meeting in Stockholm on the following link.
https://t.co/GJtBW1Ud8F
#histiocytosis
#Viralnews #socialmedia #Awareness @Echo_Histio @Histiocytosis @Lils_HLH @AILEonlus @Ferdeor11 @Erics_Journey

[Histiocytosis Assoc @Histiocytosis]

Webcast for ‘Diagnostic Considerations for Optimizing Successful Outcomes in HLH’ on 10/25/22, at 11am EST. There is no charge for this accredited Continued Medical Education course, all thanks to the generosity of Sobi, Inc. https://t.co/YnPR1Smctc Activity Code: HLH03224591

[Histiocytosis Assoc @Histiocytosis]

For more information on the The Histiocytosis Association Research Program, please visit the link in our bio.

We will also be covering the grant program and highlighting the progress made by 2021 recipients in tomorrow's Beyond the Diagnosis podcast, stay tuned.

#research

[AILE Onlus - HLH @AILEonlus]

Per lavorare ad obiettivi comuni a Stoccolma si sono incontrati i rappresentanti dei pazienti con #Istiocitosi di tutto il mondo.
Nasce la #globalhistio
@AILEonlus @ECDGA @EMajusiak @AHistio @HistiocyteSoc @Histiocytosis

[Histio Hellas @AHistio]

Families Associations all over the world collaborate on histiocytosis!
#histiocytesociety #conference #Stockholm #Awareness #ViralVideo #socialmedia #knowledgeispower

[Histiocyte Society @HistiocyteSoc]

What a fantastic day at #HSMtg2022 - amazing speakers, lots of energy, incredible education! And awesome collaboration among family groups! @Histiocytosis @ECDGA @AHistio @AILEonlus

[Histiocyte Society @HistiocyteSoc]

Monday meetings are kicking off! @histiocytosis is honored to support and be a sponsor of the 38th Annual Histiocyte Society Meeting. This meeting has driven tremendous advancements for histiocytic disorders and fosters global collaboration for histio!!

[AILE Onlus - HLH @AILEonlus]

AILE a Stoccolma al 38° Convegno sulle Istiocitosi organizzato dalla @HistiocyteSoc