ALDConnect

Consortium of advocates and experts advancing care for #adrenoleukodystrophy (#ALD) and #adrenomyeloneuropathy (#AMN) through innovation and collaboration.

[ALDConnect @ALDConnect]

@Eichler_Lab Dr. Florian Eichler presenting at the @alexTLCsupport conference!

[ALDConnect @ALDConnect]

@Eichler_Lab is now on Twitter! Be sure to follow Dr. Florian Eichler and his lab to stay up to date on their research!

[ALDConnect @ALDConnect]

Exciting research study opportunity! The University of MN is looking for girls & women ages 14-25 with a family history of X-linked adrenoleukodystrophy (X-ALD) to share their experiences to improve medical care for girls & women with X-ALD in the future. https://t.co/tBikgRsPFb

[ALDConnect @ALDConnect]

ALD Connect 2022 Ambassadors of the Year: Christie Higuera and Ken Dieffenbach. Congratulations to you both!!

[ALDConnect @ALDConnect]

Kathleen O’Sullivan Fortin opening the Patient Learning Academy this morning and sharing many exciting updates from ALD Connect! #ald #amn #aldconnect

[ALDConnect @ALDConnect]

A highlight from day 1 of the ALD Connect Annual Meeting today was our amazing patient experience panel!

[SwanBio Therapeutics @SwanBioTx]

We’re excited to be headed to Baltimore for the 2022 @ALDConnect Annual Meeting and Patient Learning Academy to continue to raise awareness, accelerate scientific advancements and improve health outcomes for patients with ALD.

Click here for more info: https://t.co/7InHf3Ek42

[ALDConnect @ALDConnect]

Welcome to the 2022 Annual Meeting & Patient Learning Academy! Please consider making a donation at the link below. All donations will be matched up to $50,000 by our angel donor. #ald #amn #aldconnect https://t.co/UuNmsPN0EF

[ALDConnect @ALDConnect]

Call in now to discuss what treatments you’ve tried, what’s worked, what hasn’t, and what you want to see for future treatments of adult ALD and AMN at the #ALDPFDD

[ALDConnect @ALDConnect]

Symptomatic adults with ALD and AMN or their caregivers, get ready to call in live for the #ALDPFDD and join the meeting live at https://t.co/hbnVmbnj9a. Make sure your voice is heard!

[MLD Foundation @MLDfoundation]

The afternoon awaits – please join our friends at @aldconnect & share your voice with the FDA. #ALDPFDD #raredisease https://t.co/3hOQppM70E

[MLD Foundation @MLDfoundation]

You're doing a great job Kathleen O'Sullivan Fortin ... and looking so good on camera! #ALDPFDD #RareDisease #ALD @ALDConnect

[MLD Foundation @MLDfoundation]

Our friends at @aldconnect have kicked off the ALD community's EL-PFDD meeting #ALDPFDD

[ALDConnect @ALDConnect]

Symptomatic adults with ALD and AMN or their caregivers, get ready to call in live for the #ALDPFDD and join the meeting live at https://t.co/hbnVmbnj9a. Make sure your voice is heard!

[ALDConnect @ALDConnect]

Symptomatic adults with ALD and AMN or their caregivers, submit your comments for the #ALDPFDD by emailing [email protected] and join the meeting live at https://t.co/hbnVmbnj9a. Make sure your voice is heard!

[ALDConnect @ALDConnect]

Join us for live polling! #ALDPFDD. Watch live at https://t.co/lDtzzmNhcS

[ALDConnect @ALDConnect]

Join us live for the #ALDPFDD now! Go to https://t.co/lDtzzmNhcS to watch and join the conversation!

[ALDConnect @ALDConnect]

Thank you for your support! #ald #adrenoleukodystrophy #aldconnect

[ALDConnect @ALDConnect]

Our Annual Meeting and Patient Learning Academy would not have been possible without our sponsors. Thank you!

[ALDConnect @ALDConnect]

Thank you to everyone who made our 2020 ALD Connect Annual Meeting and Patient Learning Academy a success! #aldconnect

[ALDConnect @ALDConnect]

Dr. Molly Regelmann, Dr. Troy Lund, Dr. Keith Van Haren, Dr. Florian Eichler, and Dr. Joshua Bonkowsky answer questions from the ALD community during our “Ask the Experts” panel. #ald #adrenokeukodystrophy #aldconnect