ALS Assoc. Indiana

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

[ALS Assoc. Indiana @ALSAIndiana]

Join ALSA Indiana for the upcoming Powerful Tools for Caregivers course!

The first class is February 8th at 1pm EST via Zoom. To register, please contact Chelsea Richards at [email protected] or 317-767-1407. Can’t wait to see you there!

#ALS #caregiver #selfcare

[ALS Assoc. Indiana @ALSAIndiana]

For more information about how to manage breathing for individuals with ALS, check out our seminar here ➡️ https://t.co/DxeYWs4gOE

#ALS #whateverittakes #ItTakesAllofUs #healthcare #respiratory #airway

[ALS Assoc. Indiana @ALSAIndiana]

#ALS can cause people to have difficulty breathing and keeping their airways clear. Here are 3 of the essentials for maintaining airway clearance in individuals with ALS 👇
🔺 Protect the airway from aspirating
🔺 Maintain adequate cough
🔺 Measuring airway clearance ability

[ALS Assoc. Indiana @ALSAIndiana]

ICYMI: In October, a man from Indianapolis biked 100 miles to raise money and awareness about Hoosiers living with #ALS. Learn more about his incredible journey and how his #fundraising efforts changed the lives of folks living with ALS 👉 https://t.co/IK14jAaEWR

#ItTakesAllofUs

[ALS Assoc. Indiana @ALSAIndiana]

For many, #driving is a necessity for maintaining independence and financial security. Unfortunately, diseases like #ALS can affect a person’s ability to safely operate a vehicle.

Check out our article for more info ➡️ https://t.co/v5qEpH5ADu

#ItTakesAllofUs #disability

[ALS Assoc. Indiana @ALSAIndiana]

We have a lot of great things planned for this year! We can’t wait to connect as a community and work together to support those living with ALS and fund #research to cure #ALS! Keep up to date with our calendar here: https://t.co/cPsqVwLlSd

#ItTakesAllofUs #ALSwalk

[ALS Assoc. Indiana @ALSAIndiana]

There are several therapy options to support #respiratory and ventilation functions for folks living with #ALS, include ⬇️
🔹 BiPAP
🔹 Bi-Level
🔹 Non-invasive ventilation
🔹 Tracheostomy
🔹 Portable ventilator
🔹 Multi-Function ventilator

More info ➡️ https://t.co/DxeYWs4gOE

[ALS Assoc. Indiana @ALSAIndiana]

If you’re a caregiver to someone living with ALS, consider checking out our #Caregiver Education Course! Learn how to #support the specialized needs of people living with #ALS and develop greater confidence in your caregiver responsibilities.

Enroll here: https://t.co/8uSASoqST2

[ALS Assoc. Indiana @ALSAIndiana]

Many patients are concerned about the high annual cost of #Relyvrio, a new drug that can help slow the progression of #ALS. Learn more about how patients are navigating the healthcare system to access this critical #medication 👉 https://t.co/s6bt39njDv

#ItTakesAllofUs #medical

[ALS Assoc. Indiana @ALSAIndiana]

If you or your family are in need of #medicalequipment, check out our equipment loan closet! We can offer donated and durable medical equipment to families in need.

For more info, contact us at [email protected].

#ALS #whateverittakes #ItTakesAllofUs #donations

[ALS Assoc. Indiana @ALSAIndiana]

The Lawrence and Isabel Barnett Drug Development Program is an exciting funding source that allows us to fund ALS-related research projects for preclinical trials.

Read more ➡️ https://t.co/Bq71zGD8K2

#ALS #whateverittakes #ItTakesAllofUs #STEM #scienceresearch #sciencefunding

[ALS Assoc. Indiana @ALSAIndiana]

What age does ALS start? 🤔

Most people who develop ALS are between the ages of 40 and 70, with 55 being the average age of diagnosis.

Learn more here ➡️ https://t.co/nMyb4WCZFc

#ALS #whateverittakes #ItTakesAllofUs #genetictesting #ALSquestions

[ALS Assoc. Indiana @ALSAIndiana]

If you’re seeking guidance on your journey with #ALS - or information to help care for someone with ALS - consider joining one of our local support groups! ❤️

Join today 👉 https://t.co/za7Dip91HR

#whateverittakes #ItTakesAllofUs #PALS #caretakers #supportgroup #mentalhealth

[ALS Assoc. Indiana @ALSAIndiana]

Check out this blog for more information about the genetics of ALS and if you or your family is at risk of ALS ➡️ https://t.co/3TLyDBT0Zq

#genetictesting #ALSquestions

[ALS Assoc. Indiana @ALSAIndiana]

While #ALS can be genetically passed down, about 90-95% of ALS cases occur in individuals with no family history of ALS. For some individuals, ALS is caused by a gene mutation that can be passed down genetically or occur sporadically.

#whateverittakes #ItTakesAllofUs

[ALS Assoc. Indiana @ALSAIndiana]

Looking for some fun, wheelchair-accessible destinations across Indianapolis? Check out this list from accessibleGO for a list of fun, ALS-friendly activities 👉 https://t.co/k86THRhviD

#ALS #whateverittakes #accessible #accessibility #wheelchair

[ALS Assoc. Indiana @ALSAIndiana]

The US department of #Veteran Affairs has approved to cover RELYVRIO, the new drug recently approved by the FDA to treat ALS. #Veterans living with #ALS will now have access to RELYVRIO through their VA benefits.

Read more here ➡️ https://t.co/PR9txngqPY

#whateverittakes

[ALS Assoc. Indiana @ALSAIndiana]

Early #symptoms of ALS can look different for everyone. Here are a few of the common early signs of ALS 👇
✳️ Muscle weakness
✳️ Fine motor issues
✳️ Change in vocal pitch
✳️ Difficulty swallowing

Learn more here 👉 https://t.co/CW4yVudgJx

#ALS whateverittakes #ItTakesAllofUs

[ALS Assoc. Indiana @ALSAIndiana]

Your donations help us fund critical research to find a cure for ALS and support those living with ALS across Indiana. Consider making an end of year donation today ➡️ https://t.co/D3V7eNASmP

#ALS #whateverittakes #ItTakesAllofUs #research #medicalresearch

[ALS Assoc. Indiana @ALSAIndiana]

Learn more 👉 https://t.co/58Gyqh50yP

#whateverittakes #ItTakesAllofUs

[ALS Assoc. Indiana @ALSAIndiana]

The money raised in 2014 and beyond during the #IceBucketChallenge brought us AMX0035, an effective #ALS treatment. This drug has been FDA approved, but now what? Medicare and private insurance companies will need to determine what they will cover before it is available.