ALS Upstate New York

Leading the fight to treat and cure ALS across 48 counties in Upstate New York!

[The ALS Association @alsassociation]

(1/3) BREAKING: @US_FDA’s Advisory Committee voted 7 to 2 for recommending approval for #AMX0035. We applaud and thank the FDA Advisory Committee for their vote to support approval of AMX0035 and we urge the FDA to swiftly approve. Americans living with #ALS cannot wait.

[ALS Upstate New York @ALSAUNY]

Thank you to Jim Robertson from @RepStefanik's office for discussing #ALSResearch and our 2022 public policy goals

[ALS Upstate New York @ALSAUNY]

#ALSAdvocacy Thank you Jessica Burrell from @RepBrianHiggins for discussing investments in #ALSResearch that will accelerate our search for effective treatments

[ALS Upstate New York @ALSAUNY]

Thank you @SenGillibrand's office for meeting with us to discuss our 2022 public policy priorities

[The ALS Association @alsassociation]

BREAKING: @US_FDA has accepted @AmylyxPharma New Drug Application (NDA) for AMX0035 and granted priority review with target date of June 29, 2022 for completion of review and action. You can see Amylyx’s release at https://t.co/x2W35iTdos

[The ALS Association @alsassociation]

Breaking news!

[The ALS Association @alsassociation]

(2/2) Thank you @SenSchumer, @SpeakerPelosi, @LeaderMcConnell, @GOPLeader, @repmikequigley, @ChrisCoons, @lisamurkowski & all #ALSChampions in Congress for your leadership in passing the #ACTforALS Act. This important bill will directly impact the lives of people with #ALS.

[The ALS Association @alsassociation]

(1/2) BREAKING: The #ACTForALS Act has been signed into law. Thank you to all #ALSAdvocates for the hard work it took to get this historic bill across the finish line. Thank you @POTUS for supporting people with #ALS & their loved ones. Your tireless support makes a difference!

[Chuck Schumer @SenSchumer]

Today, President Biden is signing the ACT for ALS Act we passed in the Senate into law.

It's historic legislation.

It will transform research into ALS.

It will spur the discovery of new treatments and cures for ALS patients.

I’m proud to have fought for it.

We got this done.

[The ALS Association @alsassociation]

Today at 3:30pm ET, @POTUS will sign the #ACTforALS Act (H.R. 3537)! Tune in to watch it live: https://t.co/D6mey7VYEn

[Syracuse Spartans @SyrSpartans]

Take a look at the upcoming games that we have on our home schedule! The Spartans next host the Crush on Wednesday!

Don't forget to come out to the ballpark on July 4th at 1:05 as the Spartans and @SyrSaltCats play and raise money for @ALSAUNY!

[ALS Upstate New York @ALSAUNY]

Thank you @RepJacobs for meeting with us this week to discuss policy changes that will accelerate our search for and access to effective treatments for #ALS and expand telehealth services! #ALSAdvocacy

[ALS Upstate New York @ALSAUNY]

Thank you to @RepBrianHiggins and Jessica Burnell for your time this afternoon and for your support of legislative priorities that will directly impact the lives of people with #ALS and their loved ones.

[ALS Upstate New York @ALSAUNY]

Thank you to @RepJoeMorelle and Owen Reilly for your time this afternoon and for your support of legislative priorities that will directly impact the lives of people with #ALS and their loved ones.

[ALS Upstate New York @ALSAUNY]

Thank you to @RepJohnKatko and Alexis Castaneda for your time this morning and for your support of legislative priorities that will directly impact the lives of people with #ALS and their loved ones.

[ALS Upstate New York @ALSAUNY]

Thank you to @SenGillibrand and Gil Ruiz for your time this morning and for your support of legislative priorities that will directly impact the lives of people with #ALS and their loved ones.

[ALS Upstate New York @ALSAUNY]

Thank you to @TomReedCongress for your time this morning and for your support of legislative priorities that will directly impact the lives of people with #ALS and their loved ones.

[The ALS Association @alsassociation]

Today, ALS Association chapter leaders and #ALSAdvocates are meeting virtually with more than 230 Congressional offices to secure federal support and bring us closer to a world without #ALS. Follow #ALSAdvocacy for updates.

[The ALS Association @alsassociation]

UPCOMING WEBINAR: Join us this Friday to hear from a panel of experts discuss #COVID19 vaccine access for people living with #ALS. Register today: https://t.co/TB98sQYd5V
​
Have questions for the panelists? Send them to us ahead of time at [email protected]

[NEALS Consortium @NEALSConsortium]

Join us this Friday at 4 PM EST for a webinar on Expanded Access to Investigational Drugs https://t.co/7rmwv0Uiny