ALS Public Policy

The Public Policy Department of The ALS Association. We provide people with ALS and their families an active and strong voice in Washington DC.

[ALS Public Policy @ALSPublicPolicy]

Legislation has been introduced to waive the five month SSDI waiting period for ppl living w/ #ALS! You can help! https://t.co/ER7uLf9EKy

[ALS Public Policy @ALSPublicPolicy]

Please join us at @alsassociation for the latest information about ALS-related public policy priorities, progress, and achievements. We will no longer be posting on this handle. Thank you! #MND #ALS #ALSadvocacy

[ALS Public Policy @ALSPublicPolicy]

Please join us at @alsassociation for the latest information about ALS-related public policy priorities, progress, and achievements. This account will be deactivated on March 15. Thank you! #MND #ALS #ALSadvocacy

[ALS Public Policy @ALSPublicPolicy]

Please join us at @alsassociation for all the latest information about ALS-related public policy priorities, progress, and achievements. This account will be deactivated on March 15. Thanks! #MND #ALSadvocacy

[ALS Public Policy @ALSPublicPolicy]

Thank you to @RepDerekKilmer for meeting with advocates from @ALSA_EC last week and helping people with #ALS by cosponsoring #HR5183!

[alsnorthcarolina @alsncchapter]

Thanks, @SenatorBurr, for cosponsoring S. 2904. All of us in the ALS community give our heartfelt thanks.

[ALS Public Policy @ALSPublicPolicy]

1,500 advocates have sent nearly 4,500 messages to Congress urging them to cosponsor #HR5183 and #S2904. Have you? https://t.co/ER7uLf9EKy

[ALS Public Policy @ALSPublicPolicy]

Thanks to @repblumenauer for supporting the #ALS community and his friends with @ALSAofORSWWA by cosponsoring #HR5183!

[ALS Public Policy @ALSPublicPolicy]

Great support for #HR5183 from New York: thanks to cosponsors @RepKathleenRice, @RepPaulTonko & Rep. Peter King! @ALSofGNY @ALSAUpstateNY

[ALS Public Policy @ALSPublicPolicy]

After meeting with advocates from @ALSofDcMdVa last week, @Call_Me_Dutch is now a cosponsor of #HR5183. Thank you from the #ALS community!

[ALS Public Policy @ALSPublicPolicy]

Thank you to @RepTimRyan for cosponsoring #HR5183 to waive the SSDI five-month waiting period for people with #ALS! @ALSANorthernOH

[Richard Burr @SenatorBurr]

I’m cosponsoring the ALS Disability Insurance Access Act (S.2904) because people with #ALS don’t have time to wait.

[ALS Public Policy @ALSPublicPolicy]

This week, @SenatorBurr cosponsored 2 bills to help people with #ALS: S. 2196 (CRT) and S. 2904 (SSDI). Thank you Sen. Burr! @catfishchapter

[ALS Public Policy @ALSPublicPolicy]

Thank you to @SenSchumer for cosponsoring S. 2904 to waive the SSDI five-month waiting period for people with #ALS! @ALSAUpstateNY @ALSofGNY

[Kelly Irvin @Kelly_S_Irvin]

This is so important. On average, an ALS patient lives 2-5 yrs after diagnosis. 5 mos is too long! #ALS #Help https://t.co/9vjkrRHPZC

[ALS Public Policy @ALSPublicPolicy]

Learn how you can help people living with #ALS in just a few clicks! https://t.co/ER7uLf9EKy

[CDC Environment @CDCEnvironment]

Focus on #ALS and the Nat’l ALS Registry in a new journal article associating environmental toxins and ALS at https://t.co/loh7fv4pLu.

[CDC Environment @CDCEnvironment]

ATSDR at ALS Advocacy Day Conf. in Wash. DC discussing the Nat’l #ALS Registry. Learn more: https://t.co/rDsfXSz8LQ

[ALS Public Policy @ALSPublicPolicy]

.@LorriCarey was a featured panelist at #Cures4Rare to highlight why we need treatments now! #alsadvocacyday

[Natasha Flint @Natantrum]

Lorri Knox Carey @alsassociation "Time is not something #ALS patients have" #Cures4Rare