ALect2 Alliance

Nonprofit raising awareness and providing accurate information about LECT2 amyloidosis to support the patients with and physicians treating this disease.

[ALect2 Alliance @ALect2A]

#ALECT2 #amyloid... "the true prevalence of this type of amyloid may be greater than is currently recognized.” https://t.co/EkhhLUbMbz

[ALect2 Alliance @ALect2A]

#ALECT2-Serial SAP scans up to a decade apart revealed no #amyloid accumulation and no cardiac amyloid during f/u. https://t.co/EkhhLUbMbz

[ALect2 Alliance @ALect2A]

#ALECT2 natural history is very slow #CKD progression. Mean GFR loss was 4.2 mL/min/year and only 6 reached #ESRD. https://t.co/EkhhLUbMbz

[ALect2 Alliance @ALect2A]

"Our cohort-further supports an ethnic bias but
includes individuals from the Indian Subcont and
Egypt/Sudan"https://t.co/EkhhLUbMbz #lect2

[ALect2 Alliance @ALect2A]

Among 22 patients who were dialysis independ at dx, mean rate of GFR loss was 4.2 mL/min/year #amyloidosis #alect2 https://t.co/EkhhLUbMbz

[ALect2 Alliance @ALect2A]

SAP scintigraphy: extra-renal #amyloid in most patients including 88% splenic, 46% hepatic, 38% adrenal https://t.co/EkhhLUbMbz

[ALect2 Alliance @ALect2A]

ALECT2 in UK study: 67% from Indian subcont, 30% of Mid East, 3% Mexican. No dx in Caucasians from 1994-2015! https://t.co/EkhhLUbMbz

[ALect2 Alliance @ALect2A]

UKNCA reports 24 patients with ALECT amyloidosis (1.3% of 1853 patients with renal amyloid) between 1994 and 2015. https://t.co/EkhhLUbMbz

[Amyloidosis @Amyloidosisfdn]

#AmyloidosisAwareness #amyloidosis https://t.co/MWaqGi0tzK

[Amyloidosis @Amyloidosisfdn]

Newly diagnosed? Get the Facts on Amyloidosis here on our website: https://t.co/bNu9KPTyJQ

[ALect2 Alliance @ALect2A]

Join us in building a community working towards a cure for #LECT2 #amyloidosis! https://t.co/GuqVjnb0je

[ALect2 Alliance @ALect2A]

Reminder to have "a high level of suspicion for #ALECT2 amyloid in older #Mexican pts with CKD and bland sediment." https://t.co/2Ok6a3944i

[Amyloidosis @Amyloidosisfdn]

Get the Facts about #Amyloidosis on our Website: https://t.co/5Wz57O0ejS #AmyloidosisAwareness #RareDisease

[National Kidney Foundation @nkf]

1 in 3 Americans are at risk for kidney disease. Check your risk by taking this quiz. https://t.co/2NbrQANFRv

[ALect2 Alliance @ALect2A]

The etiology of LECT2 #amyloidosis is a mystery. Here is a nice summary of what is known. https://t.co/hbJDEs9eIz

[ALect2 Alliance @ALect2A]

LECT2 #amyloidosis patients typically present with CKD. Proteinuria is absent altogether in many https://t.co/N3rAGtSzOB #ALECT2

[ALect2 Alliance @ALect2A]

54% of #kidney #amyloidosis cases from the Southwestern United States were #LECT2 type. https://t.co/URDI6PK0gl

[National Kidney Foundation @nkf]

Check out this recipe for the perfect summer salad that’s also kidney-friendly. https://t.co/5QJcVOsTtP

[ALect2 Alliance @ALect2A]

This is the first reported #Lect2 #amyloidosis case in the #Chinese population. https://t.co/bQWpPRwmVz

[ALect2 Alliance @ALect2A]

In addition to Egypt, another country in northeast Africa with reports of LECT2 #amyloidosis is #Sudan. https://t.co/Ou3YoG8wCY