AMoore

[AMoore @AMoore864]

@elisaperego78 Over $1B spent on RECOVER and six years later still spectacularly failing

Where are the medical treatments? Young people are severely disabled! Help!

@NIHDirector_Jay @SecKennedy

[AMoore @AMoore864]

@JackHadfield14 Spoken like a true psychiatrist

[AMoore @AMoore864]

@MatthewJDalby @mecfsskeptic @useless_priest And conveniently they came to the conclusion they did

Also “based on Fukuda but included PEM….tells me about all I need know 🙄

[AMoore @AMoore864]

@NBoydGibbins Can identify through daily experience

Seems unsustainable

[Nicholas Boyd-Gibbins, MEng, PhD @NBoydGibbins]

I feel privileged and humbled when I think that if @amaticahealth achieves even 5% of what we hope to, we could help improve the lives of millions of people

All of us are working so hard towards that dream

[AMoore @AMoore864]

@YoungEmerg @Invest_in_ME What a farce

[AMoore @AMoore864]

@erikmoldwarrior @Davemconte And it worked brilliantly

[AMoore @AMoore864]

@MartinMoltke Very very sorry you are going thru this
You’re not alone

[Christoph Ströck @cstroeckw]

ME/CFS,

is one condition I strongly encourage you to put on your radar: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). ME/CFS is one of the most severe and neglected chronic diseases that is not rare. In its worst forms, patients are completely bedridden, unable to tolerate light, sound, or human interaction. Quality of life is among the lowest of any illness.

Despite all this, research funding has historically been extremely low relative to disease burden, largely due to long-standing mischaracterization and bias, including the fact that many patients are women.

ME/CFS sits at the intersection of immunology, neurology, and metabolism, involving complex multi-system dysfunction. This is exactly the kind of problem where AI can have an outsized impact by integrating complex data and uncovering hidden leads.

Please take a closer look. Your involvement could make an extraordinary difference to many millions affected globally.
Thank you 🙏

[AMoore @AMoore864]

@NBoydGibbins Per my RNA full data analysis of mast cell genes:

“Degranulation machinery mostly down, while histamine side regulation looks mostly dysregulated”

Note: I don’t have mast cell symptoms

[AMoore @AMoore864]

@JackHadfield14 @amaticahealth Great work @JackHadfield14 @NBoydGibbins and team!

Thanks very much for spending your energy on this important research

[Johann Margulies @MarguliesJohann]

Finally received my RNA-seq results from @amaticahealth, I can’t begin to express how grateful I am for the work done by @JackHadfield14 and his team.

Truly glad to contribute to research on #MECFS #longcovid this way, and looking forward to spending some time with Claude making sense of all this data!

[Brittani James, MD @DrBrittaniJ]

Millions of people got sick, then got sicker — and then stopped getting better.

They came back with normal labs. Unremarkable imaging.

And the quiet suggestion that maybe the problem wasn't biological.

Long COVID didn't just introduce a new illness. It exposed how modern medicine responds when suffering can't yet be measured.

Modern healthcare systems struggle with:
- Illness without measurable biomarkers
- Symptoms that fluctuate and defy categorization
- Patients — especially women — whose suffering outpaces the science
- Chronic complexity in a system built for acute resolution

What Long COVID revealed was already there.

Patients with ME/CFS, fibromyalgia, and dysautonomia (like POTS) had been describing this reality for decades.

Long COVID just made it impossible to ignore.

In this essay, I explore:
- Why Long COVID exposed cracks in medicine that existed long before the pandemic
- How "we can't explain this" quietly became "this may not be real"
- Why chronically ill patients already knew this story
- How a system built for acute disease failed millions with chronic illness
- Why Long COVID's research funding is catastrophically misaligned with its actual harm
- And what medicine still owes the patients it dismissed

https://t.co/ZyhfAYtqn2

[AMoore @AMoore864]

@seanstidston For sure

[Jack | amatica health @JackHadfield14]

If the U.S. Secretary of the Department of Health and Human Services (Sec Kennedy) and the U.S. Surgeon General both want more funding to be allocated to these diseases, why don’t they just do it?

Why does our disease require so much conversation of plans, and never just doing.

[AMoore @AMoore864]

@NBoydGibbins Thank you for your interest and intellect here!

[Tom McMurtry @TomMcMurtryNZ]

@demishassabis @IsomorphicLabs Chronic disease with super sick and unfunded populaces like those with ME/CFS, long covid & vaccine injury sure could use this kind of advancement and help.

[Photon Turtle @PhotonTurtle]

Demis I wholeheartedly agree with this vision. I just want to bring attention to one of the worst disease affecting myself and many others currently: Myalgic Encephalomyelitis. The suffering from the disease (extreme pain and disability) is so great that many with the severe form choose to end their own lives. Please we need any kind of help possible. Many of your colleagues in the tech industry are effected and the number will keep rising. Anyone can acquire the disease through any infections (Covid exponentially increased the number of cases). Please if you can spare a bit of your attention, millions need people to spread awareness and help build solutions.

[AMoore @AMoore864]

@kania_felix @MikeZ___2 @JackHadfield14 I’m thrilled these tests are being offered as I cannot access other in depth testing of this kind

[AMoore @AMoore864]

@JackHadfield14 Excellent work!