A Week Less Ordinary

2 adults, 4 children & a baby - who had a life saving kidney transplant and was diagnosed with leukaemia

[A Week Less Ordinary @AWLessOrdinary]

Back at @GreatOrmondSt unfortunately Ethan has been diagnosed with leukaemia. So Christmas in hospital. Chemo starts Xmas Day. #givehimabreak

[A Week Less Ordinary @AWLessOrdinary]

@AirbnbHelp My Airbnb discrimination case is stuck in a support loop. Messages are auto‑closed. Compensation offered but not paid. EASS confirmed likely discrimination. I need a response. .

[A Week Less Ordinary @AWLessOrdinary]

@currys @RemingtonUK my teenage daughters four week old hair dryer daughter fire while she was using it and not had a response from Curry’s. Can you explain what I should do?

[A Week Less Ordinary @AWLessOrdinary]

Watching Arsenal Zzz Ethan was supposed to be @wembleystadium today, they kindly provided us with a @ManCity box to watch the game.
He couldn’t be there because he’s so unwell, kindly the stadium and Man City still gifted the girls the opportunity to watch Arsenal be defeated.

[A Week Less Ordinary @AWLessOrdinary]

@thameswater clearly not right. I’ve used no less water Dec to jun, so the meter has either not been read (wouldn’t be the first time), or done incorrectly. I’m now on my second half hour call to try and convince someone this is wrong. Please resolve this acc no 900044789124

[A Week Less Ordinary @AWLessOrdinary]

@British_Airways A cancer charity paid for family to go to Disney. flight was cancelled. Hotel provided but no transport - son is in a wheelchair. Had to pay for a cab. You’ve put them on an Air France flight and the medical equipment bag we’ve now had to pay for. Advice please?

[A Week Less Ordinary @AWLessOrdinary]

@thameswater It’s ok. I’m expecting an engineer in the next 15 days to have a look. Hopefully not the same one who didn’t read our meter before. Honestly this happened before when the guy came round and didn’t read the meter and submitted fake readings.

[A Week Less Ordinary @AWLessOrdinary]

@thameswater have a 4 bed house with 5 people. Suspicious my bill has reduced by 2/3? Half hour on the phone to get call taker to understand the issue. I look at my meter, which is so covered with grass and soil it’s not been looked at for ages. Not again! #makeitup #trustworthy?

[A Week Less Ordinary @AWLessOrdinary]

@ManCity Ethan is wishing you luck today. Mum and sister are at the game today but we are having to watch on my phone from @GreaOrmondSt after an unplanned stay and a number of surgeries. Good luck

[A Week Less Ordinary @AWLessOrdinary]

@GreatOrmondSt honestly you’re amazing at the healthcare stuff but after several days of illness and no sleep you can’t really expect a parent to sleep on this and be functional. Also it’s hilarious that these are the same chairs from when Ethan first came to Eagle Ward.

[A Week Less Ordinary @AWLessOrdinary]

@gigaclear so 24hrs & no further forward, internet still not working. Here is Ethan, autistic with a host of conditions & reliant on the internet for entertainment. I am reliant for work. How can zero progress be made to fixing it!!?

[A Week Less Ordinary @AWLessOrdinary]

@gigaclear so for the second time in the last few weeks the wifi fails due to a brief power cut. Spend 1.30hr on live chat and no further forward. How can it be acceptable - can’t work, can’t watch tv, autistic son can’t use his iPad. #cancelasap

[A Week Less Ordinary @AWLessOrdinary]

@OctopusEnergy #savingsessions

[A Week Less Ordinary @AWLessOrdinary]

@OctopusEnergy #savingsessions

[A Week Less Ordinary @AWLessOrdinary]

@McDonaldsUK £45 for a freezing cold meal. We kept seeing delivery drivers accept the order then leave. Happened three times. So all the while our food sat there.

[A Week Less Ordinary @AWLessOrdinary]

@McDonaldsUK so we ordered from you in bicester. Receipt reads 1907. It was delivered at 2010. Freezing cold. Can’t work out how to get a refund as directs us to Uber

[A Week Less Ordinary @AWLessOrdinary]

@McDonaldsUK It was Bicester.

[A Week Less Ordinary @AWLessOrdinary]

@premierinn we want to book a room for Manchester Piccadilly. Is there anywhere to leave a bag for a few hours when we’ve checked out. Thanks. (Tried to ring).

[A Week Less Ordinary @AWLessOrdinary]

Georgia, Slytherin, playing the #skyvip quiz #DynamiteDavies

[A Week Less Ordinary @AWLessOrdinary]

@Tesco Thanks. Done.

[A Week Less Ordinary @AWLessOrdinary]

@Tesco hello. Our little boy is four and has to wear nappies for medical reasons. We heard about these nappies which sound great. However we can’t get them anywhere. Do you no longer sell them? Thanks