Established in 2005, the Reid R. Sacco AYA Cancer Alliance closes the gaps in the care and treatment of Adolescents & Young Adults diagnosed with cancer.
Today we've announced the completed enrollment in the FIREFLY-2 clinical trial, evaluating our medicine as a front-line treatment for pediatric low-grade glioma (pLGG). This is another step forward in our work to evolve the pLGG treatment paradigm and ultimately establish a new standard of care for patients newly diagnosed with pLGG. Read more: https://t.co/UTpuY9fyNU
Clinical trials move new osteosarcoma treatments from research to real life. From trial phases to benefits and risks, UT MD Anderson Cancer Center’s Dr. J. Andrew Livingston shares what families should know and the questions to ask. Read more: https://t.co/PajsIMi05F
One week until RTCS South Florida! Together we raise awareness, provide support, and stand with everyone affected by sarcoma. We are working toward our goal of $35,000 to fund groundbreaking sarcoma research. Whether you walk, run, or form a team, your participation will make a powerful impact.
Register Here: https://t.co/wdbO5VNfEh
#curesarcoma #sarcoma #RTCSSouthFlorida
SFA is accepting applications for the 2026 Last Mile Sarcoma Research Award. This one-year, $150,000 grant supports sarcoma researchers seeking to strengthen the resubmission of R01 or equivalent proposals focused on advancing the understanding and treatment of sarcoma. Applications are due by February 2, 2026, at 5:00 pm ET.
#sarcoma #curesarcoma #sarcomaresearch
Lily Farnham, a high school junior in Maryland, is part of a new generation of sarcoma advocates turning personal inspiration into action. After being deeply impacted by the death of YouTuber Technoblade from sarcoma, Lily began researching the disease and discovered the Sarcoma Foundation of America (SFA). Motivated by a lack of awareness and funding for sarcoma, she founded an SFA Club at her school to honor Technoblade and support the sarcoma community.
Now an official school club with nearly 30 members, the group meets regularly to learn about sarcoma, share educational resources, and plan fundraising and awareness activities. Lily’s advocacy became even more personal when she and her family participated in the 2025 Race to Cure Sarcoma in Washington, D.C., where she met patients, survivors, and families impacted by the disease. She hopes to bring her fellow club members to the 2026 race, continuing to turn her “why” into meaningful action and showing how students can play a powerful role in #sarcoma research and advocacy.
#curesarcoma
The January Sarcoma Spotlight is here, highlighting new research, a new peer support opportunity, and an important discussion on global gaps in cancer drug approval.
Read it: https://t.co/eF34yHwXiC
#curesarcoma#sarcoma
Sarcoma Stories is joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care. This conversation is a powerful reminder of the importance of self-advocacy, especially within rare cancer spaces like the sarcoma community.
Listen to the episode: https://t.co/ZYKM0VqAK2
#sarcoma #curesarcoma #sarcomastories #MPNST
We are looking forward to joining the @OSInstitute and the @FDAOncology at the Advancing Osteosarcoma Drug Development workshop on 10 October 2025. Visit https://t.co/lsTrz4vojh to book your space for this hybrid event #osteosarcoma#CancerTreatment#research
What happens after cancer treatment ends? @DrVinayakV of @DanaFarber shares what survivorship really means—especially for young adults navigating rare cancers like sarcoma—on the @AllTalkOncology podcast.
Full episode here: https://t.co/KpD44OnCJ9
Check out @TriageCancer’s webinar on June 26 about navigating health care. This webinar will explore these different types of health care services: palliative care, home health care, long-term care, and advance care planning.
Register here: https://t.co/q6SeMdM2Pr
🚨 Oct 10, 2025: FDA & @OSInstitute workshop on advancing #osteosarcoma drug development.
📍 Washington DC + Virtual ⏰ 9:30am-5pm ET 🎯 Connecting research & regulatory pathways
Register by Sept 24 for in-person attendance: https://t.co/PLwPDgOvzK
#CancerResearch
Join @reid_r_sacco_cancer_alliance and other awesome groups in spreading awareness, sharing resources, and hosting events to support our AYA cancer survivors.
Follow #AYAware#AYACancer#AYACancerAwareness to stay in the loop and help make a difference!
People are finally starting to talk about it, so now we need to keep the momentum going to bring even more awareness to the specific challenges AYAs face.
Cancer is more than just a diagnosis—it’s a full-body, full-life battle. For young adults facing cancer, pain, fatigue, and mental health struggles like anxiety and depression hit hard—at rates much higher than those over 40. *1*