Access4Eddie

We desperately need access to medical cannabis for our son Eddie who suffers from neurologically catastrophic seizures.

[Access4Eddie @Access4Eddie]

@theresa_may @MattHancock @sajidjavid It was a government issue when you realised that the law needed to be changed. It was a government issue when you realised that thousands of patients were suffering. It's a government issue now NONE of those patients have an NHS prescription

[End Our Pain @End_Our_Pain]

Eddie is 3 & has a rare & catastrophic form of epilepsy, he has seizures every day and is profoundly disabled. Pure CBD products haven't controlled his seizures. His family want full spectrum cannabis oil with THC, it is all they have left to hope for.
https://t.co/m9t7UuDVwF

[Access4Eddie @Access4Eddie]

@VictoriaLIVE You are doing a great job keeping this issue in the public eye, thank you!

[Access4Eddie @Access4Eddie]

My brilliant big brother who I got to watch doing his thing as the Team Captain!

[Farndon Primary @farndon_primary]

So proud of both our rugby teams today. Well done to everyone who took part and congratulations to the mixed team who brought the trophy home.

[Access4Eddie @Access4Eddie]

#ChallengeEddie19 waiting for the boys.....

[Access4Eddie @Access4Eddie]

@eddiewoodman11 Happy Birthday Eddie. Smashing it! 👊💜🎂 x

[Access4Eddie @Access4Eddie]

Well done today everyone. It's unimaginably difficult dealing intractable epilepsy, then dealing with the bills of a genuinely life changing medicine. But to be forced to traipse to Donwing Street to make politicians do their job is frankly just outrageous. Sort it @MattHancock!

[Indies fight for a flower @TannineM]

#westandtogether #endourpain @ToniaAntoniazzi @Hanseizuremum @karenmurraygray @JoanneGriffith5 @MattHancock @BaileysShakes @Access4Eddie @MattHancock we cannot keep paying £230,000 every 6 months 🌎🌱💜

[End Our Pain @End_Our_Pain]

TODAY: 10 of the families denied NHS prescriptions for medical cannabis will gather in Westminster demanding answers from @MattHancock after he promised to help them when he met them face-to-face 6 months ago #medicalcannabis #endourpain

[Access4Eddie @Access4Eddie]

Nice talk @MattHancock . Show us the walk.

[Hannah Deacon @Hannah_Deacon40]

‘You won’t wait months’ they have and enough is enough!

⁦@MattHancock⁩ has shown he has no care or sympathy for these families. It’s all a show, a game. You don’t play games with sick children and their families.

#Westandwithyou

[Access4Eddie @Access4Eddie]

The bills are unsustainable @MattHancock. You said you'd help. Please help. Please. @Sandbach

[Channel 5 News @5_News]

Ten families have handed a letter into Downing Street asking the PM to intervene to make cannabis oil easier to obtain.

Many parents are still forced to buy the drug privately, six months after the Health Secretary promised to help.

@Dr_Ellie | @End_Our_Pain | @claudializatv

[Access4Eddie @Access4Eddie]

My amazing friend Chester Blokes is fundraising for Tree of Hope. Donate to Chester's JustGiving page https://t.co/jzFbxOTVIO

[Centre for Evidence Based Drug Policy @drugpolicyUK]

"My son thrives on cannabis oil - but the draft NICE guidelines entrench the difficulties of getting Eddie the prescription he needs"

Read more on @Access4Eddie's story ➡️ https://t.co/9Cc0ypgnYU

[Access4Eddie @Access4Eddie]

@VictoriaLIVE @Hanseizuremum It's brilliant you are still discussing this issue, thank you! Beyond disappointing though that over a year since you talked to me on air about my son Eddie things are still so incredibly hard for families like ours.

[Centre for Evidence Based Drug Policy @drugpolicyUK]

Ilmarie's son @Access4Eddie thrives on cannabis oil but the draft NICE guidelines entrench the difficulties the family has to get him the prescription he needs.

Read Ilmarie's blog on how the draft guidelines have shattered her hope for patient access 👇
https://t.co/9Cc0yoYN7m

[Access4Eddie @Access4Eddie]

Following the publication of both the interim NICE guidelines and the NHS Review @MattHancock requested the CDPRGUK released their longer clip & a blog post

[Centre for Evidence Based Drug Policy @drugpolicyUK]

Ilmarie's son @Access4Eddie thrives on cannabis oil but the draft NICE guidelines entrench the difficulties the family has to get him the prescription he needs.

Read Ilmarie's blog on how the draft guidelines have shattered her hope for patient access 👇
https://t.co/9Cc0yoYN7m

[Centre for Evidence Based Drug Policy @drugpolicyUK]

The draft NICE guidelines have been disappointing for families like Ilmarie's @Access4Eddie. If patients are unable to access cannabis-based meds via legal routes it may be time to decriminalise access via currently illegal routes.

https://t.co/I7EP6b4FQ0

[Indies fight for a flower @TannineM]

Please help share guys sign #indie needs her medication..Matt Hancock : Release the Medicine of 5 year old Indie Rose - Sign the Petition! https://t.co/JJpxtN2CNm via @UKChange

[Karen Gray @karenmurraygray]

This picture speaks a thousand words.
All of these children are benefitting from the same cannabis oils, yet their parents have to fundraise to pay for their medicine each month.
It’s time the NHS & government stepped in to help these children. @MattHancock @NHSuk

[UK Medical Cannabis Alliance @mca__uk]

Can we deliver publicly funded access to medicinal cannabis? Here’s our latest proposal https://t.co/1c15Jm7jFl

[Access4Eddie @Access4Eddie]

@RobinEmersonMrE @KayBurley @CommonsHealth Do we have a clip we can share?

[Channel 5 News @5_News]

This mother's campaigning led to a law change that meant her son Alfie could be prescribed medicinal cannabis for an extremely rare form of epilepsy.

But despite it being legal, many doctors are still not willing to prescribe the products meaning many patients don't have access.

[ITV News @itvnews]

Eddie's family just one of many trying to get cannabis oil on the NHS.

A report has found families' hopes were 'unfairly' raised when doctors were allowed to prescribe medicinal cannabis.

More: https://t.co/NRa52Ko4aJ