We are acutely aware of your struggle John.
We’ve been involved in parent groups since the progressing disabilities model was proposed and rejected by parents back in 2016.
A decade flighting against this inequality that our children face. It’s a system that was sneakily embraced by Gov under the cover of Covid and it’s a given now that it is a failed system by most of the professional healthcare workers and those in senior management.
It’s disingenuous to equate the long wait lists with anything other than the push to save money and privatise services.
We have been protesting and highlighting policy failures for our disability and additional needs children for a long time now and when we look to blame others those who are responsible sit back and smile.
Don’t fall for it.
Now that’s a very good point.
Second hand market is very good value and if you could access the grant it would make it a very attractive option for people plus it would mean less battery wastage.
We wonder will Gov consider this as a viable option or do we have to continue to buy new.
So the have missed the AON target set by Gov by over five thousand.
Another target promised and another target missed and who suffers?
We all know that answer!
Interestingly no Government minister available to talk on Morning Ireland in relation to this massive shortfall.
Again it’s a case of we say nothing it might just go away!!!!!
At the end of a plan to improve disability services for children, the Government has missed its own target for completed Assessments of Needs over a two-and-a-half year period https://t.co/bBPN1PLAi0
Education Minister Hildegarde Naughton will bring the plan for the future development and professionalisation of the SNA workforce to Cabinet.
Documents outlining the contents of the plan are expected to be published this afternoon. The plan is to set out a framework to strengthen and support SNAs through enhanced professional development, greater role clarity, workforce sustainability measures, and stronger collaboration across school communities.
The Special Needs Assistant Workforce Development Plan has been formed after two years of research, engagement and consultation with SNAs and their representative bodies.
Its publication comes off the back of contentious plans to cut the number of allocated SNAs to around 180 schools announced earlier this year – plans that were rapidly rolled back by the government after outrage and protests.
#SNA #ProfessionalFramework
https://t.co/L1CXxoKiYY
This morning Kitty Holland reports in the @IrishTimes how one of the largest mental health bodies in the state cannot endorse the new protocol around autism diagnosis for our children.
We all know this new “system” is flawed and it’s a reactionary response to the increasing waiting lists for AON.
It’s another “massaging” of the numbers but what it is really designed to do is to take the onus off the state, because they cannot resource it properly and to put it back on the person making the diagnosis who is filling out a form.
In the end it will only exasperate a system that is already unable to cope.
The fact a body such as this cannot endorse a system we in the disability community already know is wrong before it’s even started should be alarm bells for everyone.
@CarrollJennifer@NormaFoleyTD1@MichealMartinTD@SimonHarrisTD @asiamireland
Huge thank you to @liamcunningham1 for supporting my sister Laura in her amazing fundraising efforts for Féileacáin in memory of her baby boy, Teddy Farry.
You can still support here: https://t.co/naYiOMXMWO
FIX THE MACDONAGH JUNCTION TRAIN STATION LIFT
This isn't just a disability access issue... Its an everyone access issue
Watch this video & add your name to our petition.
150 people have signed over the weekend
Find out more here https://t.co/FBW1WJqCh0
Pls RT
#MakeWayDay
All year long, family carers are going into debt just to care for their loved ones.
Think about the additional costs faced by older and disabled people, heating, electricity, mobility, and medical costs, to name a few.
There are no shifts in caring. There are no breaks even when you are sick. Many carers have failed health from years of lifting and going without sleep, month after month. And they are expected to do this within a cost of living crisis.
Family carers who give up work to care fly through their savings. They will never make mortgage payments or plan for their own future, because the government doesn't value family carers even though we save the state millions each year.
Carers often have to become beggars just to get a means tested Carer's Allowance, and are often treated by the Department as if they are trying to con the system from the outset.
Once a year, they are given a lump sum (€2,000 this year) so the government can shout, "Look what we are doing for carers!"
They say nothing about the lack of support. At budget time, they’ll celebrate funding thousands of care hours, yet many of those hours go unfilled because they can’t fix the system enough for people to actually want to work as health care workers. That money simply goes back into the pot, while the often aged, burned out family carer tries to carry on.
When will the government actually do something for carers?
Abolish the means test.
Give carers a payment worthy of the work and hours they do.
Fix the homecare crisis.
Implement supports for older people to age at home in dignity.
Introduce a disability payment that will make a real difference.
It is vile to be used as a pawn. The government uses this once a year payment as if they genuinely appreciate family carers. They do NOT.
Actions speak louder than words.
#Carers #CostOfLiving #CarersAllowance #CareCrisis #CareChampions
Don’t forget Gov have taken €1400 off PWD and for a carer caring for one person, usually a child, it’s €1800.
This all in a cost of living crisis. The respite care grant will go towards heating and electricity bills, nothing more and we will still be in debt.
Please adress the real issue here, disability and caring poverty.
💯 we believe the majority of those caring always put the person they are caring for first and foremost in their lives.
It l is something that needs to be recognised more and supported, but alas the system man’s powers that be continue to fail these carers.
The uncomfortable truth.
So it begins the annual look what the carers are getting and aren’t we just brilliant to give it to them!!!!
Don’t mention they are down €1800 on last year.
Don’t mention that energy bills have skyrocketed in homes that have to be warm for those they are caring for.
Don’t mention that the majority live week to week already in poverty.
Every year it’s the same story just be grateful and happy you’re getting anything and please be quite, know your place!!!!
#Caring #Help #Poor #Disability #Poverty
King's College Hospital in London has opened a rooftop garden for critical care patients. Its first patient, a 29-year-old woman dependent on feeding tubes, said the outdoor space gave her 'a real boost to keep on going
The principal of one of the largest schools in Co. Wexford has vowed to take to the streets after the National Council for Special Education (NCSE) denied extra support for 54 high-needs pupils, including a blind child and 36 students with autism.
Frank Murphy, principal of St Aidan's primary school in Enniscorthy has voiced frustration on behalf of himself, his staff, parents, and children in the school at the lack of support or willingness to discuss issues by the NCSE
"It is like pulling a piece of skin and holes opening. We are taking from children in order to give to other children who are more in need. They are going without literacy and numeracy support because the teacher is trying to manage other students that need to be regulated. It is not right,” he added.
#SNA #RightToEducation #Disability #Autism #Wexford
https://t.co/Dt5vMCDsrm
I have rewritten the soccer anthem, 'Put em Under Pressure'.
It's called 'DON'T PLAY '
It features Brian Kerr and Leen Maarouf.
This one's for humanity.
DON'T PLAY!
#stopthegame#dontplay
Powerful letter by Brigid O’Mahony following a meeting organised by Before We Die.
"I am the mother of a 28-year-old man with intellectual disability"
"We are being left by default caring into our 70s, 80s, and 90s. There is also no plan to have a plan and no political will to look after us"
"I also learned that without any policy in place, the Government’s default position is to let us live our lives, sometimes without respite, looking after our adult children with an intellectual disability until we drop"
"Then when we die, our adult children will be put out to tender to providers who make profit from their care"
I have to say as a 64-year-old carer, now caring for nearly 30 years, the full reality is clear. There is no way out of this, we are on our own. Shame on the politicians, shame on the Government. This is more than neglect, it’s barbaric"
#BeforeWeDie
https://t.co/XxIxEHq1YT