Addison's Disease Self-Help Group (ADSHG)

The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉

This year our theme is ‘Turn Awareness into Action’ ⤵️ https://t.co/YGDfMLqXag (1/9)

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

If you're a paramedic & would like to learn more about adrenal crises, please join our online #ParaCPD training sessions🚑

📅 23 June, 1-2.15pm
📅 9 September, 3- 4.15pm
📅 19 November, 2-3.15pm

🚨To RSVP visit 🔗 https://t.co/aEvx8NA2dg
@ParamedicsUK | @AACE_org | @JRCALCPlus

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

💬 On the forum, you can start a new topic to exchange knowledge and experiences, or read existing conversations by choosing a topic from the message boards.

Connect with others every day as you navigate life with Addison's or adrenal insufficiency 🔗 https://t.co/KTniMMXgXu

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

This #VolunteersWeek, we want to thank our wonderful volunteers for everything they do — you're at the heart of our charity 💜

We also want to highlight our Forum Buddies for making our online forum a safe space where people feel less alone. Join here ➡️ https://t.co/KTniMMXgXu

[Adam Holmes @AdamH_ASB]

I am one of just 8000 people with this rare, incurable & life-threatening condition. Big hello to everyone else in #Addisons club 🤘🏻 I hope you are all well and living your best life ❤️ I will be retweeting important info today from all in our community

[Andy Smith @SmudgerAndy]

📅 29th May is Addison’s Disease Day

In late March I was diagnosed with primary adrenal insufficiency (aka Addison's). Since then I've been learning to live with this condition. Fortunately, so far so good, as my medication is working well and I feel much better than previously.

[Giulia Bould @GiuliaBould]

💜Today I'll post a bit more about living with Addison's Disease

🚨It's very rare, it's incurable & it can be life-threatening

⚽I've 2 sides to my life. The one where I'm loving life reporting on footy

🚑The other is being kept alive artificially every day #AddisonsDiseaseDay

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Why is #AddisonsDiseaseDay on 29 May?

It’s the birthday of John F. Kennedy, the 35th US President who managed his Addison's disease & other autoimmune conditions in secret. JFK was diagnosed with Addison’s whilst in London aged 30.

Read more ⤵️
https://t.co/EhLlE4nq8C (9/9)

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉

This year our theme is ‘Turn Awareness into Action’ ⤵️ https://t.co/YGDfMLqXag (1/9)

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

This May, our wonderful community has also been hosting Addison's Afternoon Teas to raise vital awareness & funds in the lead up to #AddisonsDiseaseDay ☕

Together we're making a difference, our work wouldn't be possible without you! Hear more ➡️ https://t.co/YGDfMLqXag (8/9)

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

💬 "Due to this I received excellent care & was able to return home in the afternoon"

The positive impact of the Adrenal Insufficiency Action Plan in an adrenal crisis 🙏 Putting life-saving info in the right hands, at the right moment.

🚦 Order yours ⬇️
https://t.co/UqwJgujxwO

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

For people living with Addison's, salt is a hot topic in this weather☀️But why do people with Addison’s often crave salty foods at diagnosis? & why does salt remain a trusted “pick me up” afterwards?

🧂@simonhspearce explains more on our blog⤵️ #HeatWave
https://t.co/VQepVDcmHw

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Craving salty snacks in this weather? Eat up & consider an electrolyte drink.

🧂 Learn more about aldosterone, fludrocortisone & why you should always listen to your salt cravings on our blog with @simonhspearce 👇 & let us know your fav #HeatWave snack!

https://t.co/VQepVDbORY

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Suns out, stay safe 😎 Temperatures are set to rise this week 🔥

If you have Addison's disease or adrenal insufficiency, there are some extra precautions to take in hot weather to help you stay well. Here are our top tips for handling the #HeatWave ➡️ https://t.co/xQl28KBLOC

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Efmody® (modified-release hydrocortisone) receives MHRA approval for adrenal insufficiency in the UK ✅

On our website, we tell you about the newly licensed medication, how it works, the research supporting it, and how it's prescribed.

Read more ⬇️
https://t.co/G6mxNGtyfX