Philippa Sharman

Balancing #AddisonsDisease & raising awareness of the #RareDisease community. Assistant to Chumbe the cockapoo 🐶. Views my own.

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Through our #ParaCPD we're delighted to have trained 937 paramedics, students & EMTs in 2025!

Thank you @andcorn, we're so glad it has improved your ability to manage steroid dependency & adrenal crisis. Great teamwork @GiuliaBould!

Sign up for 2026 👉https://t.co/KEavdU0UrW

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

On #WorldPatientSafetyDay read our @RCPhysicians Medical Care Blog: Addison’s, adrenal insufficiency & patient safety.

Patient safety involves mindset, systems & processes. We look at the challenges, new @NICEcomms guidance & steps for positive change.
👉 https://t.co/wTrtYi0pKk

[Philippa Sharman @PhilippaSh_]

🩺 @NHSGIRFT do incredibly important work & honoured to be part of it as we all try to improve support & ultimately reduce waiting times for clinicians & patients. #GIRFT Further Faster Endocrinology, thank you for inviting @AddisonsUK to speak. Medics - please use our QR codes!

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Thank you to @NHSGIRFT for inviting us to speak at the Further Faster Endocrinology Speciality Meeting today, explaining the resources we have to support clinicians & patients.

🏥Please get in touch if we can support you & your endocrinology unit➡️ https://t.co/27fHGrcnxH #GIRFT

[Philippa Sharman @PhilippaSh_]

A year on watching your best friend’s Mum’s surgery on TV is a very bizarre (and emotional 😢) experience. Thank you #SuperSurgeons for saving Tracy’s life and for all the Doctors and Nurses who continue to support her and her incredibly precious family 🤍

[Channel 4 @Channel4]

Meet the professionals pushing the boundaries of medicine every single day. Brand new Super Surgeons starts tonight at 9pm.

[Philippa Sharman @PhilippaSh_]

Don’t be fooled by this sleepy dog, our #ECE2024 Patient’s Voice session is thrilling and all should attend 😂

Tomorrow (Sunday 12 May, 12:40 - 13:10 CEST), ECE Hub 2.

🎤 @AddisonsUK, @alexTLCsupport & Professor John Wass.

🗓️ Add to your calendar ➡️ https://t.co/TahrM3BYvV

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

It's #NationalNappingDay - well there's a day those with Addison's & adrenal insufficiency can relate to!

💤 Before diagnosis 94% of people report overwhelming exhaustion & we describe it as tired in a way no amount of sleep (or power nap!) will fix.

🔗https://t.co/jzBXALI7e7

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

In the ADSHG magazine we updated you on U-RHYTHM, a device measuring hormones levels, including cortisol.

🎬 Watch to see #URHYTHM in action with @staffordlightma, then visit our website to read “Behind the Research” with @HotmasUpton.

➡️ https://t.co/H3NdmBRbPL @ultradian2020

[Philippa Sharman @PhilippaSh_]

The work of @AddisonsUK is so important & this year the charity turns 40! My body had a rush on adrenal crises last year. Seeing the work your day job has in saving your own life is always an odd one.

So please support, starting with #AddisonsDiseaseDay ➡️https://t.co/67b3h6anQ4

[Philippa Sharman @PhilippaSh_]

Auntie time ✔️💕

Major Twitter/X v.s. reality as illness came for us 🤦🏻‍♀️ But so precious to see my nephew turn 4 🎂 and short but sweet time on the gorgeous Northumberland coast 🏖️ Shoutout to Chumbe for being the main attraction 🐶🧡

[Philippa Sharman @PhilippaSh_]

My amazing Aunt ♥️

So incredibly lucky to have such supportive loving family and friends. Thank you to everyone who donated and cheered her on!

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Thank You Alison! Alison has completed her 2-month hike along the South West Coast Path to fundraise in aid of the ADSHG 🥾

She is supporting the ADSHG as her niece, our very own Pippa, has Addison's 💜 #TeamAddisons

✨ To donate, please visit 🔗 https://t.co/SjoEpj0IFb

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

We start our 2023 AGM #AddisonsQA with a round up of the last 12 months by @PhilippaSh_.

From our free @rcgp module, paramedic work, @wren_project listening project - we have lots to share with our fantastic community. Thank you to all our members for your support of our work.

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Wishing for a cortisol sensor? 🤔

Important work to make this a reality is underway thanks to @ultradian2020 - a project by @HotmasUpton @ederzavala @staffordlightma @SMQB_UoB & @BristolUni. Thank you to all involved!

Read more on @bbchealth @BBCScienceNews⤵️ (1/3)

[Philippa Sharman @PhilippaSh_]

Early morning walks to avoid the heat 💚🐶

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

We're still catching up on all your amazing #AddisonsDiseaseDay tweets & messages! Thank you to everyone who got involved.

We're incredibly proud of our community & how we continue to work our way forward together. It's messages like @IAnsonC 👇that motivate & power our work💜

[National Voices @NVTweeting]

To mark #AddisonsDiseaseDay, @PhilippaSh_, Digital Communications and Engagement Manager for @AddisonsUK, discusses how they support their community in living with a life-threatening rare condition and the role of the expert patient.

👉https://t.co/qcfEzFIh22

[Philippa Sharman @PhilippaSh_]

Thanks for having us @ESEndocrinology #ECE2023!

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

Thank you to everyone at #ECE2023 who joined our Patient's Voice session to learn more about adrenal crisis awareness.

💬If you have any q's for @lisashepherdcl1, @alexTLCsupport or ourselves please get in touch, we'd love to hear from you!

Get in touch: https://t.co/Ve5Dp35eCB

[Philippa Sharman @PhilippaSh_]

My lovely Aunt will be taking on 56 days of walking, come rain or shine, to cover 630 miles (a total ascent equivalent to 4 Everests) for the best part of 2 months, all to fundraise for @AddisonsUK 🤍

She’s an amazing lady so if you can please support 👉https://t.co/PQtzE0WGWk

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

For #FundraiserFriday we are wishing good luck to Alison who is walking all 630 miles of the South West Coast Path in aid of our charity!

Alison is walking in support of @PhilippaSh_ from the ADSHG 🌟‍

💜 To donate, please visit 🔗 https://t.co/SjoEpj0IFb

#TeamAddisons

[Philippa Sharman @PhilippaSh_]

Early Christmas present from the family….festive FFP2 masks 😂😷 Bringing the holiday cheer to hospital appointments!

[Philippa Sharman @PhilippaSh_]

Dog walking, the snow edition ❄️

[Philippa Sharman @PhilippaSh_]

Thank you to @DrGaryHammer for a fascinating conversation speaking with me at @AddisonsUK charity, so we could share with our community the meaning behind his ‘Stress Deconvoluted’ adrenal gland image, learn more about his work & championing of the patient voice.

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

The adrenal gland as you've never seen it before thanks to @DrGaryHammer🔬

Read our interview with Dr Hammer, where we discuss his @TheEndoSociety award-winning image 'Stress Deconvoluted', his work in Endocrinology & the importance of collaboration⤵️
https://t.co/MRshPeS1YC