It's #adrenaldiseasesawarenessmonth
Have a peek at our page on Facebook, as this month we'll be sharing a lot of stories of patients on how they got to their diagnosis!
https://t.co/v5Nw55y6iY
It's a bit lenghty to post on limited twitter, sorry about that!
As well, we'd like to remind everyone to familiarize themselves with the stress dosing recommendations for illness in AI- and make sure you have extra steroids available at home in advance. One excellent guide for stress dosing can be found here: https://t.co/ryc1ni4u4L
Many of you are wondering what to do regarding preparations for the COVID-19 virus. Our friends at the National Adrenal Diseases Foundation have recently issued updated recommendations for all patients with AI to follow the CDC recommendations for higher risk groups.
@SasTrendy You should ask him for more information.
Here's also a good website with a lot of information regarding symptoms, treatment, crisis, and other tidbits. https://t.co/adRk6vD5E4
When diagnosed with AI, one of the most important things is to make sure you are prepared for when you go in to crisis. Best thing of course, is preventing a full blown one if possible.
So let's talk injection kit!
Angi Mcelfresh
Kelly Price
Jadyn Wingier
Julia Stangl
Rohan Talim
Laura Catheryn Early
Sarah M Burns
Deanna Nicole Brown
Brandon Dailey
Shawn McQuade
Fifion Jones
Cassie Daily
Brandon Dailey
Ronda Bowyer
#RareDiseaseDay#Adrenalinsufficiency#AI#TogetherWeAreAIStrong
Adrenal Insufficiency is a rare disease. So rare that the "Specialists" who should know how to care for us often just do not have the knowledge needed. They are not up to date on the newest research and treatments as they may never see an AI patient in their entire career.