Adenomyosis Matters

The current campaign priorities of Adenomyosis Matters are: increasing awareness, supporting evidence based research and challenging poor quality care/treatment

[Maria♫ (M) (⫩) ♫☆☆☆♫ @Maria_MO1111]

@thebodycoach This is awesome any chance of an Endometriosis @EndometriosisUK & Adenomyosis @AdenoMatters plan too?

[Adenomyosis Matters @AdenoMatters]

@Maria_M80 @thebodycoach @EndometriosisUK Women who suffer from #endometriosis and #adenomyosis often feel they can't exercise because of their conditions - in pain, tired, heavy bleeding etc. But of course exercise does improve health! A plan for sufferers would be really great.

[Adenomyosis Matters @AdenoMatters]

@janeoreilly @EndoLadyUK @bbchealth Excellent point - we hope the more women are informed about these conditions, the more they can stand up to GPs who would rather just change their contraception prescription. Our first action on this is to get a page for #adenomyosis on the NHS website: https://t.co/0XRtIrXHZl

[Adenomyosis Matters @AdenoMatters]

Finding it difficult to talk to others about #adenomyosis? Share this short film on @bbchealth about the condition, and get others talking about it. Then sign our petition to get the condition on the @NHSChoices website! https://t.co/JF6ZKPyDW4

[Adenomyosis Matters @AdenoMatters]

Here's the @UKChange petition to share with others: https://t.co/0XRtIrXHZl

[Adenomyosis Matters @AdenoMatters]

@HMBMatters @UKChange Thanks so much for the support, @HMBMatters! Read your blog. Often feels like info for women is just a second thought, unless it's about fertility. I emailed digital team as they requested but am waiting for that reply...perhaps it's time for a chase!

[Adenomyosis Matters @AdenoMatters]

It's #AdenomyosisAwarenessMonth. If you or someone you know has #adenomyosis, you can help us raise awareness to get more information about adeno on the NHS Choices site. Sign our @UKChange petition and share it with others today! https://t.co/0XRtIrXHZl

[Adenomyosis Matters @AdenoMatters]

@NicolaatDH @LucyBentonUK @JulietBauer @IndraJoshi10 @BishopPolly @hazelmjones @kristenallin @leasummers @NikkiPatel_ @ngill10 Will do!

[Adenomyosis Matters @AdenoMatters]

@JulietBauer @IndraJoshi10 @BishopPolly @hazelmjones @kristenallin @leasummers @NicolaatDH @NikkiPatel_ @ngill10 Great news that your #empowertheperson team is full of capable women. Can we empower women through better info on issues that affect #womenhealth, like #adenomyosis? NHS Choices lacks a page on a common condition and women want to change this. Let's talk! https://t.co/0XRtIrXHZl

[Adenomyosis Matters @AdenoMatters]

@Civilla1 @adenomyosis @infertility @Fibroids @hysterectomy @Endometriosis Missed this! Do you have a link to the recording?

[Adenomyosis Matters @AdenoMatters]

@viciouscyclepmd @FTWW_Wales @NHSChoices @cystersbham @WellbeingofWmen @SamTalksSex @EndoLadyUK @WWEndoMarch @endo_ireland Hi @viciouscyclepmd only just saw this, so don't know if you got the direct link to petition. Here it is! https://t.co/0XRtIrXHZl

[Adenomyosis Matters @AdenoMatters]

Hi @JulietBauer! We emailed you re: our petition on #adenomyosis. We agree that users should be at the heart of #NHS digital services. To us this means giving women robust info on conditions and #womenshealth. Can you let us know you got our email and pass on our message? Thx!

[Adenomyosis Matters @AdenoMatters]

Thank you for the retweet! We linked to the last update, but here is the original link to the petition for anyone interested in signing! https://t.co/0XRtIrXHZl

[Adenomyosis Matters @AdenoMatters]

Very true @horne_research! Don't forget another common and overlooked cause of #pelvicpain in women is #adenomyosis. Very little info out there for those suffering. We want to change that! Please RT our petition: https://t.co/STLEjYnbBU #AdenomyosisAwarenessMonth #chronicpain https://t.co/UFboHx2fPx

[Adenomyosis Matters @AdenoMatters]

#adenomatters #IWD2018 #womenshealth

Women's health issues are ridiculed and downplayed. Structural misogyny in all aspects of life affect identification, treatment and support for conditions like #adenomyosis

Thank you, @MhairiBlack https://t.co/owWGePrW3L

[Mhairi Black 🏳️‍🌈 @MhairiBlack]

Please be aware there is strong language throughout this video. My speech today in Misogyny as a Hate Crime debate.

[NHS Employers @NHSEmployers]

Happy #IWD2018
77% of the NHS workforce are women. We want to empower them to become Health and Care leaders. #PressForProgress

[Adenomyosis Matters @AdenoMatters]

It's #EndometriosisAwareness month. We stand with all our #endosisters and #endowarriors! Another common, misunderstood illness similar to #endometriosis is #adenomyosis. Let's stand together and get more information out there for women and their health: https://t.co/0XRtIrXHZl

[(she/her) @gnomeinacage]

.@SachaLParkinson saw your brill interview on @ITVLorraine re #endometriosis! Another very common/similar condition for women is #adenomyosis, but so few know about it. We're trying to change that! Can you please sign and share our petition? @AdenoMatters https://t.co/D1PMUa1401

[Adenomyosis Matters @AdenoMatters]

Very important that #WomensHealth is taken serious, whether that's #PeriodProblems or chronic conditions like #endometriosis or #adenomyosis. Here's our petition to get more information to women: https://t.co/0XRtIrXHZl https://t.co/usTgML1rBp

[(she/her) @gnomeinacage]

.@yomiadegoke read your brilliant period shaming article in @thepooluk! Misogyny's very alive in women's health. Got a petition going to get more info on common but unknown condition, #adenomyosis. Women are left in the dark on it. Please sign and share! https://t.co/D1PMUa1401

[Adenomyosis Matters @AdenoMatters]

Women have come a long way but we still struggle for equality, for instance in medical care. This #Suffragette100 let's do something about it! Please sign our petition to get more info on common #womenshealth conditions like #adenomyosis https://t.co/0XRtIrXHZl