Cluster Headache survivor since 1985 , proud patient advocate and Vice President of Clusterbusters . 57 years old and mother to a wonderful son and daughter .
@TUIUK I have now returned home after securing other accommodation independently . I made a complaint to TUI and had an insulting response .
Would be grateful for someone to take this seriously .
@TUIUK
A selection of pics of the room we were given . Julian Forest Suites , Icmeler, Turkey . 20th June .
No need to ask why we checked out immediately
I have many more pics.
Perhaps your customer service team would like to contact me again ?
I await your response .
Join @Cluster_buster for a book club feat. Psychedelic Outlaws by @joannakempner. The themes are relevant beyond the cluster headache community, so people w/migraine, other headache disorders, & other chronic illnesses are encouraged to join! Sign up π
#MigraineChat#NEISvoid
We're counting the days until Clusterbusters 2nd U.K./European Conference! Connect with the cluster community in the vibrant city of Glasgow for a weekend with speakers including neurologists, patients, and caregivers.
Register today! https://t.co/jdPtMvc3kE
Join Clusterbusters board and staff on March 24 at 12pm ET for an informal chat in honor of #ClusterHeadacheAwarenessDay. (Yes, this is the Sunday after CH Day!)
Register for this free event: https://t.co/LDP6QG5iIW
Today is Cluster Headache Awareness Day .
A debilitating, incurable deep brain neurological disorder that Iβve survived since 1985.
@Cluster_buster#clusterheadacheawarenessday
Letβs continue to educate and advocate .
Together we are stronger ! β€οΈ
https://t.co/XuqLaR4Zpn
Save the Date! Clusterbusters is thrilled to announce our 2nd U.K./European Conference will take place May 31st - June 2nd, 2024. Mark your calendars, and look for more information coming soon! Contact [email protected] if you have questions.
A debate on βPsilocybin Access Rightsβ is expected to be heard in the House of Commons later this month.
@CrispinBlunt MP, Chair of @CDPRGUK, explains that rescheduling psilocybin would enable better access for both researchers and patients: https://t.co/CT09gG112c
The govt has confirmed a Back Bench Business Debate on #Psilocybin Access Rights will be held on Thu 18 May.
This is an opportunity for @CPhilpOfficial to ask the ACMD to review the evidence of psilocybin's harms & utility with a view to rescheduling #PAR
https://t.co/v4AmctSnaV
If you are looking to connect with others who understand your experience with cluster headache, check out our groups and one-on-one support. https://t.co/4QMs842yo6
Clusterbusters 1st Annual U.K./European Conference will take place in Glasgow, Scotland from 5th - 7th May 2023. It's a great opportunity to come together to support, educate and advocate with others in the cluster community. Register today! https://t.co/u9uXwIgs1G
In celebration of #ClusterHeadacheAwarenessDay, join our board and staff on MARCH 19 at 12pm ET for an informal chat. (Yes, this is the Sunday before CH Day!) Register: https://t.co/uvu2iPxKLX
After registering, you'll receive an email with info about joining the meeting.