Terry Field

Follow evidence-based biological #MECFS research. Bedbound #pwME, 1 of #MillionsMissing 35 yrs. Love & miss nature, living a social, active life, photography.

[Terry Field @AlongsideME]

@DafoeWhitney Do hope the consequences of attending appointment/treatment hasn't set you back too severely, Whitney. Knowing this is likely too much to wish for. 💙🫂

[Terry Field @AlongsideME]

@SandyHorne61 ❤️ Beautiful photo. When seeing rainbows I always think of a very dear friend who was a wildlife warrior and passed 7 yrs ago.

[Terry Field @AlongsideME]

@Gmwetz Sending very best birthday wishes your way from Australia. 🫂

[Terry Field @AlongsideME]

@CaroleBruce17 I wonder whether those in positions making these decisions will ever learn the wickedness of this in coming years?

[Terry Field @AlongsideME]

100% 👇

So much to do, places to go, people to see, projects in mind. The mind is exceptionally willing, the body ... aghh. 😬

[Whitney Dafoe @DafoeWhitney]

I just woke up and had an idea for a project I desperately want to work on.  And I felt this rush of excitement, not even working on it but being able to be mentally engaged with it for a moment.  It’s absurd how excited we are to live our lives and yet branded "malingerers" 😡

[Terry Field @AlongsideME]

@DafoeWhitney I hear you, Whitney. 🫂
Ophthalmologist treating me for glaucoma expects FOV tests in city, 150km round trip, not local. 01/25 asked, "If I told you you're going blind, what would you do?". Being bedridden, ambulance transport would be necessary. Such dilemmas. 💙

[Daniel Missailidis, PhD @DanMissailidis]

We're just about done with healthy volunteers but we still need a handful of people with pre-covid ME/CFS, and quite a few more people with Long COVID

This is for 1-200 people sized cohorts across multiple biological studies

Screening and contact form below👇(info not retained)

[Terry Field @AlongsideME]

@DanMissailidis Such a pity bloods can't be sent interstate. Sorry I can't help with your research.

[Whitney Dafoe @DafoeWhitney]

Even when ME/CFS starts taking from your mind, you think there’s some limit - something that’s yours, that is sacred and defines you in some way, or is just you in some core way that nothing, including ME/CFS can touch.  But there isn’t.  ME/CFS keeps going and will keep taking…

Read, Watch or Listen to this post on my blog:
https://t.co/AP9bCKDrIp
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#mecfs #pwME #LongCovid #brainfog #ChronicIllness

[Terry Field @AlongsideME]

@DafoeWhitney It's so lovely to be hearing your voice, Whitney, while also understanding the level of energy this consumes. Yes, those housebound days most definitely seem a way better place now. 🫂💙

[Terry Field @AlongsideME]

1st outing yesterday in 15 months. Medical tests waiting till sufficient energy. Carer husband takes me, wheelchair user.
Visible to the outside world after 65 wks, longest period in 35 yrs between outings.
Saw/heard/smelled the ocean, bliss!
Now cactus.

#MECFS #millionsmissing

[Terry Field @AlongsideME]

@hopefullizzy Wonderful to see this, Lizzy. Nature is like food for the soul. So unfair rarely getting to immerse oneself in the outdoors and the following effects. 💜🫂

[Terry Field @AlongsideME]

@hopefullizzy Oh Lizzy, pretty rubbish numbers. 🫂

[davidtuller @davidtuller1]

For ten years, I've been pushing back against problematic research suggesting that ME, ME/CFS, Long COVID and related illnesses are psyhosomatic, "functional," etc. I'm continuing the project through December. If you'd like to help out: https://t.co/Ad1zvdxXd4

[Terry Field @AlongsideME]

#MECFS & #LongCovid community. 🙏
David highlights poor, inaccurate science & harmful, unsubstantiated treatments.
Thx for yrs of dedicated advocacy @davidtuller1 & being a voice for many.

Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc https://t.co/DRJkwRbmAT

[Terry Field @AlongsideME]

@SandyHorne61 Nice photo of yours on ABC weather tonight, Sandy.

[Terry Field @AlongsideME]

@hopefullizzy So sorry to hear that, Lizzy. 💜🫂

[Terry Field @AlongsideME]

@Naomi_D_Harvey One of our lawnmowers recharging on the job. A little cloud cover, well, you get what you get....

[Terry Field @AlongsideME]

@SandyHorne61 Saw photos yesterday taken at Marree. Astonishingly green around town and railway station. Have never seen it like that before - not too far from my home region.

[Terry Field @AlongsideME]

@AnneinAyrshire I hear you. Something none of us want for our spouses over many yrs. Our carers are unsung heroes. Their numbers must be great, their contribution immeasurable.

[Terry Field @AlongsideME]

Changed bio +1 yr severe #MyalgicEncephalomyelitis, never gets easier. 35 yrs life-changing, debilitating illness. Fortunately v supportive carer husband.
Adequate bio research $ will bring #pwME improved QOL w appropriate treatments.
Thoughts w all suffering #MECFS #LongCovid ❤️