“It’s a horrible disease, but we’re creating awareness and we’re gonna get a cure one day…”
After courageously going public with his ALS diagnosis, @Senators assistant coach Bob Jones sat down with @SNChrisSimpson to share his story.
Tres personas enfermas de ELA mueren al día mientras la #LeyELA está paralizada en el Congreso. Nos hemos aliado con @pons_sabate para que el Gobierno se ponga las pilas y aplique la ley. Para más información mira la nota de prensa: https://t.co/0E7rtidduA
#DiaMundialELA
Today is Global ALS Awareness Day. ALS is a neurological disease that affects up to 30,000 people in the United States
We are committed to revolutionizing the treatment for people living with neurodegenerative diseases like #ALS. #ALSMNDWithoutBorders@ALSMNDAlliance#MND $CLNN
Investigación ¡¡¡YA!!! Cada día, tres personas son diagnosticadas y otras tantas mueren en España a causa de esta dramática enfermedad ¿Cuántas más tienen que dejarnos?
It’s #GlobalMNDAwarenessDay just taking a moment to remember all those who fought and lost their battle with #mnd it’s just another day but it’s also a day nearer to the @mndassoc aim of a world free from mnd
This #GlobalMNDAwarenessDay we're proud to share that a £4.25 million grant has been awarded to MND researchers 🔬
My Name'5 Doddie Foundation helped to fund the research grant which aims to make MND treatable within years, not decades.
More info: https://t.co/AAJtDOGF4R
It's #GlobalMNDAwarenessDay - a day to raise awareness of motor neurone disease around the world.
• 6 people will be diagnosed today
• 6 people will die today
• It has NO cure
Please retweet our graphic highlighting the key facts. More people need to know 💙 thank you! #MND
El 21 de junio se celebra el día internacional de la #esclerosislateralamiotrófica o #ELA, una enfermedad del sistema nervioso central, caracterizada x degeneración progresiva de neuronas motoras causando una debilidad muscular y parálisis en el organismo
https://t.co/zJCfrFsFUb
El centro de salud 'San Hilario' de #DosHermanas, @AGSSurSevilla, se suma a la visualización de la #ELA con una mesa informativa, la implicación de profesionales y la colaboración de familiares de pacientes.
#DiaMundialELA
On #GlobalMNDAwarenessDay, we’re sharing portraits of people living with motor neurone disease #MND, by celebrity photographer @CannonPictures.
We’re delighted our Patron @Rob7Burrow wanted to virtually open the exhibition! @leedsrhinos
📸 https://t.co/mYIifs60xZ
This is my 9,000 tweet or reply. That means 2 things:
First, my wife is right about me tweeting a lot.
Second, despite its best efforts, ALS has not killed me yet which makes me truly lucky.
Not today ALS. Not today.
Now, this is a publication of persistence, not giving up..
NurOwn is moving forward to the finish line.
Especially for patients who are considered to be in the later stages for other clinical trials, who do not have any other choice, this is a very very good news I think
For those arguing why promising #ALS therapies (#NurOwn) should not be approved… We (including you) don’t understand the science well enough to definitively say what works & for whom it will work. Dying people deserve a chance to see if these investigational therapies will help!
Started the year w our #DrugsinBodies campaign to get the #ACTforALS passed & to get #NurOwn approved.
Data in @MuscleNerve proves NurOwn is clinically meaningful for ALSFRS-R scores 26+.
@FDACBER give the community a holiday blessing by asking @BrainstormCell to submit a BLA.