My new story on how dogma around post-acute infection syndromes casts a long shadow. Medical misogyny erased #pwME with enduring fallout, as abuse continues despite recent deaths. History threatens to repeat with #LongCovid#MECFS#DontLetMEDie
https://t.co/BVSZ295WtU
“There probably is not a worse condition you can have as a patient in the NHS, because it is this unique situation where the more severely ill you are, the less care you get.” Dr Binita Kane.
Link below.👇
#PwME#MyalgicEncephalomyelitis#WorldPatientSafetyDay#ThereForME
When I heard about Alem Matthees, a brave Australian whose relentless pursuit of truth & justice brought about the improvement of health guidelines for his community of patients in the UK, I felt compelled to write his story…
#MyalgicEncephalomyelitis
https://t.co/Msqy5noRPN
Apologetics for a psychogenic view on #MECFS often dismiss critical voices from patients as a nuisance, as people who should have no say about their own health and accept what “authorities” say—even if the evidence is flawed. They forget the terrible price some voices must pay.
@OLears76@RonniSalt I can understand some young people needing the breakdown of all the BS explained, but I'm appalled at the number of older Australians who blindly believe every bit of rubbish they read from Newscorp and think Morrison's done an ok job at PM🤦♀️
I know more people with #LongCovid from the Omicron wave than any other point.
Some hadn't known about Long Covid before getting sick, & are now confused and furious that they weren't warned this could happen.
Let this sink in—If a school class of 30 kids get #COVID19– as many as 4 kids could have #LongCovid—1 in 7 says 🇬🇧 data. Kids should not need to beg us adults to listen!
HT @Ruth5News, who's had long Covid for over 18 months, reports on 2 kids affected.
Highlights of Dr Asad Khan talking about #LongCovid on AlJazeera.
"It is not psychological, just in the same way ME and Fibromyalgia and POTS are not psychological. What we do know is that exercise and talking therapies are not going to fix this."
I’d like to see Morrison turn up at the ABC studios ready for his interview with Leigh Sales and find Laura Tingle sitting opposite him - saying ‘Sorry Prime Minister. Leigh is off sick and I’m filling in’..
What would he do?
Immediately head off for Hawaii?
My agent has submitted my children’s Christmas storybook draft to several publishers..
BUT
I’m looking for an artist to bring one of the illustrations ALIVE to show them the magic!
Children’s artists/illustrators please get in touch !
Pls RT/DM/comment if interested!
@Nic_Corr Great words! I've finally pinned to the See ME Expo Pinterest board under WORDS for ME https://t.co/DQObM40dRK
Oh and I'm the same person as @FranceyME if you're wondering who I am. I keep forgetting to switch back to Illustrator Interrupted😶🌫️