Please cosponsor #PCHETA S. 693 @SenToddYoung to improve the quality of life of patients with serious illness. It will lead to reduced pain and suffering. @PatientQoL, the bill’s 50 supporting orgs, and Indiana residents will thank you!
All That This Hand May Hold: Phenomenological Exploration into the Meaning of Pediatric Legacy Prints in @JPSMjournal
https://t.co/aWmiyNDftQ
#pedpc#pedspc#hpm
This qualitative study examined parental experiences when caring for a child receiving #pedpc.
Prominent experiences were: continuous management of anxiety, feelings of uncertainty, tension with end-of-life decision making & engagement with professionals.
https://t.co/jiQc6bk6Gj
Primary pediatric palliative care improves quality of life care for children & their families.
Integrating the Comfort Theory into #pedpc empowered clinicians in caring for patients, providing support to clinical staff, and in developing best practices.
https://t.co/yuHM9Z2qAg
“The outcome that terrified me the most was not that River would suffer, but that she would never feel the redeeming joy that makes suffering tolerable.” - A Birth Plan for Dying https://t.co/i9qP4ygpb7
WHEN TO REFER TO HOSPICE?! I used to worry I was referring too early. Now that I've been out of residency nearly 2 years, I can confirm I have NEVER made the referral too early. Take away: if you are thinking hospice, probably a good time to offer referral. #geriatrician#HPM
In meetings "physicians spoke an average of 83.9%, non-physicians 9.9%"
Interprofessional Team Member Communication Patterns, Teamwork, & Collaboration in Pre-Family Meeting Huddles in a Peds Cardiac Intensive Care Unit in @JPSMjournal
https://t.co/3zTEpR6xDv
#pedpc
"When he's born, he might live an hour, he might live a few days." The BBC recently featured this moving real-life story of baby Albi, diagnosed prenatally with anencephaly, and his family
https://t.co/yeV2ZfDtEG via @bbcthree