Amy Sweet

[Joanne Holloway @CharmingAngelCo]

Sadly these symptoms are all too common with #Pans #Pandas The child's world becomes so small as does that of the parent/s & can have far reaching consequences for any siblings and extended family. Not rare! Please RT💚#PansPandasHour

[Joanne Holloway @CharmingAngelCo]

Sadly there’s been little recognition of #Pans #Pandas in UK across any services but @PandasPans & the families it supports are fighting hard 2 change this 4 those suffering now & those who may suffer in the future. Change is slowly coming🙏🏻 Media attention needed #PansPandasHour

[Hope @hopestardust20]

Raising awareness of #Pans #Pandas is so important. Sadly with the increase in #StrepA #ScarletFever cases there is likely to be an increase in cases of #Pandas.
A virus/infection can trigger #Pans #Pandas #PansPandasHour @thismorning @DrNighatArif
@CarriAnnTaylor @emmakennytv

[Joanne Holloway @CharmingAngelCo]

No child should have 2 lose childhood 2 #Pans #Pandas No teen should have 2 lose important teenage years. Result of lack of diagnosis/treatment is horrific conditions carried 2 adulthood.Young adults then become lost in an adult MH system, misdiagnosed, mistreated #PansPandasHour

[Hope @hopestardust20]

When your child has #Pans #Pandas your heart 💔 - the debilitating symptoms, the missed opportunities, fading dreams, the lack of awareness amongst many medics, the hurdles you’re faced with to get treatment, if you’re lucky.
Your heart & your child’s heart 💔 #PansPandasHour

[Joanne Holloway @CharmingAngelCo]

Often when you have child with #Pans #Pandas you live life in lockdown. Horrific symptoms make leaving house seem impossible 2 child affected. They miss out on so much & lose childhood, family, friends & education. Sad fact is it really doesn't have 2 be this way! #PansPandasHour

[Joanne Holloway @CharmingAngelCo]

Nothing RARE about #Pans #Pandas Diagnosis/treatment needs to improve significantly to put end to unnecessary, prolonged suffering. Shocking the refusal that still exists to acknowledge these conditions. Delay in diagnosis causes exacerbation & irreparable damage #PansPandasHour

[Joanne Holloway @CharmingAngelCo]

“What looks like a behavioral issue or permissive parenting is actually a very serious medical condition.” #PansPandasHour

[Joanne Holloway @CharmingAngelCo]

I feel so bitter & heartbroken at the thought of my child possibly irreparably damaged by medical ignorance. Even if she makes a full recovery no one can replace a lost childhood and all that encompasses💔Conditions #Pans #Pandas need correct treatment guidelines #PansPandasHour

[Joanne Holloway @CharmingAngelCo]

UK research is still desperately needed and long overdue. The narrative of denial needs to end! The controversial tag needs removing. Not rare just rarely diagnosed #PansPandasHour

[Jo Joyner @dollyjoyner]

Really great to see the fantastic @DrNighatArif raising awareness of @PandasPans on @thismorning - a great section on what to look out for with this awful virulent strain #StrepA

[DrSarahJarvis @DrSarahJarvis]

Hugely debilitating #PANDAS is linked with #StrepA infection - we need more awareness among public and healthcare professionals of the risks and the symptoms to look out for
https://t.co/JiRimYAVv1

[Sarah Hughes @SHughesDr]

National uptick in scarlet fever - will there be a uptick in acute onset neuropsychiatric symptoms in the next months? #PANDAS needs talking about in national news - all parents need to know the possible complications associated with a strep infection @LaurenPelley @PandasPans

[NB @np9000]

I struggle to understand how #Pans #Pandas is still thought controversial by some,how medics can ignore,misdiagnose & gaslight those suffering.There is much evidence around infections triggering neuropsych symptoms,brain inflammation,& immune dysfunction #PansPandasAwareness2022

[Amy Sweet @AmySwee88869856]

Very impressed with @BudleighLitFest this year. @aardman modelling workshop and @SirStinkySocks performance - kids loved every second! Great festival.

[Sarah Hughes @SHughesDr]

Adam Gushansky set up a conference about #PANS #PANDAS /AE for his senior project. This is his Ted Talk where he discussed the genius project & his journey throughout the process
2022 Genius Project TED Talk Pans - Pandas - Autoimmune Encephalitis https://t.co/GGsKSoNUrY (1/3)

[🧸✨️Melanie | N3 London 🌌 |✨️🪐 @madmel0402]

I created this documentary to help all the families who are lost, confused and struggling with PANS/PANDAS. And raise awareness to those parents who have no idea or may have a child unknowingly suffering from it. You are not alone 💓 #PANSPANDASHour
https://t.co/TcoInwDYhl

[laura aylott @aylott_laura]

He’s now back to being the pickle that loves life #panspandashour

[Hope @hopestardust20]

The way cyp with #Pans #Pandas r treated is awful. The delay in diagnosis and appropriate treatment makes treating the symptoms harder. 3 yrs on our daughter is in a better place but we’re not out of the woods. Histamines are causing a flare at present #PansPandasHour