Annette Hines

Motivational #Speaker | Find Your Purpose and Second Wind After Loss & Hardship | Author | #Podcast Host | Lost daughter Elizabeth to Mitochondrial Disease

[Annette Hines @AnnetteHines15]

@marlene4719 What difference would it make if medical records were released? You all would just say they were faked, a fraud and on and on. Nothing would convince you. So no point.

[Annette Hines @AnnetteHines15]

@614clinton Praying 🙏

[Annette Hines @AnnetteHines15]

@JohnHansel14 Happy Birthday Emily!

[Annette Hines @AnnetteHines15]

@ChristaLaser We had a preemie too. She lived 17 years a complicated and yet beautiful life. No words will touch your grief. Our family will hold yours in our hearts and pray for your healing.

[Annette Hines @AnnetteHines15]

@GuyTalksFinance Tell him to stay within his means. He’ll be all the happier for it later when he can afford a million dollars for college for each of his kids .

[Annette Hines @AnnetteHines15]

@2StefanMoore Ten years for me. Those last five days watching her die from mitochondrial disease (the millionth pneumonia really) just echo many of your posts which is why I follow you. It never stops hurting. the dying is ugly. There’s so many things no one ever tells you & none want to know.

[Stefan Moore ★ @2StefanMoore]

This right here is the REAL life of childhood cancer. Not the cute, smiling bald Children ones that you see.

“As a photographer it is important to capture the truth and the reality of a situation, too easy it becomes to capture the joy of life whilst discarding the torture that we see.

This is the hardest photograph I have ever made, it is in fact my own four year old daughter. A few days ago she was given what is most likely only a few weeks to live after a battle against cancer that has been waged for over twelve months. This photograph was made in a moment that we as parents could offer her no comfort, her pushing us away whilst she rode out this searing pain in solitude. This sadly, for us as a family, is not a sight that we see rarely. This is now a familiar sight that we see regularly through each day and night, its frequency now more often. This is the true face of cancer, my baby girls blood vessels protruding from beneath her skin, a solitary tear running down her cheek, her body stiffened and her face contorted in pain.

I could try and use a thousand words to describe this image that we as parents are confronted with on a daily basis but these words would fall short of truly depicting the sight we see. With this photo I do not mean to offend or upset, I do mean however to educate and shock those that see it in it’s context. Perhaps by seeing this photo people not in our position will be made aware of the darkness that is childhood cancer, perhaps these same people may be able to do something about it so that in the future no child has to suffer this pain, so that no parent has to bear witness to their own flesh and blood deteriorating daily.

The only apologies I offer are to those that know Jessica, I understand that this photo is hard to see and even harder to absorb. To those that do not know Jessica I offer no apologies, this is what cancer does to a child in their final weeks and days!!! Before her diagnosis I was one of those ignorant to the darkness of childhood cancer, not truly appreciating the hell that it brings. It would never happen to us! Now I give childhood cancer the respect it deserves, seeing too many children suffering this same fate and watching families torn apart.

If this photograph only serves as a purpose to make people think twice about this evil and put into perspective what it does to a child then it has achieved its purpose. Research needs to be done, cures need to be found, too long now has this been allowed to happen.

Please I beg of you, as a heartbroken father, it is too late for my daughter, but #ChildhoodCancer needs to be cured. No family should have to go through this hell.”

Please support our community, follow us & become a mighty voice for our Children fighting cancer. 🙏🏻

❤️ Jessica ❤️
#Forever4

[Annette Hines @AnnetteHines15]

@2StefanMoore Lost my daughter Elizabeth to another rare disease nearly ten years ago now. The treatments and medications were almost worse than the disease. Thank you for all the advocacy- we are with you!

[Annette Hines @AnnetteHines15]

Join me for a discussion with CEO & Founder Pam Blanton of Partners4Housing in a live webinar 9/27/23 @ 6:00 pm EST.
Hear about shared living solutions for adults with disabilities and why housing is the foundation of a fulfilling life. Register: https://t.co/8qeOuhxepA

[Annette Hines @AnnetteHines15]

Check out this post on Nextdoor: https://t.co/nUa9ePfCPK

[Annette Hines @AnnetteHines15]

@JonjayNeedham1 Thank you for speaking what some of us can’t

[Annette Hines @AnnetteHines15]

@importantclips Pedophiles know no party. They are everywhere.

[Annette Hines @AnnetteHines15]

Are you interested in how we can revolutionize education for learners with disabilities? Join us in our latest podcast episode with Susan Kahn, a revolutionary reading specialist. #inclusiveeducation #phonics #specialneedseducation https://t.co/AV5Tl1mSRV

[Annette Hines @AnnetteHines15]

Honoring my inspiration for my work as an advocate for the disability community. Learn about our journey as a #specialneedsfamily: https://t.co/U890wfCA1s

[Annette Hines @AnnetteHines15]

Honoring Rick Hoyt who persevered beyond his cerebral palsy with his father, Dick Hoyt to complete the Boston Marathon course 32 times as well as over 1,000 other races. Rick passed away on May 22 due to complications in his respiratory system.
https://t.co/aW5lVsyds4

[Annette Hines @AnnetteHines15]

Learn tips for trustees of Special Needs Trusts on how to best work with a disabled beneficiary & avoid problems with Social Security and Medicaid benefits. Register for the last session, 5/24 @ 7pm EST: https://t.co/XL3TgMebSR

[Annette Hines @AnnetteHines15]

New trustee? Or choosing a trustee for your special needs trust? Join me on 3 dates in May for a live webinar series: https://t.co/XL3TgMdE3j

[Annette Hines @AnnetteHines15]

Mother Nature played many April Fools tricks nationwide with crazy weather! What's it like where you are? Listen to our episode on climate change to find ways to prepare yourself in emergencies: https://t.co/foiJZajaqd

[Annette Hines @AnnetteHines15]

@PatientWorthy Doctors egos; doctors fighting with each other; medical ethics boards; “medical child abuse” complaints; lack of choice in care

[Annette Hines @AnnetteHines15]

Parenting Impossible Host Annette Hines welcomes back Author Jess Ronne to discuss her newest book, Lovin’ with Grit and Grace, in which Jess and her husband Ryan share topics that help enjoy a healthy and fruitful marriage that honors their individual needs and desires.