Registration is open for the FREE virtual Urea Cycle Disorders: The Rhythm of Progress Symposium on July 17, 2026!
Join clinicians, researchers, healthcare professionals, and families dedicated to advancing UCD care.
Learn more here: https://t.co/6cp6ZzVdf5
☀️ Longer days, familiar faces. Summer brings change, but support stays steady. CFRI’s online Support Groups meet monthly and welcome participants from around the world. Connection that fits into your life, wherever you are. #cysticfibrosis Register: https://t.co/QHesa33lR3
Learn about Arcturus’ investigational approach to treating cystic fibrosis (CF), a genetic disease caused by mutations in the CFTR gene. See how our mRNA therapy is designed to address the root cause of CF by restoring CFTR protein production.
🎥 https://t.co/kpfMY4jPeQ
Last week, we presented our poster at the Society for Inherited Metabolic Disorders (SIMD) 2026 Annual Meeting.
Missed us in person? Please see below or go to https://t.co/8nIcVHe9Zo
#UCD#mRNA#OTC#OTCDeficiency#SIMD2026#ArcturusPoster#ARCTURUS
While groundbreaking therapies have transformed care for about 90% of people with #CysticFibrosis, about 10% do not benefit from current mutation-targeted treatments.
💜 Share this fact to help accelerate awareness and #CrossOutCFfor everyone.
#CFAwarenessMonth
💐 Support is always in season. During #cysticfibrosisAwarenessMonth, we’re reminded how powerful community can be. CFRI’s monthly online Support Groups provide peer-to-peer connection led by experienced facilitators. Register: https://t.co/QHesa32O1v
Are you attending the Society for Inherited Metabolic Disorders 2026 Annual Meeting?
Stop by our poster, Poster #52, to learn more about our OTC Deficiency program.
#UCD#mRNA#OTC#OTCDeficiency#SIMD2026#ARCTURUS
See less
Caring for someone with a rare condition reshapes how we care for ourselves & each other. We’re sharing a trauma-informed Mental Health Toolkit by @giveanhour to support patients & caregivers navigating stress, connection & resilience.
🔗 https://t.co/ln4ErWryzZ
People with #CysticFibrosis spend hours each day doing airway clearance—often doing breathing treatments to open their airways and using a therapy vest that inflates and shakes to help move mucus in their lungs.
According to @EmilysEntourage Final 10% Survey, 70.4% of adults with #CF spend 1–4 hours every day on treatments. 🤯
That’s up to 25% of waking hours spent tethered to medical treatments—just to breathe!!!
May is CF Awareness Month. Tune in for 31 days of Purple Power every day this month: bold CF facts & content worth sharing.💜 Tag us + use #CFRIPurplePower to share your support. CF is complex. Urgent. Still NO cure. https://t.co/M5Gj6YUwi2. Sponsored by Vertex, Viatris & Sionna
Over the weekend, we attended the @CFUCDF Family Camp, an inspiring chance to connect with families, advocates, and experts in the UCD community.
As UCD Awareness Month ends, the unmet need remains. We’re committed to raising awareness and supporting better care.