Thank you, Laura! We hoped our letter would open up discussions with qual autism researchers about how we ensure trust in our research. We make some suggestions but would love to hear your thoughts, too!
Just back from a brilliant @AutismINSAR. Excellent to see such a fabulous range of papers and posters focusing on Autistic well-being. Thanks to inspiring friends and colleagues like @WennLawson for making it so fun.
Amaze warmly welcomes the South Australian government’s decision to appoint Dr Emma Goodall, as the inaugural director of the Office for Autism.
Emma has a wealth of experience, both professionally and personally, as an Autistic educator and advocate.
https://t.co/TO4SL8ZdkB
📢NEW PAPER: In this Perspective, I challenged several recent claims made re: ECRs changing research directions due to the public scrutiny; often described with an ominous undertone. 1/
Hey you Mob living with #autism or caring for someone who is #autistic!
🖤💛❤️💙💚
A new National Autism Strategy is being co-designed and it needs people with lived experience of autism to ensure it has the best results.
Express your interest here:
https://t.co/joZaKWvZOR
1/2
The @NDIS is partnering with First Peoples Disability Network (@FPDNAus) to co-design a new NDIS First Nations Strategy and action plan that reflects the goals and aspirations of First Nations experiences and voices.
https://t.co/5GyZbUB187
If you don’t know what your research is for is it relevant? If it doesn’t help the people who the research is for is it relevant? We are of equal value & entitled to equal services but can’t get that support if people don’t understand us @autismage @ITAKOM_CONF#ITAKOM#itakom23
@autismage ‘s bucket list more research on the ageing autistic brain including sleep, intersection between burnout and brain fog, alternative therapies/efficacy of antidepressants, effects of mental health on performing daily tasks @ITAKOM_CONF#ITAKOM#itakom23
There’s lots of research that talks about getting us into work but not about getting us out of it (into retirement) we’re often treated as a ‘homogenous lump’ when we get older when we have different needs @autismage @ITAKOM_CONF#ITAKOM#itakom23
@autismage questioning why more #autismresearch differentiate between genders, with or without learning disabilities, different ages, how other conditions impact on cognitive health, social and family circumstances @autismage @ITAKOM_CONF#ITAKOM#itakom23
We need to flip the gate keeping model for support - a lot of what people need is pretty standard it feels pointless putting resources into working out people need the same ordinarily available adjustments over and over @NancyDoylePsych@ITAKOM_CONF#ITAKOM23#itakom
Neurodiversity and disability are Venn diagram with quite a bit overlap. It’s not about which conditions get a pass this week & which ones don’t -have flexibility built into the system regardless of diagnosis or if it’s disclosed @NancyDoylePsych@ITAKOM_CONF#ITAKOM23#itakom
When you get your diagnosis it doesn’t come with a manual of what you’ll find easy and what you’ll find hard. People want to be heard not helped. @NancyDoylePsych@ITAKOM_CONF#ITAKOM23#itakom
We have a business etiquette policy - all the weird things about work that no one tells you but people expect. This needs to be part of onboarding @NancyDoylePsych@ITAKOM_CONF#ITAKOM23#itakom
We will personalise work by giving people access to understand their own spiky profiles and supports and accomodations for areas they’re weaker in @NancyDoylePsych@ITAKOM_CONF#ITAKOM23#itakom