”I haven’t had a symptom-free day in years. This is probably one of the most difficult things for people to wrap their heads around. #ChronicPain is just that—chronic. It doesn't matter if I'm smiling, laughing… I'm in pain.” https://t.co/bZx68RI8bX #chronicillness#spoonie
Chronic pain isn't just about how much it hurts; it's about how bloody exhausting it is.
Physically, I wade through water to do the simplest of tasks. Mentally, I climb mountains to distract my tired mind.
Chronic pain is a fight on two fronts. Every. Single. Day.
It finally happened - I caught #COVID19. Here's my experience with having an #autoimmune disease while battling the virus, and what helped me to recover faster.
https://t.co/IPGe1hdWnc
#TipTuesday: It is important to find a doctor who is both a good partner in treating your disease, as well as a good listener! Never feel guilty about seeking a second opinion, especially given the overlap and uncertainty with Sjögren’s.
#Sjögrens#ThisIsSjögrens
If you didn't get a chance yet - Go to the link in our bio to add your diagnosis time to our (anonymous) tracker.
Help us track HS diagnosis time so we can measure the improvement as awareness grows. Thank you 🙌
#hidradenitissuppurativa#HS#BeAGP#MedTwitter#DermTwitter
"Good days and bad days. Some days I share with my husband how I feel, and other days I quietly cry in the shower because I can’t even carry out simple personal care duties." ~Nin, #ThisIsMS
Sjögren's Foundation mourns passing of founder, Elaine K. Harris.
"All of us with the Sjögren’s Foundation are saddened to lose our beloved founder, our inspiration, and a great advocate for Sjögren’s patients."
Learn more: https://t.co/YKmVc9m1ZH
When actress Maria Alejandra was 21, she was diagnosed with a chronic #autoimmune disease that would forever change her life. Now, she's raising awareness to help others living with the condition.
#lupus#lupusawareness#lupuswarrior#autoimmunewarrior
https://t.co/RKZif46DIN
🥳 Exciting news! We're partnering w/ Olympian Khamica Bingham to raise awareness to autoimmune disease. Khamica, whose mom had Sarcoidosis, will be the keynote speaker at our Summit in October. Stay tuned for details. More ➡️ https://t.co/gJmy7wgseI @micabingha
The Sjögren's Foundation applauds Halsey for opening up about her health journey, including her recent Sjögren's diagnosis.
As many as 4 million American’s are living with Sjögren's, with an estimated 2.5 million undiagnosed. #ThisIsSjögrens
https://t.co/clUVAkk6bS
#TipTuesday: No one knows your body better than you. No one knows your abilities, pain, or what makes you happy better than you. You are the expert on you. Be your own advocate.
Learn more about becoming a member of the Sjögren’s Foundation. https://t.co/4RrAoCPthT