Michelle Watts

wife | mom of 3 | dance mom | patient advocate | #HoFH |#raredisease | #averysfight

[American Heart Association @American_Heart]

Avery was 6 when doctors diagnosed her with homozygous familial hypercholesterolemia (HoFH). Since then, she's had 3 open-heart surgeries & weekly procedures to clean her blood of LDL "bad" cholesterol. Read more on the Support Network blog: https://t.co/IU67v9NCuE @AverysFight

[FH Europe Foundation @fhpatienteurope]

Hello from #Amsterdam. Very low fat diet is key to managing #FCS & #HoFH effectively! Spoiled by chef Dion who made a true effort to source the right ingredients, make it all beautiful & tasty for our international #PatientAmbassadors!

#FHEFAnnualMeeting2023 #RareDiseases

[Michelle Watts @AverysFight]

Blog Article: Fighting for Her Heart #KnowFH #FindFH https://t.co/FkCJl2pP62

[American College of Cardiology @ACCinTouch]

📢 Today is #FHAwarenessDay

Use #CardioSmart tools, like the infographic below 👇, to help your patients understand FH, it's signs & treatment options! https://t.co/6CbZN56E0F #KnowFH

[World Heart Federation @worldheartfed]

Today on #FHAwarenessDay, we shine a spotlight on homozygous familial hypercholesterolemia (#HoFH), a rare and life-threatening form of FH affecting just 1 in 300,000 people.

https://t.co/nVzO1URtu9

[Michelle Watts @AverysFight]

Today is FH Awareness Day. A day to save lives by raising awareness. Ask your doctor for a lipid panel. Know your numbers. Don’t wait to be blindsided by this disease like we were nine years ago.

#KnowFH #FHAwarenessDay #peoplelikeus #FHAware2023 #FindFH #HoFH

[Michelle Watts @AverysFight]

@fjpinto1960 @worldheartfed @LubbDup @amibanerjee1 @dr_pineiro Love this! ❤️

[FH Europe Foundation @fhpatienteurope]

Int. #HoFH community of #Patient Ambassadors, caregivers, scientists, clinicians, advocates, policymakers and industry come together at the #WHF #Rare #CVD Forum.

An opportunity to establish a dialogue, cooperation, exchange and to promote mutual recognition and appreciation.

[Fausto Pinto @fjpinto1960]

Fantastic meeting on Rare cardiovascular diseases involving several patient organizations and testimonies ⁦@worldheartfed⁩ forum in Geneva. Several great ideas have been exchanged that will help to shape future policies on CVD ⁦@WHO⁩ ⁦@magdadaccord⁩ ⁦

[Fausto Pinto @fjpinto1960]

Great day⁦@worldheartfed⁩ having all the committees together and brain storming on the strategic plan 2024-26 to continue our battle to promote cardiovascular health for everyone ⁦@LubbDup⁩ ⁦@DrDPrabhakaran⁩ ⁦@ditchhaporia⁩ ⁦@JoseJuanatey⁩ ⁦

[FH Europe Foundation @fhpatienteurope]

A huge thank you to @worldheartfed and congratulations on a fantastic Forum on Rare #CVDs, involving an int. multidisciplinary community incl #HoFH, PAH, ATTR-CM and Hypertrophic Cardiomyopathy patient orgs, patients and advocates.

Helping shape future policies on #rare #CVD

[FH Europe Foundation @fhpatienteurope]

Prof. Mafalda Bourbon walking as through genetics in rare diseases at the @worldheartfed Rare CVDs Forum.

She highlights the ethical aspects related to genetic screening. #rarediseases #clingen #CVD #HoFH #ethics #variants

[FH Europe Foundation @fhpatienteurope]

An incredible speech by Dr Vinicio de Jesus Perez about pulmonary arterial hypertension. Incredibly reassuring to hear him advocate for more meaningful collaboration with patients and patient advocacy groups for better solutions for people with #PAH.

[FH Europe Foundation @fhpatienteurope]

“Health is a human right” an opening statement from the President of the @worldheartfed Rare CVDs Forum in Geneva.

We are proud to be part of this important discussion as advisors, panelists and advocates.

#CVD #HoFH #rarediseases

[FH Europe Foundation @fhpatienteurope]

What an inspiration! No filters! @Durhane you are an absolute role model when it comes to advocating for people with #rarediseases and “here and now” also specifically for #HoFH, cholesterol, rare #CVD.

We have to do better! #precisionmedicine #innovation #prevention #genomics

[FH Europe Foundation @fhpatienteurope]

A one in a million occasion to meet those #rare beautiful people and international people fiercely advocating and raising awareness about #HoFH. Delighted & proud for you to come to the @worldheartfed Rare Cardiovascular Diseases Forum as #FHEurope Ambassadors! #CVD #cholestrol

[Michelle Watts @AverysFight]

Just posted a photo @ Washington DC - Reagan International https://t.co/e0zHAynMq5

[Michelle Watts @AverysFight]

Honored to be among the speakers at tomorrow’s #RareDiseaseDay webinar hosted by @fhpatienteurope! Hope you will join us! #KnowFH #HoFH #rareDisease #Advocacy

[FH Europe Foundation @fhpatienteurope]

Leaving no-one behind: Creating a better future together for all people living with rare and severe #FH. A multi perspective panel this #RareDiseaseDay. Patient’s, caregiver’s, researcher’s and clinician’s, advocate’s and policy influencer’s voices together.
#FindFH #FindHoFH

[Michelle Watts @AverysFight]

Just posted a photo https://t.co/40swRIMVit