Axenfeld-Rieger Foundation

Our mission is to find effective treatments for the Glaucoma caused by Axenfeld-Rieger Syndrome, which occurs as early as infancy & childhood.

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

@_MelissaYuan_ Love your work! Good luck for match day!

[AlternativeBAME VI Network @network_vi]

We’ve set up a new BAME network for visually impaired people in UK. It’s highly inclusive & since its conception on Sat we have over 20 members. Great start. If interested follow us here 👍 @RNIB_campaigns @guidedogs @VistaLeicester @LondonVisionUK @focusbirmingham @TPTgeneral

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

Are you looking for more information on Axenfeld-Rieger Syndrome? Check out this excellent resource on the Gene Vision portal @UKEyeGenetics
https://t.co/KCYi45W2Nk

[Thomas Pocklington Trust @PocklingtonHub]

1/3 To help to raise awareness of the issues blind and partially sighted people face we have produced a video that simulates, how the world looks through the eyes of people who are visually impaired. Presenting: What do we see? https://t.co/c5UASvsSeo

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

A senior scientific advisor from Genentech, one of the world's most dynamic biotechnology companies, has joined the Axenfeld-Rieger Foundation's Scientific Advisory board
https://t.co/kmZNTyPNmt

#Hope #Rare #glaucoma

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

Dr Alex Levin, a leading pediatric ophthamologist with extensive experience in ocular genetics and bioethics, has joined the Axenfeld-Rieger Foundation's Scientific Advisory Board #glaucoma #rare #hope
https://t.co/H9X6iYABWL

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

@rlehmanED Exciting, isn't it?! Their are some fantastic scientific advancements being made. We're working on figuring out more effective treatments for the glaucoma caused by Axenfeld-Rieger Syndrome. #HOPE

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

The Same But Different calendar photo shortlist is out and an inspiring entry by Clare Benson representing Axenfeld-Rieger Syndrome has made the shortlist. Please support Clare and give her your vote!

[SamebutDifferent @SBDRareProject]

Only 3 days left to register your vote for your favourite #Glimmerofhope photo. Over the next couple of days, we'll post all the beautiful images to help you decide.

To vote, head over to: https://t.co/NlGySaUa4j

Here is 'The Future is Green' by Clare Benson @Axenfeld_Rieger

[Childrens Eye Foundation @childrenseyefou]

Sharpen your child’s vision skills with these toys and activities:

puzzles, building blocks, peg boards and similar toys for hand-eye coordination
making jewelry/stringing beads
painting and drawing
playing catch with a soft, child-safe ball

#FunFriday #FridayFacts #activity

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

Are there any #PR agencies that could help us out with a couple of contact list for relevant publications? #PublicRelations #goodcause #nonprofit

[American Academy of Ophthalmology @aao_ophth]

We need you! These cuts will go into effect in January 2021 if Congress doesn’t stop them. Tell your legislator today to preserve your patients’ access to sight-saving surgical care before it’s too late. #CutsHurtPatients https://t.co/jrAOyYaMAT

[Prof Mariya Moosajee @MariyaMoosajee]

Its #eyehealthweek, my advice for patients with inherited #retinal diseases is: 1. Wear UV protected sunglasses in bright sunlight 2. Eat lots of fresh fruit & veg, rich in #antioxidants 3. Use blue-light screen protectors on electronic devices likes phones, tablets, computers!

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

@rlehmanED @BrailleBennett @nischalkk We are just getting set up to look into more ARS specific research. Happy to chat. Feel free to send a PM.

[Mass Eye and Ear @MassEyeAndEar]

Drs. Michael Cohen and Amy Watts @MassEyeAndEar break down how to best support students with hearing loss and low vision in this new age of #DistanceLearning. Read more here on our blog, Focus: https://t.co/8Rv0fTfKh3

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

@EliseVMike Congratulations!

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

We are excited to welcome Dr Markus Kuehn to the Axenfeld-Rieger Foundation's Scientific Advisory Board!

https://t.co/9n1UJ6T26i

#gaucoma #RareDiseases #findacure

[RareConnect @RareConnect]

"When parents reach out to other parents, they are not simply looking for emotional support or advice. They are rebuilding a social life, one that will revolve around their child’s disease." #rarediseases #BreakTheIsolation https://t.co/8D4mEucQ7i

[Childrens Eye Foundation @childrenseyefou]

Let us know If you have any questions about your child’s vision development, vision health, or any other questions about eyes! We’ll have your questions answered by AAPOS doctors!

#TipTuesday

[Jen Heemstra @jenheemstra]

Getting through difficult situations is not about having a blind optimism that everything is going to be okay.

It’s about having a realistic determination that the road ahead will be hard, but you can make it through, and you will grow stronger from it.

[Axenfeld-Rieger Foundation @Axenfeld_Rieger]

@nickywhiffin @wellcometrust @HumanGeneticsOx @UniofOxford Wishing you all the best as you set up your lab!