B12Alliance

part of cluB-12, the B12-Alliance is the community of patient advocacy groups in where B12 deficiency is a symptom or consequence of a condition or risk factor

[B12Alliance @B12Alliance]

https://t.co/eHLOlZwAwv

[B12Alliance @B12Alliance]

https://t.co/6NwWzjTWAH

[B12Alliance @B12Alliance]

So many valuable points in this session from the speakers and audience alike. Heartened to hear the viewpoint of the 2nd year medical student and a young clinician about the importance of patient engagement

[Priya Sriskandarajah @PriyaSriRajah]

Our excellent MPN ANP @WoodleyClaire as well as the fab @KirstyCrozier discussing patient empowerment and improving quality of life #HPCC24

[Priya Sriskandarajah @PriyaSriRajah]

Our excellent MPN ANP @WoodleyClaire as well as the fab @KirstyCrozier discussing patient empowerment and improving quality of life #HPCC24

[Kirsty Crozier💙 @KirstyCrozier]

Wow! In a nutshell Value based care, looking at what is important to the patient & providers to get the best outcomes for patients 👏🏻👏🏻#HPCC24

[B12Alliance @B12Alliance]

#hpcc excellent points from @KirstyCrozier about the importance of patient empowerment, ensuring that you as the patient have responsibility for ensuring you are listened to and the value in patient advocacy charities who can support you

[B12Alliance @B12Alliance]

#hpcc24 attending this Congress at QE2 conference centre. Excellent panel discussion Looking to the Future of Value Based Patient Centred Care. What does "Good" look like? For the patient, it simply means health and quality of life

[B12Alliance @B12Alliance]

#hpcc Vincent Sai CEO Modality Partnership "healthcare is a team sport, don't forget to include the patient on the team"

[B12Alliance @B12Alliance]

@ZG_Nutrition @NICEComms https://t.co/IJPHpSj4sa b12 experts and patient experience

[B12Alliance @B12Alliance]

@PrescriberUK https://t.co/IJPHpSj4sa what's right and wrong with the guideline from b12 experts

[B12Alliance @B12Alliance]

@progressnp https://t.co/IJPHpSj4sa what's right and wrong with the guideline from b12 experts

[B12Alliance @B12Alliance]

@mimsonline @NICEComms https://t.co/IJPHpSj4sa what's right and wrong with the NICE Guideline from B12 experts

[B12Alliance @B12Alliance]

@zerotofinals Nice graphics and summary but the test for IF antibodies is only accurate in around 40%-60% of cases so a negative IF test doesn't rule out PA. Treat symptoms not serum levels.

[B12Alliance @B12Alliance]

@wtaf76 @LeilaGriffiths @iam_emilyanne Pernicious anaemia is the name for an autoimmune condition which inhibits the body's ability to absorb b12. If left untreated, Pernicious anaemia can lead to b12 deficiency and ultimately megaloblastic anaemia and permanent neurological damage.

[B12Alliance @B12Alliance]

@ejustin46 Would be interesting to know what more accurate statistics would be on pernicious anaemia if there were more adequate tests available it was better diagnosed

[Emmanuel @ejustin46]

"Risk of AUTOIMMUNE diseases following COVID-19"

"Patients with COVID-19 presented an increased risk of developing pernicious anaemia, spondyloarthritis, rheumatoid arthritis, psoriasis, pemphigoid, Graves' disease, thrombocytopenia, vasculitis ..."
https://t.co/ls5Y5F1k2t

[B12Alliance @B12Alliance]

https://t.co/mArypxpmc9

Help support funding for vital research into pernicious anaemia and b12 deficiency by donating to Leanne's Brighton Marathon run today. The Pernicious Anaemia Society is a member of the B12-Alliance. Let's help Leanne over the line today!

[B12Alliance @B12Alliance]

@AuntyKazza @Doug_Paulley @natalyadell 😂

[B12Alliance @B12Alliance]

https://t.co/ENSF2Lvb7T