For everyone in our natural history studies please submit your crid so we can cross reference data in our studies!!! prevent survey burnout :-)
and simon's has amazing other languages too that we can use!!!!
@YBRP4hnrnph2@hnrnph2_japan@HNRNP_Family@hnrnp_connect
๐งฌ Already have a CRID? Add it to your Simons Searchlight account under Account Settings: https://t.co/Z8Mq9fIXOV
Donโt have one yet? Create your CRID at https://t.co/NacwLmPP3h, then add it to your account.
#RareDiseaseResearch#CRID#SimonsSearchlight
๐ Join Simons Searchlight on Sept. 24 at 12 PM ET for a free caregiver webinar featuring guest speaker Carole Bakhos, founder of 2villages.
Learn about some free caregiver resources, practical tools, and community support through 2villages.
๐ Register: https://t.co/xMjx8HYmcK
๐งฌ Today is #GeneticTestingActionDay! We're proud to join the #StartGenetic campaign to raise awareness about early genetic testing. Learn more: https://t.co/eflnKpzHS0
๐ Download our free Family Guide: Understanding Genetic and Clinical Diagnoses: https://t.co/5TY5Rk6ytd