Hnrnp_connect @hnrnp_connect - Twitter Profile

almost 3 years ago

Connect with our #SimonsSearchlight community supporting genetic research and families impacted by genetic disorders. Join us for updates, resources, and a supportive network. Together, let's make a difference!

s_searchlight's tweet photo. Connect with our #SimonsSearchlight community supporting genetic research and families impacted by genetic disorders. Join us for updates, resources, and a supportive network. Together, let's make a difference! https://t.co/Iuh9R76mPj

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hnrnp_connect retweeted

Bain Brain Lab @BainBrainLab

over 3 years ago · Washington Heights

It's happening!!!! @HNRNP_Family @YBRP4hnrnph2 @OvidRx @WeinbergCP @KidsAtColumbia @nyphospital

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HNRNP Family Foundation @HNRNP_Family

over 3 years ago

Day 2! Lots of assessments today! And new swag!

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HNRNP Family Foundation @HNRNP_Family

over 3 years ago

Day 1! We did it! So excited for symposium day 2 tomorrow! Lots more families providing invaluable information! #HNRNP

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Who to follow

Bain Brain Lab

@BainBrainLab

🔬 Neurogenetics at Columbia | HNRNPH2 & brain development research | Dr. Bain | https://t.co/gC8EAdEbTX

The Scn2a Foundation

@scn2agene

Our mission is to drive & accelerate targeted therapies for SCN2A. Please consider donating to our cause: https://t.co/eWEK31PWSa

YellowBrickRoadProject

@YBRP4hnrnph2

YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.

hnrnp_connect retweeted

Effie Parks

@OnceUponAGene

over 3 years ago

Head to my website and download the glorious 140 page "Ultimate Rare Disease Resource Guide" Thank you to my friend and fellow rare mama, Sierra Phillips, for compiling this labor of love!! Please share this document - it will be continuously updated. https://t.co/hCGYfiLTNw

OnceUponAGene's tweet photo. Head to my website and download the glorious 140 page "Ultimate Rare Disease Resource Guide"
Thank you to my friend and fellow rare mama, Sierra Phillips, for compiling this labor of love!!
Please share this document - it will be continuously updated.
https://t.co/hCGYfiLTNw https://t.co/aQP7jnpd4T

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hnrnp_connect retweeted

HNRNP Family Foundation @HNRNP_Family

over 3 years ago

A GREAT resource for our #RareDisease families!!

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Hnrnp_connect @hnrnp_connect

over 3 years ago

You’ve received a HNRNP diagnosis, what’s next?

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HNRNP Family Foundation @HNRNP_Family

over 3 years ago

April is Autism Acceptance month! Half of those with HNRNP-RNDDs have an autism diagnosis. We are committed to our neurodiverse community! #AutismAcceptance #RareDisease #HNRNP

HNRNP_Family's tweet photo. April is Autism Acceptance month! Half of those with HNRNP-RNDDs have an autism diagnosis. We are committed to our neurodiverse community! #AutismAcceptance #RareDisease #HNRNP https://t.co/PeNUmRXkwS

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Hnrnp_connect

@hnrnp_connect

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