Christina B

[#MEAction Network @MEActNet]

#LIghtForKara

We light a candle in honor and remembrance of Kara Jane Spencer.

Our community has lost a beautiful light. Kara left us with the beautiful gift of her music. The proceeds will go to research for ME.

https://t.co/pvEJgGDzBG

#pwME #myalgicEncephalomyelitis

[Sabrina Poirier (On Hiatus) 🇨🇦 @Sabrina_Poirier]

My 12 year old and I were just chatting, and I told him how it takes about 17 years for research to translate into improved clinical care.

His shocked reply: “What?! That’s ridiculous! Don’t they realize people are SICK and waiting on them for answers?!” 🤯

[Lisa_Cat @AertbyLisa]

#meawarenesshour this is important. People are beginning to see the horrible way ME sufferers have been treated. It has to stop.

[D Christine @D_NewtonSmith]

Never heard of #MyalgicEncephalomyelitis aka M.E.? Please read this thread and help the millions affected around the world who are affected by this cruel disease. #MEawarenesshour

[Lisa_Cat @AertbyLisa]

arodwell
This is the world of the #ME sufferer - 99% of Doctors glaze over as soon as you try to explain the catastrophic impact this illness is having - once you get to how afraid you are they become hostile. A few years later you recognise being truly alone. #meawarenesshour

[Loretta Slothlife @LorettaNoire]

We got a #virus. We didn´t die. But we never recovered.
#meawarenesshour #mecfs #postviral #LongHaulers

[A Life Suspended by ME @b5field]

Don't be Fooled - ME Can Strike Anyone - Anytime!
Support the ME Community.

#MyalgicEncephalomyelitis #MillionsMissing #NeglectedIllness

[A Life Suspended by ME @b5field]

Thread - #1

@CdnHumanRights
@OntHumanRights
@CQualtro @PattyHajdu @celliottability

#DutyToAccommodate
#Accommodations #Disabled #DisabledRights #HumanRights #InvisibleDisabilities

#MyalgicEncephalomyelitis
#MEAwarenessHour

[Jennifer Brea🦒 @jenbrea]

This is so important. The reason doctors fail to diagnose us is that we tend to have *multiple* distinct diagnoses that bloom at the same time. They are taught this is unlikely when it’s actually the norm. #MEspine

[Scott Simpson -- Remedies Online Counseling 🏳️‍🌈 @RemediesPodcast]

"Top doctors (infectious diseases, cardiologists and GPs) are openly embarrassed by the lack of knowledge on the topic of post-viral illness..."

#LongCovid #MEcfs

[Christina B @Bakalis23]

The reality of living with #MyalgicEncephalomyelitis

[Carbonara - #ME/CFS #ChronicallyIgnored @BettinafightsME]

#meawarenesshour
Lately i called a friend for birthday-congrats, who just finished 16 chemotherapy apps bc.of cancer. Though she experienced the typ. hardships, she had a nice birthday-party. As person with severe #MECFS i barely managed the 5 min. phonecall! How i envy her!

[Mari @RuudMari]

Last time I;

Left my bedroom - 1 month
Showered - 13 months
Touched grass - 2 years
Saw my kitchen - 2, 5 years
Tested my sofa - 3 years
Visited my mom - 3 years
Listen to music live - 5 years
Was out jogging - 6,5 years

#IHateME
#MEAwarenesshour

[Gabriel @ein_gabriel]

To be honest, I’m not a big fan of social media. Since I became ill with #MECFS I find myself online many hours more then usually. It has become my only possibility to stay somewhat social and tell the world about my life with #MECFS.

#MEawarenesshour

[Scott Simpson -- Remedies Online Counseling 🏳️‍🌈 @RemediesPodcast]

I just heard - can anyone confirm:

CNN's Chris Cuomo just said that he thinks he may have #MEcfs as a result of have COVID-19

[A Life Suspended by ME @b5field]

@CuomoPrimeTime If it's being suggested you have #MyalgicEncephalomyelitis Chris, you are not alone. There are millions of us worldwide with over 580K in the country in which I live — Canada. You may find this Clinician's Guide compiled by experts helpful. All the best! https://t.co/aGf4SjALyo

[A Life Suspended by ME @b5field]

Chris Cuomo's doctors are suggesting a diagnosis of #MyalgicEncephalomyelitis to explain his lingering symptoms post #Covid19.

The writing has been on the wall for months. #ME diagnoses are climbing.

@PattyHajdu @celliottability

#LeaveNoOneBehind

[Cort Johnson @CortJohnson]

Will COVID-19 Leave An Explosion of #ME/CFS Cases in its Wake? https://t.co/FXPo1hzbPt

[Jennifer Brea🦒 @jenbrea]

A reminder never to count anybody “out”

[Aineemac 🙂🙃🌈☮️ @Aineemac82]

@Dan_Wyke There'll be many studies now done on Covid-19 patients & lasting symptoms/new problems developed. When they've already noted fatigue & neuro symptoms - it'd be interesting to see how many similarities there are with the ICC for ME & what money is allocated for treatment/research!

[Christina B @Bakalis23]

And this is too often the sad reality faced. #ME is real.

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

Ppl who've recovered from Covid-19 describe a debilitating fatigue, and are quite rightly believed.

Ppl who have ME (aka Chronic Fatigue Syndrome) experience pathological exhaustion (often for years) and are routinely disbelieved/ridiculed.

Go figure! 🤷‍♂️🤷🏾‍♀️

#wato