Barbieloo

Professional irritant!

[Barbieloo @BarbR666]

What I learned about chronic fatigue syndrome from my research project https://t.co/gY9llpBTSk

[Barbieloo @BarbR666]

@Squashedhedgi @MEAssociation I agree Kerry..... I have attended APPGs for 25 years...... what has it actually achieved....?

[Barbieloo @BarbR666]

@KatyBruce108 @ABrokenBattery @mecfsbiobank DM me for direct contact details here in Suffolk?

[Barbieloo @BarbR666]

Suffolk GLI Blast Council Mismanagement of Libraries Contract https://t.co/axQ0qIZtE4

[Oonagh Cousins @oonagh_cousins]

6/ "They sat at tables in Whitehall, advocating for services, funding, and policy change. Through it all, they remained a lifeline for each other - a community that held one another up in the darkest times."

[Oonagh Cousins @oonagh_cousins]

3/ While much progress is still needed, it’s the patient community’s work that has driven any of the acknowledgment, research, and services we have today. This advocacy has been transformative.

[Barbieloo @BarbR666]

@SteveFifield3 Hi Steve, Barbara here..
Thanks for your interest in our quest in Suffolk!
United we stand..

[Barbieloo @BarbR666]

@lukejcr Good to see Roz Scott 'in the picture' and ready to run with it!
Baroness Scott Ibshould say

[Rupert Herries @RupertHerries]

Sizewell C will not produce 'clean' or sustainable energy because it will produce even more highly toxic nuclear waste and the construction of this monstrosity will devastate our precious beautiful coastline. Be brave and scrap it now before even more money is wasted.

[Barbieloo @BarbR666]

Shame on Cochrane.

[Barbieloo @BarbR666]

Independent Advisory Group Open Letter to Cochrane https://t.co/xbrCPyqtLE

[Barbieloo @BarbR666]

Cochrane. Independant Advisory Group Letter. Cochrane must do it's job, not engage in medico politics, or bend to medico espionage. It must conduct it's business properly. Internal organisational ear whispering appears to be influencing proper process?

[Barbieloo @BarbR666]

@GeorginaDowns43 Great stuff!

[Rupert Herries @RupertHerries]

Lost for words abd so disappointed...

[Barbieloo @BarbR666]

@unreal_arthur @KarenLHargrave @oonagh_cousins @JoPlattLeigh @GoreLloyd @MEFoggyDog @Dan_Wyke @AaronCa11 @LCMEBillboards @RFH1955 @ABrokenBattery @LongCovidAdvoc @LongCovidSOS @long_covid @LCAIreland @LongCovidKids A thorough informative thread which more than highlights needs for Severe ME needs to take the lion's share of available funding.

[Barbieloo @BarbR666]

https://t.co/zUEiJ2x1Fv a Tender -

[Barbieloo @BarbR666]

@KarenLHargrave What! No money attached ££? no improvement, no new service development? DHSC saying they bear no responsibility for commissioning and Transformation of service. That's Simon & mates NHS E who don't want to know & have 'discharged' Specialised service provision

[Barbieloo @BarbR666]

@ipswichstar24 It was here

[Barbieloo @BarbR666]

@ipswichstar24 This isn't where crash occurred! It was next to Humber Doucy Lane junction on Tuddenham Road, a known accident black spot,

[Barbieloo @BarbR666]

@ipswichstar24

[Barbieloo @BarbR666]

@Squashedhedgi I know Kerry. In 2006 the NICE guidance for MS was good.We quoted it in our ME advocacy to drive East Anglian Service development. What we got was a travesty in NICE 2007. We have been trying to climb out of that hole ever since.