Be More Ruby 🎗🦄💗⭐️🌈

Ruby was taken by #rhabdomyosarcoma 2 weeks before her 7th birthday. She was amazing. We fundraise for better treatments and a cure. Over £245k raised so far.

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

This photo was taken 3 years ago today. The day she was diagnosed with the cancer that took her life 28 months later. A happy healthy girl. Except she wasn’t healthy. She had Stage 4 ARMS.
Help us change the story for other children & their families.
https://t.co/KAogVuVMPS

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

Thank you @thecourieruk for continuing to share Ruby’s story.
Research is key to improving outcomes for children with cancer🎗️
#ccam #rhabdomyosarcoma #childhoodcancerresearch

[The Courier @thecourieruk]

Perthshire family raise £245k for childhood cancer research in Ruby’s memory https://t.co/zirwCbctzW

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

Ruby’s mum spoke to Laura Maxwell this morning on Good Morning Scotland.

Talking about Ruby, research and rhabdomyosarcoma.

You can listen via BBC Sounds from 08:42 - 08:47.

New research is key to changing the future for children like Ruby 🩷🦄

https://t.co/9bmKRH2Sdv

[REFoRMS Project @REFoRMS_Rhabdo]

📢 The 1st spin-off project from the baseline review has been published!

The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇

https://t.co/sehUxDN20G

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

This means so much to us. Huge thanks to @InchturePrimary for raising this incredible amount to pay for the installation of a Be More Ruby bench in the school grounds 💗🦄
A lasting legacy for our girl. She would absolutely love it.
#teaminchture #bemoreruby

[Inchture Primary @InchturePrimary]

Thank you so much for a huge team effort in raising a massive £957 towards our .@BeMoreRuby1 bench. The pupils and staff enjoyed the fabulous baking everyone donated #TeamInchture 🌈 🦄

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

@InchturePrimary Fantastic 💗🦄

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

Be More Ruby day at @InchturePrimary!
So grateful to Ruby’s school for continuing to remember and celebrate her life 💗
More photos to come 😍
#teaminchture #bemoreruby

[Inchture Primary @InchturePrimary]

Remember! Raffle tickets will be on sale from 3pm in the playground today. All donations towards our .@BeMoreRuby1 bench 🦄 🌈 #TeamInchture

[Sophie's Legacy @Sophieslegacy10]

International childhood cancer awareness day. Reminding people of the stats and why change is needed. #sophieslegacy #childhoodcancer

[REFoRMS Project @REFoRMS_Rhabdo]

We chatted about the use and design of the online resource. All of this information will be used to improve the accessibility and transparency of research into treatments for children with relapsed/refractory #RMS

And we even finished the day with some amazing cupcakes!!

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

@REFoRMS_Rhabdo It was a great day! Thanks so much for the cupcakes and marking Ruby’s birthday in such a lovely way 🩷

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

Happy birthday Ruby 🩷

You should be 11 today.
We should be celebrating with you.

Instead we are joining kindred spirits and clever minds to work on a resource to help children like you.

We miss you.

We love you 🩷💔

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

@InchturePrimary This is brilliant!! Thank you so much 😍🩷🌟

[REFoRMS Project @REFoRMS_Rhabdo]

📢CAN YOU HELP?
We're developing an online resource about Living-REFoRMS to let families & professionals access info about studies in the review. We’d love you to get involved if you have experience of #rhabdomyosarcoma - fill out the form: https://t.co/MFM1jH6I5Z
or email/DM us

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

Very proud to be involved in this research. Representing our daughter’s wishes to help others like her 🩷🦄

[REFoRMS Project @REFoRMS_Rhabdo]

We have some fantastic news just before Christmas!

The original systematic review as part of the REFoRMS project has just been published in the International Journal of Cancer!

This is a massive achievement for the team. Well done everyone involved! 😃

https://t.co/vZ5ISwaFQJ

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

@BenLegacyOfLove @theJeremyVine 🩷

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

Today on @theJeremyVine
Listen from 1:31:35 to hear Ruby’s mummy talk about anticipatory grief.

The life of a child forever changed by cancer is a life that creates grief, regardless of the outcome. So much more to say…

https://t.co/CufDc5hfsr

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

@Lesley__King @theJeremyVine Thank you Lesley 🩷

[Alice's Arc @AlicesArc]

LAUNCH OF OUR 25TH ARC IN THE UK - NEIVE'S ARC
Welcome Neive's Arc to our ever-growing army of UK Arcs. Neive is currently on palliative care. She has run out of treatment options. This is not good enough. Read her story here. #thearcs #rhabdomyosarcoma
https://t.co/cUesztFhG6

[Pass The Smile For Ben🎗🌻🐋 @PassTheSmileOrg]

Our Art in the Park #childhoodcancer art exhibition is on display in the woods near the Coventry Peace Orchard until 24th Sept. It's a lovely space to display the art and stories

Video credit: Shawry's Videos and Images #GoGold #CCAM #ChildhoodCancerAwarenessMonth #Covhour

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

@PassTheSmileOrg Along with Ben and all of the other children stolen from us 💔
#gogold

[Be More Ruby 🎗🦄💗⭐️🌈 @BeMoreRuby1]

We wish we lived nearer so we could visit this beautiful exhibition.

Thank you @PassTheSmileOrg for organising it and including Ruby’s art once again. It looks lovely. A perfect, peaceful setting for this important #CCAM display.

We wish Ruby was here to create more 💛🎗️

[Pass The Smile For Ben🎗🌻🐋 @PassTheSmileOrg]

Our Art in the Park childhood cancer art exhibition is on display until 24th Sept

The woods near the Coventry Peace Orchard are so peaceful, it's a lovely space to display the art and stories

Video credit: Shawry's Videos and Images

#GoGold #CCAM
#ChildhoodCancerAwarenessMonth