@BeClotAware_Nig

A group of Nigerian Haematologists with interest in prevention and treatment of blood clots

[ISTH @isth]

On #WorldHemophiliaDay, we stand behind the theme "Diagnosis: First Step to Care"  because we know that for so many patients, that first step is still out of reach.

The ISTH is committed to the education, research and global collaboration that closes that gap. #WHD2026 #ISTH

[ISTH @isth]

Looking for smarter ways to streamline your research? Our upcoming webinar breaks down how to effectively use AI in scientific projects, from getting started to building confidence in your approach: https://t.co/bWff52h7cH

[NSHBT_Official @NSHBT_Official]

NSHBT invites you to its Monthly Webinar.

Topics:
🧬 Cytogenetic & Molecular Testing in Nigeria.
🧪 Advancing Transplant Immunology Beyond HLA Typing

Featuring:
👨🏾‍⚕️ Prof. R. A. Bolarinwa (OAUTH)
👨🏽‍⚕️ Dr. A. A. Yusuf (AKTH)

📅 Tuesday, 7 April 2026
⏰ 4:00 PM
💻 Zoom

[ISTH @isth]

On the upcoming World Patient Safety Day, the ISTH and @thrombosisday stand with the @WHO in raising awareness about the importance of accurate diagnosis and timely treatment in preventing complications from blood clots. #WorldPatientSafetyDay #PatientSafety #MedEd #WTDay24

[@BeClotAware_Nig @BeclotawareN]

@isth @MaryCushmanMD Huge Congratulations Mary, Very well deserved!

[NSHBT_Official @NSHBT_Official]

The NSHBT in collaboration with @novonordisk & National Blood Service Agency was proud to convene stakeholders at the Inherited Blood Disorders Leadership Forum, Abuja.

Strengthening care for haemophilia & haemoglobinopathies remains a national priority.

#NSHBT #Haematology

[NSHBT_Official @NSHBT_Official]

@Fmohnigeria Day 1 closes with reflection, renewed commitment, and a shared sense of urgency.

From policy reform to community engagement, from diagnostic gaps to sustainable financing, today's conversations have set the tone for action.

Tomorrow, we build on this momentum. #IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng @Fmohnigeria Thomas Gowa, Regional Manager, World Federation of Haemophilia, acknowledges that humanitarian aid improves outcomes but can create dependency.

He urges Nigeria to develop financing mechanisms and local procurement strategies to build a self-sustaining system.

#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng @Fmohnigeria Denise Brændgård, General Manager, Novo Nordisk Haemophilia & Haemoglobinopathies Foundation, notes key milestones in Nigeria, including improved diagnosis and strengthened treatment centres, but stresses that government-led financing must now take centre stage.

#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng @Fmohnigeria Prof. Okpala Iheanyi, Professor of Haematology, UNTH, emphasises that research must address local realities.

He calls for political will, local manufacturing of blood products, and stronger alignment between research, procurement, and national financing decisions.

#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN She described it as a platform for collaboration, shared learning & collective action to strengthen blood disorder care in Nigeria.

She reaffirmed the Foundation’s commitment to work with local stakeholders to improve treatment centres and increase domestic investment.

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN Panel Discussion – Challenges & Opportunities in Haemophilia Care in Nigeria: Stakeholders’ Roles in Expanding Haemophilia Care.

Experts across policy, clinical practice, advocacy, and lived experience examine systemic gaps and practical solutions to strengthen haemophilia care.

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN Moderating the session, Prof. Saleh Yuguda, Consultant Haematologist and DG, @NBSC_Abj, emphasises the need for coordination and partnership, urging stakeholders to move from discussion to actionable commitments.

#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN Megan Adediran, ED, @haemophilia_ng, reminds the room that haemophilia is more than factor concentrates.

Beyond treatment, families face stigma, job loss, financial hardship and social exclusion. Sustainable care must address the full human burden.
#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng Inspector Onoja Benjamin shares his lived experience of navigating education, work, marriage and public service with haemophilia.

He calls for counselling support, stronger data systems, and follow-through on commitments to improve the quality of life for patients.
#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng Dr Odunvb draws attention to delayed diagnosis, low public awareness, and spiritualisation of bleeding symptoms.

She stresses the urgent need for community education, improved diagnostic tools in tertiary centres, and capacity building for health workers.

#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng Dr Alayo Sopekan, Deputy Director,@Fmohnigeria, notes that haemophilia is now prioritised within Nigeria’s NCD framework, with national guidelines at the draft stage and efforts underway to strengthen newborn screening and state-level engagement.

#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng @Fmohnigeria Prof. Dalha Gwarzo highlights multi-layered system barriers: limited treatment centres, poor diagnostic capacity, zero government budgeting for factor concentrates, and weak infrastructure across states.

Access remains the first and biggest challenge.

#IBDFNG2026

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng @Fmohnigeria Closing the panel, stakeholders agreed that expanding haemophilia care in Nigeria requires more than treatment products.

Stronger advocacy, state-level ownership, increased treatment centres, workforce training & sustained government funding must move from commitment to action.

[NSHBT_Official @NSHBT_Official]

@novonordiskfond @NBSC_Abj @BeclotawareN @haemophilia_ng @Fmohnigeria Now in session: Panel Discussion – Stakeholder Roles in Advancing Haemophilia and Sickle Cell Disease Care Across Nigeria and Africa.

The focus: collaborative strategies, innovation, sustainability, and reducing long-term dependency on donor support.

#IBDFNG2026