President & CEO of the Pulmonary Fibrosis Foundation. Working with the pulmonary fibrosis community to raise awareness & find a cure. RT's & Likes ≠ endorsement
This week, PFF Ambassador and 9/11 first responder Tom Frey was featured in an episode of the @uninvisiblepod , a podcast that shines a light on people in the invisible illness community. Hear his story and more. https://t.co/cNOggqMx8O
PFF Ambassador Tom Frey was working as a NYPD detective when 9/11 happened. Tom will be live on MSNBC @craigmelvin newscast today at 11:25 a.m. ET to share this experience on 9/11 and his journey with PF.
Join Dr. Amy Hajari Case LIVE today at 9:45 AM EST on @KKVIRadio where she will discuss the signs, symptoms and risk factors of pulmonary fibrosis. Listen here: https://t.co/64NK9SEtDZ. #PFAM#BlueUp4PF
We asked Sharon if any good changes in her life have happened since her diagnosis of IPF, and in today's Portrait of PF, she highlights some of the positive experiences she's had. https://t.co/UibzZg7JJd Thank you @AllianceRxWP for sponsoring PFAM.
Don't forget! Our latest webinar will be held next Wednesday at noon, central time. We'll be joined by the experts to discuss the latest in pulmonary fibrosis research. https://t.co/LxhyhWeCE1
Join Julie Halston and Robert Creighton as they bring their special brand of storytelling LIVE during “Stories of Impact" this Saturday! Register now at https://t.co/7OQldrKpcW for your chance to WIN prizes! 🎉🎁
Tim will be participating in the PFF Walk from Seoul, South Korea in memory of his father who passed away from pulmonary fibrosis at age 71. This year, Tim will be carrying a 71lb bag — one pound for each year of his father's life. https://t.co/kyn0lvtACN
Amber is participating in the PFF Walk for her father, her grandfather, and her uncle. By walking, she wants to raise awareness and hope, as well as funds for a cure. Read her story. https://t.co/AaFaqCnJUA
Introducing our brand new website! 🎉🎉🎉 Developed with feedback from the PF community, our new website is more interactive than ever. Visit us today at https://t.co/gV4h1FOHa3! Thank you, Three Lakes Foundation, for funding this important initiative.
You don't need to go through your journey with pulmonary fibrosis alone. Through support groups, you can connect with others who know what it's like to live with pulmonary fibrosis. Learn more and find a group at https://t.co/t8DehPoIUj
This September, take action to raise awareness and join the pulmonary fibrosis community for Pulmonary Fibrosis Awareness Month! It's not to early to start planning. Learn more at https://t.co/9BqPjJmvhw
The 2021 PFF Walk Kickoff is one week away! Join Julie Halston and Amy Wardzala on Saturday, April 24 at 5:00 p.m. EST to connect virtually with the PF community and learn how you can take part in this year's PFF Walk. Visit https://t.co/gQZEU3JRWK to register.
Mark your calendars for the first official 2021 PFF Walk live-stream event on April 24 at 5:00 p.m. EST! 🎉 Hosts Julie Halston and Amy Wardzala are coming to your living room LIVE to chat about this year’s event and how you can take part. Learn more at https://t.co/7b01P8V8AP.
📢 Attention! On Wednesday, 3/24 at noon, the PFF will be hosting its next webinar, “Diversity in Research: Benefits for All.” Join experts from @NIMHD, @genentech@NJHealth and the PFF for this important conversation.
💠 Register: https://t.co/7kwjhhGOJW
The PFF is proud to unveil a brand new Pulmonary Rehabilitation Toolkit in partnership with the American Association of Cardiovascular and Pulmonary Rehabilitation (@AACVPR)! Visit our website to check it out and get started.
💠 https://t.co/R3fGhEs9Df
Teren had a difficult journey with pulmonary fibrosis when she was first diagnosed. Eventually, she decided that she wanted to improve her quality of life by forming a healthy and active lifestyle. Learn how her life changed in today's Portrait of PF. https://t.co/XuOzG6CmZh
After living with COVID-19 for over a year, effective vaccines are our best way back to “normal” life. In our newest PFF Insights blog post by Dr. Amy Hajari Case, read about what to expect with vaccine roll outs.
💠 https://t.co/yDpydDka7A
There's still time to win an exclusive 'Broadway Belts for PFF!' gift box on us! Register to watch the show by Thursday, February 25th for your chance to receive a box filled with event mementos and treats.
🎟 https://t.co/EmnA5OJI4O.
The PFF recommends everyone in the PF community receives a COVID-19 vaccine. In this webinar with Dr. Amy Hajari Case & Dr. Jesse Couk of @PiedmontHealth, learn the basics of the vaccine, how it works, and get answers to frequently asked questions. https://t.co/GdpPYsbdmB