Pauline O'Connor - BrainWriters

Author & Advocate.
Subscribe for updates, as not here often.

Books
#TheRedHatStories
#LivingWithPKU
#LivingWithMildBrainInjury

#RareDisease #BrainInjury #PKU

[Pauline O'Connor - BrainWriters @BrainWriters]

If you don't pay, it is harder to find people & communicate on here.

For #BrainInjury updates, & more please follow or subscribe https://t.co/emeaSIWWxn

Let's keep talking!

#LivingWithBrainInjury #TBI #Concussion #AquiredBrainInjury #AuthorsOfTwitter #ABI #PostConcussion

[Pauline O'Connor @poconnor]

🚨 Mid-year sale

Save 20% on your copy of "Living with Mild Brain Injury"

This 'incredibly vivid' memoir is an essential resource for those navigating life with brain injury

⭐⭐⭐⭐⭐ "A brilliantly written, and emotional narrative"

#TBI #Concussion https://t.co/NSVhgCAz3s

[Pauline O'Connor - BrainWriters @BrainWriters]

A report from the @NSPKU #Conference 2024 on the review of the #EU Guidelines for #PKU This session touched on #PheLevels, #NewTreatments, #NewbornScreening, #Cost of PKU, and much more!

https://t.co/gZhQU0QJ0h

#NSPKUConference #LivingWithPKU #RareDisease #phenylketonuria #PCU

[Pauline O'Connor - BrainWriters @BrainWriters]

Last Chance! The Red Hat Stories Kickstarter ends tomorrow. Fully funded, so it will be published.
Grab your copy, link in bio
#theredhatstories #shortstory #anthology #shortstorywriter #kickstarter #newbook #bookstagram #author #London #londonlife #londoncity #london #londonlove

[Pauline O'Connor - BrainWriters @BrainWriters]

Please support #TheRedHatStories Kickstarter!

This is my first foray into fiction, though I began writing The Red Hat Stories in 2006.

Please help ensure these stories are published. Pledges will start at £1.
#NewBook #ShortStory #Authors #AmWriting

https://t.co/oMyzTIwSIR

[Pauline O'Connor - BrainWriters @BrainWriters]

The March PigPen newsletter includes:
➡️ possible new #PKU treatment
➡️ help with identity after #BrainInjury
➡️ shape your health care in future

🥂Sneak peek of #NewBook The Red Hat Stories!

https://t.co/nvCyenJTA5
#TheRedHatStories
#LivingWithPKU
#LivingWithMildBrainInjury

[Pauline O'Connor - BrainWriters @BrainWriters]

I’m allowed 5g of protein/day with #PKU. Today, I’ll be capturing my meals for #RareDiseaseDay.
#Breakfast is
- 100g coconut yogurt (1g protein)
- banana (minus a bit for #FluffMuppet)
- tea with oat milk (dairy has too much protein for me),
- supplement
#livingwithpku #LeapDay

[Pauline O'Connor - BrainWriters @BrainWriters]

You pick up a paperback in store and read this on the back. please click like if you would buy it for £10

(it is 100-pages)

Is £10 too much?

#fiction #ShortStories #Anthology #AmWriting

[Pauline O'Connor - BrainWriters @BrainWriters]

Authors can speak at local @WomensInstitute meetings for a speaker fee, and often sell books afterwards. How does that work in practice?

It's a powerful platform for raising awareness and connecting with communities.

https://t.co/uYmTeUmMtU

#amwriting #AuthorIncome #Advocacy

[Pauline O'Connor - BrainWriters @BrainWriters]

⭐⭐⭐⭐⭐ Whoop, thank you!

Amazing review for my book has made my day. What an awesome person, getting a book to understand their niece’s life a little more.

**Happy Dance**

#livingwithPKU #pku #pkupeople #pkuinthistogether #reader #authorlife #thankyou #5stars #Review

[Pauline O'Connor - BrainWriters @BrainWriters]

The role of Neuro Navigators in Brain Injury #Rehabilitation.

Learn how they help patients to regain their lives.

I hadn’t heard of Neuro Navigators until a session @ABIL November 2023. These specialists are filling a large gap in #ABI care in London
https://t.co/m6F5Mv0xLy

[Pauline O'Connor - BrainWriters @BrainWriters]

🎉Thanks for joining our #12DaysOfJoy and for our last day, let’s look at empowerment.

What can you do to help others today, this month, or this year?

I hope to continue working in patient advocacy with 'Starting the Conversation"

https://t.co/Pxs8ol8OIr

[Pauline O'Connor - BrainWriters @BrainWriters]

🎉It is the first Thursday of the year -  you are nearly through the first week! 

Day 11 of #12DaysOfJoy is time to immerse yourself in Mindfulness Melodies. Share a calming music that helps you find peace or step back

Mine is 'Alone in Kyoto' by Air

🧘‍♀️ #MindfulnessMelodies

[Pauline O'Connor - BrainWriters @BrainWriters]

The January PigPen newsletter is out. So good that MailChimp sent it twice! 🤦‍♀️

📣 Update on our @ESPKU Workshop, #StartingTheConversation

➡️ #Curated articles on #PKU & #BrainInjury

💡 free #writing course

🚨 A discount on #LivingWithMildBrainInjury

https://t.co/IJqBbkK95U

[Pauline O'Connor - BrainWriters @BrainWriters]

@Roz_Morris Great reminder, thank you.

[Pauline O'Connor - BrainWriters @BrainWriters]

Day 10 of #12DaysOfJoy & some #NewYearResolutions may be wobbling.

Please share a wellness tip, favourite self-care activity, or a healthy recipe. I love a walk between rain showers. Feels like a little win on a grey day!

Let's prioritise well-being!   #WellnessWonderland

[Pauline O'Connor - BrainWriters @BrainWriters]

🎉Many will be back in the office on day 9 of #12DaysOfJoy so let's plant the seeds of success with #ResilientRoots.

Acknowledge the challenges you've faced and celebrate the strength that runs deep within you.

Share a moment where your resilience shone bright! 🌟

[Pauline O'Connor - BrainWriters @BrainWriters]

🎉Hello #2024 and day 8 of the #12DaysOfJoy.

Some might be feeling tender after a late night so lets cheer things up with a #LaughterJubilee!

Share a joke, funny meme, or a lighthearted moment to start the year with some joy

[Pauline O'Connor - BrainWriters @BrainWriters]

🎉 It's the last day of #2023 and the 7th day of our #12DaysOfJoy so raise a glass to your Community!

Tag a community or support group that has been a source of encouragement and camaraderie.

Let's celebrate the strength we find in each other! 🥂 #CommunityCheers

[Pauline O'Connor - BrainWriters @BrainWriters]

🎉Day 6 of #12DaysOfJoy is about #AwesomeAccomplishments! ✨

Whether big or small, every triumph deserves applause.

Today marks 3 years since my debut book was published!

Share an achievement, a goal reached, or a milestone surpassed. Let's revel in our collective success 🏆

[Pauline O'Connor - BrainWriters @BrainWriters]

🎉 Day 5 of our #12DaysOfJoy & let’s embrace #CourageousCreativity!

Share a creative project or expression that has been a source of courage and inspiration.

My mum took an arts degree in retirement & produces amazing works in fabric artistry.

What inspires your creativity? 🎨