Pauline O'Connor

Author & Advocate.
Subscribe for updates, as not here often.

Books
#TheRedHatStories
#LivingWithPKU
#LivingWithMildBrainInjury

#RareDisease #BrainInjury #PKU

[Pauline O'Connor @poconnor]

If you don't pay, it is hard to find people & communicate on here.

For #PKU news, #BrainInjury updates, & more please:

➡️subscribe via link in bio

Let's keep talking!

#LivingWithPKU #RareDisease #PCU
#LivingWithBrainInjury #TBI #concussion #MTBI #authorcommunity #Newsletter

[Pauline O'Connor @poconnor]

🚨 Mid-year sale

Save 20% on your copy of "Living with Mild Brain Injury"

This 'incredibly vivid' memoir is an essential resource for those navigating life with brain injury

⭐⭐⭐⭐⭐ "A brilliantly written, and emotional narrative"

#TBI #Concussion https://t.co/NSVhgCAz3s

[Pauline O'Connor @poconnor]

Celebrating #PKUDay2024 with:

1️⃣ A spotlight on research, and clinical trials in the #UK, which you can support now!

2️⃣ A sale all weekend! 20% off Living With #PKU ebook

🚨 UK & US readers can buy direct via Shopify

link in bio

#LivingWithPKU #raredisease #PCU #LowProtein

[Pauline O'Connor @poconnor]

@NSPKU @macdonj Thank you! That is a lovely compliment

[Pauline O'Connor @poconnor]

Report from the 2024 @nspku #Conference on the review of the #EU Guidelines for #PKU

This session touched on #PheLevels, #NewTreatments, #NewbornScreening, #Cost of PKU, and much more!

https://t.co/83B0qTT453

#LivingWithPKU #RareDisease #phenylketonuria #PCU #NSPKUConference

[NSPKU @NSPKU]

#PKU Community
Pls use online info for protein content for No Chick Kievs - pack-side info is wrong
One kiev is 5.5 #pku exchanges (not 2 or 2 g protein as packaging)
@NoMeatLtd @IcelandFoods pls rectify asap - wrong protein info is dangerous to those on medical low protein diet

[Pauline O'Connor @poconnor]

Anyone with experience of #Sapropterin in the #UK, please fill this in!

#LivingWithPKU #PKU #PKUAdult #lowProtein

[Pauline O'Connor @poconnor]

@mariainesgama @NSPKU Thank you! It was lovely to meet you and am thrilled to find another copy 'in the wild'!

[Pauline O'Connor @poconnor]

One week until the @NSPKU Conference, I look forward to seeing you all there :)

#PKU #LivingWithPKU #LowProtein #LowPhe #NSPKU2024

[Pauline O'Connor @poconnor]

Last Chance! The Red Hat Stories Kickstarter ends tomorrow. Fully funded, so it will be published.
Grab your copy, link in bio
#theredhatstories #shortstory #anthology #shortstorywriter #kickstarter #newbook #bookstagram #author #London #londonlife #londoncity #london #londonlove

[Pauline O'Connor @poconnor]

@emmavardy2 😳

[Pauline O'Connor @poconnor]

@sheehangilroy Morning, is this for Irish PKU folk only, or worldwide?

[Pauline O'Connor @poconnor]

@Lau7Kurtz Thank you!

[Pauline O'Connor @poconnor]

Please support #TheRedHatStories Kickstarter!

This is my first foray into fiction, though I began writing The Red Hat Stories in 2006.

Please help ensure these stories are published. Pledges will start at £1.

#NewBook #ShortStory #Authors #AmWriting

https://t.co/7k44InPlh7

[Pauline O'Connor @poconnor]

PKU-Friendly Chocolate, cherry & sour cream cupcakes incoming…

#PKU #LivingWithPKU #LowProtein #baking

[Pauline O'Connor @poconnor]

An #anthology of #ShortStories set on #London public transport.
@transportforlondon know anyone who might be interested in the London transport system😉
#kickstarter coming soon https://t.co/VIKkwp2BXq

#theredhatstories #theredhat #theredhatsociety #newBook #author #crowdfunding

[Pauline O'Connor @poconnor]

@ClairBear42 Huge congratulations! That is amazing.