C3G Natural History

[GlomCon @GlomCon]

The breakthrough progress in C3GN may serve as the prime example of what our community of nephrologists, nephropathologists, scientists, regulators, and the industry can achieve in a short time when uniting forces

@Nephcure
#KidneyHealthInitiative
@ASNKidney

Join us👇

[C3G Natural History @C3GNHStudy]

@MPGN_DDD Info Day and AGM 2019. Free to attend and you can turn up on the day!
https://t.co/SwQW0HVKwC

[Apellis Pharma @ApellisPharma]

We are excited to announce positive preliminary results from the Phase 2 DISCOVERY study of APL-2 (pegcetacoplan) in people with C3 glomerulopathy (C3G) at ASN's Kidney Week. Read more here: https://t.co/cakImH1a84

[C3G Natural History @C3GNHStudy]

Only 1 week to go! Show your support https://t.co/zJtb4y0RLV

[C3G Natural History @C3GNHStudy]

A supporter of the study and mother to a patient with C3G, is raising money for research. Please have a read and donate if you would like.

Maud is going to be doing a crotchethon for 9 hours at Hammersmith Hospital!! Such a wonderful thing to do!

https://t.co/NcF6cqdU2d

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

Really extraordinary pipeline of #complement inhibition drugs in development. Lot of reasons for optimism - those with green * may all have role in #MPGNDDD @MPGN_DDD #MPGNDDDpatientsupportgroup

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

But it’s a challenge to interfere with #complement. 5% of our blood proteins, always active, key in response to infection. #ClaireHarris @MPGN_DDD #MPGNDDDpatientsupportgroup

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

Fantastic recruitment to @Radar #MPGNDDD #C3GN #RareDisease groups - nearly 1000 #patients from 73 hospitals #MPGNDDDpatientsupportgroup

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

National study of #MPGNDDD #C3GN to try to identify key biopsy function etc. Original study mostly children. #MPGNDDDpatientsupportgroup

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

Ongoing @RenalRadar #MPGNDDD #C3GN groups research

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

UK strategy for rare diseases and the #renal approach #MPGNDDDpatientsupportgroup

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

Challenges for patients with #MPGNDDD #C3GN #mpgndddpatientsupportgroup @MPGN_DDD @C3GNHStudy

[C3G Natural History @C3GNHStudy]

We are here and very excited!

[Prof Liz B 🇬🇧🇮🇱🇺🇦🇵🇸 @kidneydoc101]

Getting excited @Bham_Childrens for today’s #MPGNDDDpatientsupportgroup (includes #C3GN obvs!) today. @DrHannahLB @MatthewPickeri8 @Edwinwong00 @AchillionPharma all here plus of course the key players #patients & #families @MPGN_DDD

[Nick Medjeral-Thomas @NickRhysMT]

@toates_19 @MatthewPickeri8 and Terry Cook are PIs of international C3G Natural History Study. Will describe C3G pathogenesis and biomarkers of outcome. Also, will provide characterised cohorts who could receive novel complement-targeting therapies. Recruiting NOW! @DrHannahLB @C3GNHStudy

[C3G Natural History @C3GNHStudy]

Talk on #C3G by our CI @MatthewPickeri8. Highlights the need for our study!
#leadingexpert #C3GNaturalHistory https://t.co/sy5AFDILZQ

[Sarah Whittall @sarah_whittall]

Thanks @BCH_Rare for lecture rooms today for @MPGN_DDD AGM event. @C3GNHStudy , for the updates . Support & research 💜💜 #KidneyDisease

[C3G Natural History @C3GNHStudy]

Our CI is at the @goKDIGO conference on Controversies in Glomerular Disease, promoting the @MPGN_DDD group 👍🏻 #C3G #mpgn @MatthewPickeri8

[C3G Natural History @C3GNHStudy]

We are on our way to the 2017 AGM for the @MPGN_DDD support group. Come and join us at Birmingham Children's Hospital! @MatthewPickeri8

[C3G Natural History @C3GNHStudy]

We opened two more recruiting sites this week! Welcome to the study Lancashire and Nottingham @TeamNUH #researchuk #nhsengland #c3g

[C3G Natural History @C3GNHStudy]

Presenting the #C3GNHStudy as a poster at #EMCHD2017 @MatthewPickeri8 @MPGN_DDD @DDDC3GUK @UKRenalResearch @imperialcollege