CAPSIE

Capsie is the mascot for the Childhood Arthritis Prospective Study (CAPS) and follows the CAPS researchers on their travels to conferences around the world.

[EULAR @eular_org]

🇪🇺 #EULAR has called for a comprehensive EU led #RMDs strategy to tackle workplace exclusion on #WorldArthritisDay

📰 Read the #EULARpressrelease 👉 https://t.co/9P1I70UU4W
📺 Watch #EULAR2020Forum broadcast on-demand ▶️ https://t.co/5ZtNxCDCp1

#FightingRMDsTogether #covid19

[SouthwarkYA's 💙 @SouthwarkYAs]

The voices of young people are at the heart of everything we do. We ensure through our work that their views are listened to and that they are empowered to help bring about change on issues that affect them. Happy #InternationalYouthDay #empoweringyoungpeoplechangingcommunities

[Dr Sharon Bateman💙 @BatemanSharon]

Do you experience chronic pain and are you aged 11-19 ?
If yes and you live in the UK please take part in our NHS ethically approved research. Follow the link 👇or email [email protected] https://t.co/3sldz8RlvR
@BritishPainSoc @BNightsCRPS @APainPrincess #pain #ChronicPain

[JIA-at-NRAS @JIA_NRAS]

The countdown is over and NRAS is so pleased to announce our brand new JIA-at-NRAS website has been launched today! Please take a look, we hope you like it!

https://t.co/Kw7DQFcOmZ

[JIA-at-NRAS @JIA_NRAS]

To celebrate our newly launched JIA-at-NRAS website, we have a competition to take part in – A Purple Bonnie Hunt! There is one unique purple Bonnie who is hiding on a page on the website. Find her and you could be in for a chance to win an Amazon voucher! https://t.co/qvNPdjZ6iM

[Dr Lola Solebo 💙👶🏾👁️👩🏾‍💻 @lolaeyedoc]

For families of children & young people with #Uveitis or #JIA or other rheumatological disease: new #COVID19 FAQ resource available - thank you for helping to create and for hosting @CCAA_org @OliviasVision @JARProject @SNAC_JIA!

https://t.co/eoU0fbKU2D

[Dr Stevie Shoop-Worrall @sshoopworrall]

#EULAR2020 might be over but you can still see our @CLUSTER_Tweet poster (and hear my 2 min narration!) on MTX 'response' clusters in #JIA online!

#machinelearning

https://t.co/cVLh57wDjG

[JIA-at-NRAS @JIA_NRAS]

On the 30th of November, 13 year old Alfie is taking the plunge alongside 3 aquatic amigos to raise money for JIA at NRAS, in support of his younger brother Austin (age 9) who has JIA.

We wish them all the best with their 400 lengths target!

#swimming #fundraising

[BSR @RheumatologyUK]

Results:

Finding a novel association to a SNP in the intron of CCDC101 - a gene involved in transcription regulation through histone acetyltransferase.

Also some interesting research plans in this area!!

#BSPAR19 #research @BCRD_Study @CAPSIE_CAPS @SparksCharity

^LKF

[JIA-at-NRAS @JIA_NRAS]

#WearPurpleforJIA is such a fantastic excuse to raise funds and awareness of JIA. Here is a photo of Erin who was diagnosed with the condition when she was 3. Back in 2018 Erin took on a run in Leeds with her Mum, to raise awareness of the condition! #ThrowbackThursday

[EULAR @eular_org]

@eular_org is very excited to celebrate World Arthritis Day on 12 October 2019! Check out one of the teasers here and don’t forget to mark your calendar on 12 October for the launch of the full videos. #connecttoday #time2work

[ClusterConsortium @CLUSTER_Tweet]

Thank you to everyone who attended the CLUSTER Patient, Parent and Public Network talk.
#BSPAR2019
@VersusArthritis @CCAA_org @JARProject @iCANIreland @RheumatologyUK

For more information on the network, visit https://t.co/c56hWqvM2a or contact [email protected]

[Lianne Kearsley-Fleet @KearsleyFleet]

The use of the two mummies emoji here makes me incredibly happy!! It means more to me than you could ever know! #RepresentationMatters 👩‍👩‍👦

[BSR @RheumatologyUK]

Dr Katie Harrison reminds us to inspire young people to engage more in sports, as participation for those with JIA and other rheum conditions is below average for YP. They can fall in a gap, neither qualifying for parasport nor keeping up in mainstream sport #BSPAR19 ^PW

[CAPSIE @CAPSIE_CAPS]

Come to poster 22 to chat about the impact of JIA on Health-Related Quality of Life over time. Data from CAPS #BSPAR19 @VersusArthritis @UoMMskResearch

[CAPSIE @CAPSIE_CAPS]

‘What impact does JIA have on Health Related Quality of Life over time?’ Data from CAPS, presented by Andrew Smith yesterday #BSPAR19

[Laura Lunt @lunt_laura]

Peer support is very important. Nice to see the latest AYA clinical practice handbook being quoted @DrJMcD & Rachel... You can still buy your copy online at a competitive price :) AND read the words directly from young people too!!