Cardiff Epilepsy Research

Official account of Cardiff Epilepsy Research / Cyfrif swyddogol Uned Ymchwil Epilepsi Caerdydd.

[Emma IS @EmmaIS_ca]

Today marks SUDEP Action Day, a crucial time to bring attention to Sudden Unexpected Death in Epilepsy, a risk many people aren’t aware of.

By sharing knowledge, supporting research, and encouraging conversations around seizure safety, we can work to prevent these tragedies.

[Dravet Syndrome UK @DravetUK]

For Dravet Syndrome Awareness Month, Professor Ingrid Scheffer talks about expectations of gene therapies and other treatments, and what these mean for the future of #DravetSyndrome.

Watch the full edit at https://t.co/eHjUebC8Za

#DravetAwarenessMonth @ingridscheffer

[Cardiff Epilepsy Research @CAV_Epilepsy]

Thanks to all involved #Theatres #Neurosurgeons #Neurologists #ClinicalFellows #ResearchNurses & most importantly our Epilepsy patient volunteers without whom this wouldn’t be possible ⁦@ResearchWales⁩ ⁦@NIHRresearch⁩ https://t.co/e6g8avVsRP

[Cardiff Epilepsy Research @CAV_Epilepsy]

Well done to Professor Khalid Hamandi and team for the first Wales participant successfully recruited into the REAL ASE study. Details on implanted device below 👇
@CAV_Research @CV_UHB @Brainunitwales #NRU @KingsCRF

[UNEEG Medical @UNEEG_medical]

“UNEEG medical are proud to be part of the My Seizure Gauge project at King’s College London. Professor Mark Richardson and study investigator Pedro Viana explains the potential of the project in epilepsy.
Check out the short video

https://t.co/4xqVJPaKxj

[International League Against Epilepsy @IlaeWeb]

Key point: "One in 5 adults with drug-resistant focal #epilepsy who screen negative for depression become positive 6 months after a drug-treatment change."
@EpilepsiaJourn: https://t.co/YkRx46zsJE

[ILAE BRITISH BRANCH @ILAEBRITISH]

Now time for a session on ‘epilepsy, cognitive impairment, neurodegeneration’ chaired by @khalidhamandi.

[Rhys Thomas @Dr_Rhys]

We are marvelling at Prof Phil Smith, treating us to what he has learned about epilepsy, during his excellence in epilepsy award @ILAEBRITISH

[ILAE BRITISH BRANCH @ILAEBRITISH]

A wonderful talk by Professor Phil Smith 👏🏻 thank you for sharing your wisdom!

[Epilepsy Research Institute @EpilepsyInst]

What a day it's been at the @ILAEBRITISH Annual Scientific Meeting. Thank you to our Founding Partners, supporters and the research community for helping us launch the #EpilepsyResearchInstitute. Stay tuned for further updates on this pivotal moment for research into epilepsy…

[Cardiff Epilepsy Research @CAV_Epilepsy]

https://t.co/4LvIsK2uOi

[Cardiff Epilepsy Research @CAV_Epilepsy]

Exciting times ahead for Epilepsy Research #NRU #CardiffEpilepsyResearch

[Epilepsy Research Institute @EpilepsyInst]

.@EpilepsyRUK along with Founding Partners has announced that it will be forming the Epilepsy Research Institute UK later in the year to radically advance the treatment and prevention of epilepsy. #EpilepsyResearchInstitute

https://t.co/kvMimkaqrp

[Cardiff Epilepsy Research @CAV_Epilepsy]

Our very own Dr Sai Ambati representing the Neuroscience Research Unit Cardiff in sunny Belfast @theABN_Info @CAV_Research @ResearchWales @CV_UHB #ABNINA23 #EpilepsyResearch @Dr_RandaM @khalidhamandi

[SUDEP Action @SudepAction]

Our SUDEP & Seizure Safety Checklist is a free tool supporting clinicians in discussing risk with people with #epilepsy.
We aim to ensure that all people living with epilepsy are SUDEP aware & know how to reduce their risk.
https://t.co/M5FXosEZqp

[Cardiff Epilepsy Research @CAV_Epilepsy]

Come join us in Epilepsy Research as a clinical research fellow in our dedicated Neuroscience Research Unit in Cardiff. Fabulous opportunity to gain valuable clinical and research https://t.co/3badCPEJ79 for more info https://t.co/7Lhn2frJRq

[Cardiff Epilepsy Research @CAV_Epilepsy]

Dydd Gwyl Dewi Hapus!! 🏴󠁧󠁢󠁷󠁬󠁳󠁿 #NRU #EpilepsyResearch

[CTRCardiffUni @CTRCardiffUni]

Been asked to take part in a clinical trial in the last year?

The Explain Initiative would like to hear from you. Help us shape the information given to participants.

To complete the survey visit:

https://t.co/oOagnVH3ad

@claire_nollett

[International League Against Epilepsy @IlaeWeb]

Happy International #EpilepsyDay! #EpilepsyIs a treatable condition. As many as 70% of people with #epilepsy could live seizure free with appropriate diagnosis & use of cost-effective & commonly available antiseizure medicines.
#StampOutStigma #IGAP @yesILAE @IBESocialMedia

[Helen Bevan @HelenBevan]

Ten ways to have a better conversation: 1) Don't multitask 2) Don't pontificate 3) Ask open-ended ?s 4) Go with the flow 5) Say if you don't know 6) Don't equate your experience 7) Don't repeat yourself 8) Avoid the weeds 9) Listen 10) Be brief https://t.co/ptA7E3tKM2 By @tnvora

[Epilepsy Research Institute @EpilepsyInst]

Today we begin our journey to develop the research strategy for the #Every1EndingEpilepsy programme: 26 neurologists and neuroscientists from higher education institutions across the country join us to get started on radically advancing research into epilepsy.

[International League Against Epilepsy @IlaeWeb]

#ILAEAcademy & @EpiCARE_ERN partnered to develop free, self-paced e-learning modules for healthcare professionals. Topics include Dravet syndrome, autoimmune encephalitis & hypothalamic hamartoma, as well as a case on ring chromosome 20. https://t.co/NmRgrHm8Qa #epilepsy #ILAE