Keynote Speaker & award-winning author 🥇"Lessons I from a CF Cornerman" CFF Leadership Board 💪, Caregiver❤️, teller of my wife's crazy Lung Transplant story😮
You no longer need to ask "What can I do to help?" And your loved one no longer needs to come up with an answer. #cysticfibrosis The Premium Hospital Comfort Kit by CF Cornerman https://t.co/QHWSvyYqVp
.@RepThomasMassie@senRandPaul@McconnellPress, as a constituent and someone personally affected by #cysticfibrosis, I’m calling attention to the need for new antibiotics. I urge you to cosponsor the PASTEUR Act to help tackle this complex issue that impacts us all! #CFadvocacy
If there’s one thing @CFCornerman's wife has taught him, it's that amazing courage is not improved by focusing on the imposing strength of #cysticfibrosis; it's magnified by laughing in its face. https://t.co/kalTaLXqqk
The Foundation announced today nearly $15M in funding for 33 academic studies into infection, as part of our $100M Infection Research Initiative to address the chronic and intractable infections that are a hallmark of #cysticfibrosis. https://t.co/cjSAvyUR70
“Although I'm seeing so many levels of social distancing (or lack thereof), I can't help but feel like CF is making itself known now more than it ever has. We don't know when the risks will be low enough that we can get back to our normal.” -@julie_riedy https://t.co/gdA5HaYHMn
With the recent move from in person to online due to Coronavirus concerns, the CFF Volunteer Leadership Conference will go on tomorrow!
Check out my latest blog about this.
One of our 2020 Volunteer Leadership Conference co-chairs, @CFCornerman, shares his advice for making the most out of our virtual #CFFVLC. https://t.co/ts1XHEEBgV
We have been continually monitoring COVID-19 developments and CDC guidelines, plus consulting with CF infectious disease experts to provide up to date information for those with CF. https://t.co/j59wvRSs9E. Stay cautious. Stay safe.
We’re riding to support the CFF and efforts to find a cure! Cincinnati CF Cycle for Life 2019: Ray Poole - Cycle - Cystic Fibrosis Foundation https://t.co/apopNzSXGg
Did you know that at the Senate press conference last week on the importance of protecting insurance for individuals with preexisting conditions, 5 of 47 senators featured stories of people with CF? Amazing! Mary Dwight and the CFF advocacy team are getting it done! #TeamCF