CF Discord

A community for Cystic Fibrosis by people with Cystic Fibrosis. Join our server:

[CF Discord @CFDiscord]

Make sure you join our forum using @discordapp ! Get the chance to talk directly with other people with Cystic Fibrosis! Click this link: https://t.co/YMbnSPIpmi to get started! #cysticfibrosis #cf

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Frailty Index for Lung Transplant CF Patients Helps to Predict Outcomes https://t.co/6h2z7tl4bN

Measures of frailty, based on an established index of physical activity, fatigue, weight loss, and the like for older adults, helps in predicting likely…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Most Adults in CF Study Have Low Bone Mineral Density https://t.co/x6kYH6859f

More than half of adults with cystic fibrosis (CF) who underwent assessments of bone mineral density at a U.S. center had lower-than-expected bone density, a new study re…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews US Study Finds Delays in CF Care for Babies From Minority Groups https://t.co/wLMFF6vVxG

Among babies with cystic fibrosis (CF) identified via newborn screening, there are marked delays in the start of care for children from racial and ethnic backg…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Kaftrio Boosts Exercise Capacity in Teens With CF, Case Analysis Shows https://t.co/6mVDxVX3Wf

A six-week treatment with Kaftrio led to marked improvement in exercise capacity in adolescents with cystic fibrosis (CF), according to an analysis of th…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Phase 1 Trial of KB407, Gene Therapy for All With CF, to Open in US https://t.co/YLk3muZyTy

A Phase 1 clinical trial of an experimental inhalation gene therapy for cystic fibrosis (CF) — KB407 by Krystal Biotech — was given clearance to start by th…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Reducing Treatment Burden Key to CF Patients, Survey Suggests https://t.co/3vwFSDI1oS

Adults with cystic fibrosis (CF) are willing to accept reductions in lung function and life expectancy as a trade-off for a reduced treatment burden, a survey of …

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews The Benefits of Having a Coach During the Transplant Process https://t.co/jGZvFkUeYp

When I started evaluation for my double-lung transplant in spring 2015, I didn’t have any friends in the cystic fibrosis community. As I took the brave step to joi…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews ‘Astonishing’ Acts of Feminism Throughout My Journey With CF https://t.co/L6luCtD8Ar

In the musical “Little Women,” each of the four March sisters has an artistic talent. Jo March’s song “Astonishing,” a feminist lament about her ever-changing path…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Mothers of CF Children Need Support for Caregiver Burnout: Study https://t.co/2XtbCNpnEs

Mothers who care for children with cystic fibrosis (CF) often experience depression, burnout, caregiver burden, and negative attitudes toward their children, a…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews ASO Cocktail May Help in Treating CF Due to W1282X Mutation https://t.co/iLTRxtxTP5

A potential gene-specific therapy for cystic fibrosis (CF) may lie in antisense oligonucleotides, or ASOs, that enhance the production and activity of the truncated…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews CF Foundation’s First ‘Golden Ticket’ Contest Announces Winners https://t.co/30jmSYV3lr

Avecris and Nosis Biological Sciences have won the Cystic Fibrosis (CF) Foundation’s inaugural “Golden Ticket” Competition. The companies will each receive one …

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews GLP-1 Hormone Infusions May Boost Insulin Production in CF Patients https://t.co/NQlf7NgmGS

Infusions with a hormone called GLP-1 boosted insulin production in cystic fibrosis (CF) patients with impaired glucose tolerance, according to data from a …

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews I Want to Feel Comfortable Going to the Clinic Again https://t.co/2ecgB6MGGe

Because of the COVID-19 pandemic, I’ve never met my current pulmonary care provider in person, and I keep putting off my face-to-face appointment.

I moved from Alabama to…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Inhaled Antibiotics Tied to Greater Risk of Aspergillus Infection https://t.co/9ZjQzE8fok

People with cystic fibrosis (CF) who use inhaled antibiotics are at more than three times higher risk of becoming infected with the fungus Aspergillus fumigat…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews ‘You Two’: The Therapeutic Power of Pets for CF Patients https://t.co/E2gVIgkxyN

The song “You Two” from “Chitty Chitty Bang Bang” inspired my dream of adopting twins from a young age. To this day, I’m not sure if the kids in the musical were writt…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Lumacaftor Leads to ‘Healthy Cell’ Protein Reorganization in Organelles https://t.co/1TEA7k9GiC

Lumacaftor (VX-809) — one of the medications in the CFTR modulator Orkambi —  led to a significant protein reorganization in two cellular compartments i…

[CF Discord @CFDiscord]

#CF #CysticFibrosis #CFNews Cincinnati Children’s Gains AI Platform to Speed CF Research https://t.co/XLuq4qnCsU

Cincinnati Children’s Hospital Medical Center will use Epistemic AI’s platform, a state-of-the-art artificial intelligence (AI) research tool for the life sciences…