The Bonnell Foundation

The Bonnell Foundation: Living with Cystic Fibrosis provides financial assistance, Educ. scholarships, & resources to navigate life with CF. #CFMomof2girls

[The Bonnell Foundation @RoadmapToCF]

Today’s office! It’s loud with people (which I love), windows and hot coffee! #livingthelife #touslesjours coffee shop

[Patients Rising @patientsrising]

Hours in an infusion chair, or a few minutes for an injection. For patients, that difference is real. Thank you @RepMikeKennedy for asking @CMSGov to withdraw its fixed-dose combination proposal.

[Governor Gretchen Whitmer @GovWhitmer]

Nearly 10,000 Michiganders started getting letters from Undue Medical Debt last week. If one lands in your mailbox, open it. It’s real, and it’s telling you about medical debt you or someone in your family has accrued that’s been erased. You don’t need to do a thing.

[The Bonnell Foundation @RoadmapToCF]

CF nutrition has changed dramatically since Trikafta. So what does nutrition look like today? Dietician Stacey Fogarty-Brown talks about what families need to know, how CF care is changing. #CysticFibrosis https://t.co/3ocrUNSvya

[The Bonnell Foundation @RoadmapToCF]

Friday the 13th was a lucky day for our new friend Chloe who shares her CF story today on the Living with cystic fibrosis podcast! https://t.co/0T5lIuZaBZ

[Laura Teicher Bonnell she/her @LauraTbonnell]

Day two: NACFC.@CF_Foundation @RoadmapToCF

[The Bonnell Foundation @RoadmapToCF]

Join us Friday at #NACFC

[The Bonnell Foundation @RoadmapToCF]

Rare disease. Meet Michael and Judi Goldberg. They share their rare story and it will inspire you. https://t.co/eEEok2GaQu

[The Bonnell Foundation @RoadmapToCF]

The Night shift: Living with CF after dark! https://t.co/2xa8o0yerQ

[The Bonnell Foundation @RoadmapToCF]

It’s pregame! Set up day for tomorrow’s Gala! We have the best volunteers s and team! Can’t wait for the big fundraising day! @LauraTbonnell Headed to @MiLivonia to Laurel Manor for set up!

[The Bonnell Foundation @RoadmapToCF]

Restricting health information doesn't protect patients – it leaves families with fewer answers. Don’t take away the tools that help caregivers like Laura Bonnell find the care their children need.

Read her story here @the535news: https://t.co/omjpFUd4Rp | @InformYourCare

[The Bonnell Foundation @RoadmapToCF]

@askUHC [email protected] 248.520.2329 please fix this issue for the very sick and desperate people being incorrectly referred to us. Again, we only help people with cystic fibrosis. Thank you.

[The Bonnell Foundation @RoadmapToCF]

I don't know how to get through to @UHC . Trying to reach the right person by phone is not working. But @uhc has either been hacked, or some of your agents are consistently sending patients to my Foundation for help with diseases or illness we do not support. It's heartbreaking to talk with people who need help with other diseases, they're wasting their precious time calling a CF foundation. I am not sure why @uhc continues to refer people to us, but hopefully someone sees this and can send out an email to have its people stop sending random patients to us. We only help persons with cystic fibrosis. Thank you.

[The Bonnell Foundation @RoadmapToCF]

Newborn screening didn’t exist when my daughter was born with cystic fibrosis – it was a PSA on the local news that made me call the doctor. For families facing a rare diagnosis, access to health information can change everything. Read more in @535News: https://t.co/omjpFUd4Rp

[The Bonnell Foundation @RoadmapToCF]

Laura shares thoughts about 16 years of the Bonnell Foundation and the upcoming Gala! https://t.co/0KIyHGnnr5

[The Bonnell Foundation @RoadmapToCF]

Early morning Foundation work! Getting it done! The Gala is Saturday, September 19 th. Join us!

[The Bonnell Foundation @RoadmapToCF]

Working with Australia. A joy. @CFqueensland Hear my podcast with CEO, Petrina Fraccaro. She's brilliant!

https://t.co/oqJGxP8YY8