CFF - Wisconsin

The Wisconsin Chapter of the Cystic Fibrosis Foundation supports the search for a cure for CF by fundraising, promoting awareness & providing community support.

[Cystic Fibrosis Foundation @CF_Foundation]

Cystic fibrosis affects more than just the lungs.

CF can cause changes in many parts of the body, including the lungs, pancreas, liver, intestines, sinuses, reproductive system, and sweat glands. #CFAwareness

[Cystic Fibrosis Foundation @CF_Foundation]

When the CF Foundation was established in 1955, there were no treatments for cystic fibrosis. Today, there are more than a dozen new treatments for CF. #CFAwareness

[CFF - Wisconsin @CFFWI]

It’s easy to get involved during CF Awareness Month! Update your cover photo to show your dedication to the fight against cystic fibrosis.

#CFAwarenessMonth
#CFFWI

[CFF - Wisconsin @CFFWI]

A special THANK YOU to @GovEvers for his official Proclamation for the month of May to be recognized as Cystic Fibrosis Awareness Month! We are so honored!
Please feel free to share, post, and spread the word! HAPPY CF AWARENESS MONTH!
#cfawareness
#CFAwarenessMonth

[CFF - Wisconsin @CFFWI]

@atbraun Thank you so much, @atbraun! We are so excited to have the UW Adult team back this year!

[CFF - Wisconsin @CFFWI]

THANK YOU to our #65RosesChallenge sponsors!
Gold National @abbvie
Silver National @VertexPharma
Bronze National @genetech @GileadSciences
Regional @MylanNews
Community Champion @HupyandAbraham
Virtual Experience @OldRepublicIns
Event Supporter @MGIC
Media: @ESPNMilwaukee

[CFF - Wisconsin @CFFWI]

What is the 65 Roses Story all about?

https://t.co/H0zljhhJtD

Remember to TUNE IN this FRIDAY for our 65 Roses Rocks Kick Off event!
https://t.co/q0XB2VMpWg

[CFF - Wisconsin @CFFWI]

YOU STILL HAVE TIME TO RSVP! Join the cystic fibrosis community in Wisconsin on Facebook Live TODAY at 4PM for Wisconsin Together, a virtual pep rally to bring together the CF community!

We hope to see you there!
https://t.co/u8M0Ded5wz

[Cystic Fibrosis Foundation @CF_Foundation]

For someone to have #cysticfibrosis, you must inherit two copies of the CFTR gene that contain mutations--one copy from each parent. That means that each parent must either have CF or be a carrier of a CFTR gene mutation. #CFawareness

[CFF - Wisconsin @CFFWI]

Looking for a way to spread cystic fibrosis awareness before the May 15th pep rally? Print out a Wisconsin Together rose rally sign, color it, place it in your window, & send a pic to [email protected]!

RSVP here: https://t.co/u8M0Ded5wz

[CFF - Wisconsin @CFFWI]

Join us on Facebook Live on FRIDAY, MAY 15th for WI Together, a virtual pep rally to bring together the cystic fibrosis community in WI. Even though we can’t come together in person, we can still be together virtually!

https://t.co/u8M0Ded5wz

[CFF - Wisconsin @CFFWI]

Welcome to our 2nd FIGHTER FRIDAY! Give a virtual HIGH FIVE to Gabriel! Welcome to our SECOND FIGHTER FRIDAY! Give a virtual HIGH FIVE and hello to our Fighter, Gabriel! He loves to play outside, snuggle with his dog, and enjoys baking! Someday, he wants to be a police officer.

[CFF - Wisconsin @CFFWI]

It's SPIRIT week and we are SO excited! Today is MOVE IT MONDAY, and we want to see YOU and your family! How are you staying active while staying safe?

Make sure to tune in throughout the week for all the crazy fun and play along with us! We miss you all! #SpiritWeek

[CFF - Wisconsin @CFFWI]

A huge HIGH FIVE to @HupyandAbraham for committing themselves as our Event Experience sponsor at our #XtremeHikeWisconsin! We are SO excited and grateful!

[CFF - Wisconsin @CFFWI]

WOW! Congratulations to all of the hikers that have committed themselves to our 2020 #XtremeHikeWisconsin! We are happy to announce we already have 24 hikers registered!

Interested in joining us? REGISTER early!
https://t.co/WTwUKycLcb

Questions? Contact Lisa at [email protected]!

[Carolyn Clow @CarolynClowWI]

National Advocacy Co-chair Drew Strube @CFstrong11 motivating us this morning as we prepare to go to capital hill. Until it's done. #CFadvocacy @CFFWI

[Carolyn Clow @CarolynClowWI]

We had a great conversation with staff from @RepBryanSteil about supporting robust NIH and FDA funding and supporting affordable, accessible, available healthcare for all Wisconsinites. #CFadvocacy @CFFWI

[Carolyn Clow @CarolynClowWI]

While we were here, @ElaineRuh stopped in to drop off some information with her Congressman @repgrothman. Reminding him we need his help, Until it's done. #CFadvocacy @CFFWI

[Carolyn Clow @CarolynClowWI]

Thank you to @SenRonJohnson for meeting with us. We look forward to your support of affordable, accessible, available healthcare for all Wisconsinites. #CFadvocacy @CFFWI

[Carolyn Clow @CarolynClowWI]

We were pleased to meet with staff @JimPressOffice today. We appreciate the Congressman 's support of protecting healthcare for those with preexisting conditions and addressing drug pricing issues. #CFadvocacy @CFFWI