CF Researchers' Network

Bringing together people with CF creating new research to network, collaborate & share experiences

[CF Researchers' Network @CFResNetwork]

Come and join us! 👇#CysticFibrosis #Research

[Dan Beever @Dan_Beever]

Very grateful to those that have completed my survey or shared it - it will close in a couple of weeks so any further help in boosting response numbers would be much appreciated.

Particularly keen to hear from more people with CF & carers! 🙏🏻 #CysticFibrosis #MRI

[CF Researchers' Network @CFResNetwork]

@cmathews_psych Happy Birthday Cicely! 🥳

[Cicely @cmathews_psych]

Still looking for people! Especially those in the #menopause or #pregnancy with #cysticfibrosis #CF

[CF Researchers' Network @CFResNetwork]

👋WE'RE BACK!

If you're living with CF and involved in academic research of any type, we'd love to hear from you - our DMs are open so get in touch!📩#CysticFibrosis #Research

[YouthActiveUnlimited @CF_ActiveYouth]

Are you a parent/guardian of a child (6-12 years) with #CF?

Would you like to try out a new family-based programme for free & get involved in #cysticfibrosis #research?

Get in touch! https://t.co/fFVe8tGwPt or email directly: [email protected]

Please RT!

[ACPCF research @AcpcfR]

PhD opportunities here⬇️⬇️We’re building experience of PhD level research and training within @acpcf so do ask if you want support (moral or practical) with applying for these great opportunities @CF_Exercise @CFResNetwork @Manchester_cf @LeedsCFSRC

[SCHARR @SCHARRSheffield]

.@Dan_Beever has recorded a podcast as part of the @sheffielduni Pop Up University that explores the topic of Clinical Trials: The who, the how, the what. You can listen here https://t.co/Qim90wkZm7

[Cystic Fibrosis Foundation @CF_Foundation]

On #GrandparentsDay, we celebrate all the amazing grandparents that offer their unconditional love and support to members of the cystic fibrosis community. Thank you for all that you do for your loved ones with CF!

[Gemma Stanford (PhD) @GemStanf]

Excited to have been part of the team creating this Exercise Practitioner Fellowship. ⁦@acpcf⁩ @acpcfr please share with anyone interested. ⁦@TomlinsonOwen⁩ ⁦@_James_Shelley⁩ ⁦@LisaMorr1992⁩ @kent1_10 Thanks to the ⁦@cftrust⁩ https://t.co/oNQW6ytW3k

[Cystic Fibrosis Trust @cftrust]

Become a Youth Ambassador for research!
If you're aged 11-18 and would like to share your experience of #cysticfibrosis to help our research, please get in touch!
Email [email protected] or call 0203795 2130

[CF Researchers' Network @CFResNetwork]

@CFReSHC Congratulations! 🙌🏻

[CF Researchers' Network @CFResNetwork]

@Beam_CF @PamelaS_Beam Happy Birthday Pamela! 🥳

[CF Researchers' Network @CFResNetwork]

We might have gone quiet recently during our summer break 😎 but we haven’t gone away and we are back later this month with a meeting on the 31st August, 1-3pm!

If you’re interested in joining us then follow the link below 👇🏻

https://t.co/udyhhob7T1

#research #cysticfibrosis

[CF Researchers' Network @CFResNetwork]

Are you a student with CF starting University later this year? If so, you might be excited, nervous or a bit of both!

If you’d like to connect with others who have experience of managing their CF alongside their Uni studies then please get in touch! 👇🏻

https://t.co/udyhhob7T1

[Robert Vaughan @DrRobertVaughan]

Great opportunity for undergraduate and postgraduate students to showcase their work and get some conference experience! See below for more details. I remember my first DSEP conference way back in Dec 2010!

[Cicely @cmathews_psych]

I FINALLY GRADUATED!🎉🎉🎉

[Dr Owen Tomlinson @TomlinsonOwen]

We're asking people with #cysticfibrosis related #diabetes for some opinions on physical activity!

We're developing a new study, but need some insight on what questions we should ask! If you have any thoughts on how your diabetes affects your exercise, please do let us know!

[Cystic Fibrosis Foundation @CF_Foundation]

CW: This blog discusses traumatic experiences and iatrogenic violence.

@Dori_Kiel, an adult with CF, shares how therapy helped her understand how traumatic medical experiences she encountered growing up made her a more effective advocate as an adult. https://t.co/25JigH2ehu