CysticFibrosis Unite

Enabling discussion between people with cystic fibrosis, parents of children with CF, clinicians & CF researchers. Connect, Share, Inform, Unite

[Question CF @questionCF]

The survey is in 3 stages:
1st you select all of the q's you like out of the 70+ listed.
Then you select your top 10.
Then you rank them.

[Question CF @questionCF]

Please tell us your top 10 https://t.co/NkKLYErhS2 #QuestionCF

[Freya Harrison @friendlymicrobe]

@CFUnite @CFAware @questionCF @cftrust ? https://t.co/Xbn0NBvqLL

[CysticFibrosis Unite @CFUnite]

Adults with #cysticfibrosis needed to help @uniresearch on food and digestion. Non-invasive MRI study. https://t.co/A7eBxlhE2Q

[Cystic Fibrosis Trust @cftrust]

Prof Bilton given standing ovation when honoured with lifelime achievement award #ECFS2016 https://t.co/ZDItfN6tpO

[Keith @keiththomps0n]

Perhaps the most important question? @ukcfpg @rpharms @cftrust @CFUnite https://t.co/LFEb03X48Y

[National Institute for Health and Care Research @NIHRresearch]

We’re celebrating 10 yrs of NIHR research. Share your happy memories of how research helped save your life #NIHRat10

[Mike Cox @MikeyJ]

We'll be talking about bugs in your lungs and how these change when you're sick with @TheCuriousAct #impfest

[National Institute for Health and Care Research @NIHRresearch]

#NIHR is 10 this year. Help us celebrate by sharing stories & photos of your involvement in research #NIHRat10

[Question CF @questionCF]

We think there are lots more questions out there waiting to be submitted https://t.co/umVwsaeLto https://t.co/lbBgJlvQ7I

[Young Research Champions West Midlands 💙 @YPSGWMids]

Tell us what you think of our film about young people's patient and public involvement in research https://t.co/vUc9BnWxPU

[Rare Diseases @CheckOrphan]

FDA Grants Orphan Drug Status to Mul-1867 for Resistant Infections in #CysticFibrosis https://t.co/RCqpfDayse @CF_Foundation @CFUnite

[CyFi Life @CyFi_Life]

Great initiative to generate research ideas by drawing on the expertise of those that know CF best-the CF community! https://t.co/u7bUZapAQM

[Question CF @questionCF]

We're interested in what pwCF and their loved ones think about research; what do you think needs to be looked at? https://t.co/umVwsaeLto

[CysticFibrosis Unite @CFUnite]

@ERSTalk @RCPCHtweets @cochranecfgd @thoraxbmj https://t.co/o2HiSdx2Kz

[Question CF @questionCF]

Got a burning issue you think is ignored in #CysticFibrosis research? Please tell us, we want to know! https://t.co/nCIBnmsAD4 #QuestionCF

[CysticFibrosis Unite @CFUnite]

@friendlymicrobe @LindAlliance @questionCF and lab scientists!!

[Freya Harrison @friendlymicrobe]

Interesting! @LindAlliance survey patients & health pros to help set research & funding priorities. #cysticfibrosis https://t.co/734k0F6TDa

[Tracey Daniels @thecfphysio]

@CFNewsToday have you seen the James Lind alliance priority setting partnership? A chance to have a voice in CF research #QuestionCF

[European Lung Foundation @EuropeanLung]

A centre for people with cystic fibrosis is using social media to communicate with the people it treats https://t.co/7QWfqVlf7Q via @ERSTalk

[CysticFibrosis Unite @CFUnite]

Which big questions in CF need answering? PwCF, friends, healthcare workers, lab scientists ALL needed #QuestionCF https://t.co/2Adw7BlqfP