@GreatStrides65@kyliem@TheRangeUK Yes and there were 3 others too on my tread last night. @X are a terrible organisation these days I avoid if at all possible 🙄🤦🏼♀️
@SkyHelpTeam I’m requesting the free VIP night in. I don’t care ifs it a rental or not. This was your (sky) offer to me via the “mysky@ app because I’m a vip diamond member. ??
Hello @SkyHelpTeam
I was looking forward to my SKY VIP rewards movie night in lbut despite following your instructions on my Sky app, my Sky Q box wouldn’t allow me to watch this movie assuming I didn’t have enough credit on sky store 🤷♀️You said it was a FREE gift🎁🎥😡
Dm sent
@BenOxlade1 PTSD is still a thing for me (& my daughter) when her fev1 plummeted to below 30% when she was a teenager & realistically the whole family too! Be kind to yourself. Take time to find joy in the little things
The future is so bright for CF these days, especially for kids today 💛
Great news👋🏻
Progress on the next stage of modulator #CysticFibrosis drugs in the UK
Let’s hope it lives up to its expectations & that it will be a superior drug for pwCF🤞🏻
A once a day pill will also help!
@cftrust@jess_cranfield@ChrisMRiches
https://t.co/nSTmEdl2TG
Amazing to think this project started 24 years ago @jess_cranfield 😜🤩
A nice birthday present 💝 🧬
Novel inhalable gene therapy trialled for people with cystic fibrosis https://t.co/pvdAPIbkzc
This is so unprofessional @haart_uk
My beautiful daughter deserves to live in safe living conditions without all this mould 🦠 which is life threatening for someone with CF 🧬
You have a responsibility to sort this out
Shame on you!
@ChrisMRiches@cftrust@Daily_Express
This is so unprofessional @haart_uk
My beautiful daughter deserves to live in safe living conditions without all this mould 🦠 which is life threatening for someone with CF 🧬
You have a responsibility to sort this out
Shame on you!
@ChrisMRiches@cftrust@Daily_Express
As a person living with #cysticfibrosis it’s totally unacceptable that @haart_uk have left me living in horrific conditions despite trying to rectify for months. It’s putting my life and health as well as my housemates health at risk. it’s absolutely unacceptable
Great news for the 10% of pwCF who can’t take #kaftrio@jess_cranfield & possibly everyone if the 🧬technology works
A Phase 1b trial assessing the safety of inhaled therapy RCT2100 in cystic fibrosis patients has dosed the first participant in the U.S. https://t.co/VN8fsNe8Nw
Great news for the 10% of pwCF who can’t take #kaftrio@jess_cranfield & possibly everyone if the 🧬technology works
A Phase 1b trial assessing the safety of inhaled therapy RCT2100 in cystic fibrosis patients has dosed the first participant in the U.S. https://t.co/VN8fsNe8Nw
Wow….In the USA, a new @VertexPharma triple, once daily💊
“(vanzacaftor/tezacaftor/deutivacaftor), a once-daily next-in-class triple combination #cysticfibrosis ”
Interesting news for 🇺🇸 patients & hopefully in Europe soon…
@cftrust@ChrisMRiches
https://t.co/6mMeizHvs9