The CGD Association of America

The CGDAA is committed to advocating on behalf of patients and X-linked carriers by providing news and information about Chronic Granulomatous Disease.

[Felicia B. Morton @MortonPR]

Thank you to @EnsomaBio for inviting @CGDAofAmerica to Boston to learn more about their focus on precision, one-time, in vivo treatments that offer new hope in #CGD, #PrimaryImmunodeficiency, #Autoimmunity, #Oncology, and beyond.

[Felicia B. Morton @MortonPR]

Proud to partner w top research-scientists at @NIH & #PIDTC to co-author a study on X-linked female carriers of #CGD, which was just published in the top, peer-reviewed medical journal for #Immunology @ClinImmSoc
Read more about it in @CGDAofAmerica
https://t.co/yi4opoiLIZ

[The CGD Association of America @CGDAofAmerica]

Look forward to seeing everyone at the @IDFCommunity conference for this special dinner, hosted by @CGDAofAmerica! RSVP at info @ https://t.co/PiIgzE2Da0.

[Felicia B. Morton @MortonPR]

Join us for CGD Association of America’s Zoom Meeting with Crystal Cruz to discuss her son’s inspiring & innovative transplant journey, tomorrow, June 11th at 8 PM EST. Email us for the Zoom invitation at [email protected]
https://t.co/pJYHzPt2Qb

[The CGD Association of America @CGDAofAmerica]

Excited to attend @IDFCommunity’s PI Conference in Chicago 6/20-6/22 to learn the latest in #immunology & #gene therapy from the world’s leading experts, such as this key session w/ Dr. Malech, Chief of Genetic Immunotherapy, @NIH
& moderated by Felicia Morton
@CGDAofAmerica

[Felicia B. Morton @MortonPR]

Presenting @CGDAofAmerica’s latest news& research @ the Primary Immune Deficiency Treatment Consortium, hosted by @EmoryUniversity in Atlanta; honored to be sharing our success helping PI patients w/ the 200+ top #immunologists across North America who help make it possible!

[Felicia B. Morton @MortonPR]

Thanks to all who came out to the J.McLaughlin event to support the @CGDAofAmerica. It was super fun & great to see everyone. Let’s continue to work together to raise awareness for #CGD and advance research!

[Felicia B. Morton @MortonPR]

If you’re in the Palm Beach area, please pop by this evening from 4-7 pm for shopping and cocktails at J.McLaughlin in Manalapan. It will be a super fun event to support the @CGDAofAmerica
@Info4PI
@IDFCommunity
@JenLeidingMD
@WorldPIWeek
@rarediseasesnet
@GlobalGenes

[The CGD Association of America @CGDAofAmerica]

Join Us in Chicago this Summer for @IDFCommunity PI Conference June 20 - 22, 2024
Scholarships for #CGD Patients & Families Available. Deadline is today! To register:
https://t.co/juyMXJaqt7
@Info4PI
@CGDSociety
@SCIDAngels
@HyperIgM

[Felicia B. Morton @MortonPR]

Many thanks to @davidbakhtiari & the @packers for hosting @healingwithcyrus & @cgdaofamerica at @lambeaufield to shine a light on #cgd!!!

[Felicia B. Morton @MortonPR]

Honored to be featured in Bold Journey Magazine; thanks to @lizziecarlile & @VoyageLAmag for the opportunity to show what women w/ a passion for making a difference in #raredisease can accomplish!
https://t.co/ZfDWgErwZ7
@remember_girls
@Info4PI
@SCIDAngels
@angelaidcares

[Felicia B. Morton @MortonPR]

Join Brittany Hinman 12/5 @ 8 pm EST to learn about life after her son’s successful BMT & how she turned her trials w CGD into talent as a photographer. Email us at [email protected] for the Zoom invitation. All are welcome!
@CGDSociety
@remember_girls
@IDFCommunity
@HyperIgM

[Felicia B. Morton @MortonPR]

Today is #GivingTuesday2023 and at the @CGDAofAmerica, we are stronger because of you! Take a look at what we’ve accomplished together, and with your support, we’ll continue to make a difference for #CGD: https://t.co/vrFvTOpkyd

[The CGD Association of America @CGDAofAmerica]

We wish everyone in the #CGD community a Happy Thanksgiving. We are grateful for you! 🦃❤️🍁

[Felicia B. Morton @MortonPR]

#Immunologists: You're invited to participate in a survey by #UNC to help understand the #genetics resources you use, including #ClinGen, an #NIH -funded initiative that aims to improve precision medicine and research. https://t.co/9qVEcYZ722

[The CGD Association of America @CGDAofAmerica]

It's a wrap! Heading back home after another productive experience at @GlobalGenes #Rare Disease Summit in San Diego. Many thanks to @HorizonNews for sponsoring this "rare opportunity" for nonprofit leaders in this space to come together, learn, grow, and get inspired!

[Felicia B. Morton @MortonPR]

Join us tomorrow on Zoom for this important talk to delve into what physicians look for in an annual exam after #CGD patients have recovered from #BMT. Email us at [email protected] for the link.

[Felicia B. Morton @MortonPR]

Honored to just do an interview on @DNATodayPodcast, People's Choice award winner & voted best #science & #medicine podcast in '20, '21, & '22. It was an important opportunity to talk about @CGDAofAmerica & the advancements in #genetic testing. Stay tuned for air date!

[Felicia B. Morton @MortonPR]

What an honor to share @cgdaofamerica’s mission with my peers, who run top nonprofits across the U.S. in the #raredisease community, at #raremindsetforum at @HorizonNews HQ in Chicago! Many thanks to @PatientAuth for hosting & to Horizon for sponsoring!

[Felicia B. Morton @MortonPR]

From learning about the importance of genetic testing to learning how to practice more #selfcare, join @remember_girls and @CGDAofAmerica today for this informative and inspiring Instagram Live chat.
@Info4PI
@CGDSociety
@OnceUponAGene
@rarelikeher