The USA National Academies of Sciences, Engineering, and Medicine has just published a consensus report on HDCTs, including a substantial section on #EhlersDanlosSyndrome. The document was compiled to help #SocialSecurity make decisions about #disability. (Thread)
@LaurelGarver I haven't. I'll have to give it a try. Thanks. (I'm afraid I'm really bad at understanding song lyrics. I've been singing along to a song and my son has said, "Mom, you realize what the real words are to that song, right?" No...)
In this inspirational YA novel, AlzAuthor Laurel Garver weaves together a story about family drama, romance, teen angst, and a #dementia diagnosis in this beautifully written book. @LaurelGarver https://t.co/AXBOvOxL4Y
It's on! My most recent novel, The War Widow, is available on ebook right now for a limited time for just $1.99. Get it at this special price while it lasts, ahead of the release of The Ghosts of Paris in June!
https://t.co/Y4bFo5azZ8
#ebook#BookDeal#TheWarWidow
Everybody give a warm welcome to THE AMERICAS ๐, the last region to join the #RareDiseaseDay activities!
We are a global rare disease community, together we have a powerful voice๐ฃ
Are you taking part in Rare Disease Day in North, Central, or South America? Let us know! ๐๐๐
Itโs been nearly a year since the EveryLife Foundation for Rare Diseases released its expansive report finding the total economic burden of rare disorders in the U.S. to be nearly $1 trillion. #AdvocateAuroraResearchInstitute#EverylifeFoundation#GAO https://t.co/oPrHRnJHF3