CaPPRe

CaPPRe are world leading experts in community and patient preference measurement.

[CaPPRe @CaPPRe_research]

CaPPRe's director of Research and Innovations, @simonfifer, will be presenting tomorrow at @HTAiOrg #HTAi2024Seville. Stop by the session to learn about this interesting study and the importance of accounting for treatment experience in #patientpreference studies 🫀

[HTAi Patients and Citizens Involve Interest Group @PCISG]

We are kicking off our activities with the PCIG workshop today!

We will deep dive into "Patient And Citizen Involvement In Health Technology Assessment: Networks For Sustainability And Innovation" at 1:30 - 5:00 pm, Room España 4&5.

#HTAi2024Seville

[Dr. Deborah A Marshall Research Team @Marshall_HEcon]

Access the CaPPRe partnership opportunity using the CIHR partner search tool available here: https://t.co/EvljBqbOru

[CaPPRe @CaPPRe_research]

Jenni presented a second poster last night on "Chronic Lymphocytic Leukaemia: The Patient Experience in Australia" #patientexperience #PREMs #PatientVoice #Blood2023

[CaPPRe @CaPPRe_research]

CaPPRe's Jenni Godsell is presenting on "Treatment Preferences and Goals Among People Living with CLL" tonight at #Blood2023. Stop by board H53 to check out the poster!

To learn more about the project visit: https://t.co/M3ZxZ1wOe5

[CaPPRe @CaPPRe_research]

CaPPRe's @MayaHoensJoshi presented last night at #Blood2023 on "Using digital health to empower multiple myeloma patients in shared decision-making: Findings from the ChoiceApp® pilot study".

To learn more about ChoiceApp®, visit https://t.co/eiV1C1mgRq

[CaPPRe @CaPPRe_research]

Dr Linda Watson explains that we need to conceptualize cancer care as a longitudinal relationship where patients are partners in their care. Digital health tools are a key way to help facilitate this…as long as there is equitable access to them #Blood2023

[CaPPRe @CaPPRe_research]

CaPPRe is excited to be attending #Blood2023 in Melbourne! We’ll be sharing information about ChoiceApp, a new shared decision-making tool for people with myeloma, at Myeloma Australia’s exhibition stand. Come say Hello!

[Dr. Deborah A Marshall Research Team @Marshall_HEcon]

Thank you for highlighting this panel, @HubenAmy!

From the patient perspective, value includes aspects beyond costs and effectiveness - the value of knowing - and we have methods to measure this.

[CaPPRe @CaPPRe_research]

Our new shared decision-making program on ChoiceApp is live and available for those living with multiple myeloma! It can help patients identify their personal treatment preferences, track QoL, & have meaningful discussions with their HCP: https://t.co/0RyFFMw2s8 @MyelomaAust_MFA

[Dr. Deborah A Marshall Research Team @Marshall_HEcon]

Thank you, @CaPPRe_research for highlighting this and other #HTAi2023Adelaide sessions in which Deborah Marshall had the opportunity to present!

[CaPPRe @CaPPRe_research]

@KarenvanGorp Thanks Karen! This infographic provides a summary of the study design and results: https://t.co/1sc8dvkDiW

[CaPPRe @CaPPRe_research]

CaPPRe's Samson Kong presented findings from a choice experiment exploring community willingness to fund new treatments at #HTAi2023Adelaide. Key takeaway: "Australians are willing to fund new treatments not already covered by the government". Learn more➡️ https://t.co/1sc8dvk5to

[CaPPRe @CaPPRe_research]

Important topic discussed by @Marshall_HEcon and other panellists during this morning’s session at #HTAi2023Adelaide

[Heather Renton @heatherrenton]

There is more to a #diagnosis than a name. Information is knowledge which leads to inform decision making and empowerment. A diagnosis can lead to getting the supports you need; clinical, education and social supports. ⁦@HTAiOrg⁩ #HTAiAdelaide2023

[CaPPRe @CaPPRe_research]

Powerful presentation by @gillyminn this morning as part of the panel on how to measure value in genetic & genomic testing ⬇️

[Amy Von Huben @HubenAmy]

How much time does it take to be a patient? #HTAi2023Adelaide #HTA @syd_health @WARC_USYD @CKRRenal

[Amy Von Huben @HubenAmy]

#HTAi2023Adelaide going to be an informative session on new genetic and genomic tests in healthcare decisions #HTA @HTAiOrg @CPC_usyd @Sydney_Uni @WARC_USYD

[Tim Wrightson ☮ @ApplHealthEcon]

Very interesting discussion in the panel on genetic/genomic testing, especially regarding the ethical issues #HTAi2023Adelaide

[CaPPRe @CaPPRe_research]

Happening at 9:10 in Riverbank 3. If you're at #HTAi2023Adelaide, come join the conversation with @RareVoices @jacknunn @simonfifer @Marshall_HEcon @gillyminn & Prof Sarah Norris 🗨️

[CaPPRe @CaPPRe_research]

“Understanding what’s important to patients & how satisfied they are with different aspects of the healthcare pathway allows us to target areas for improvement”- CaPPRe’s Jenni Godsell presenting on the #MM Patient Experience Index ➡️ https://t.co/IdfBYLtIbr #HTAi2023Adelaide

[CaPPRe @CaPPRe_research]

Thanks to all panelists and audience for a fabulously engaging discussion on ‘speed and rigour’ in patient preference studies #HTAi2023Adelaide